- About this Journal
- Abstracting and Indexing
- Aims and Scope
- Article Processing Charges
- Articles in Press
- Author Guidelines
- Bibliographic Information
- Citations to this Journal
- Contact Information
- Editorial Board
- Editorial Workflow
- Free eTOC Alerts
- Publication Ethics
- Reviewers Acknowledgment
- Submit a Manuscript
- Subscription Information
- Table of Contents
Autism Research and Treatment
Volume 2012 (2012), Article ID 949586, 11 pages
Experiences of Siblings of Individuals with Autism Spectrum Disorders
Department of Special Education, Campus Box 5910, Illinois State University, Normal, IL 61790-5910, USA
Received 18 December 2011; Revised 17 January 2012; Accepted 30 January 2012
Academic Editor: Herbert Roeyers
Copyright © 2012 Maureen E. Angell et al. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
- American Psychiatric Association, Diagnostic and Statistical Manual of Mental Disorders, American Psychiatric Association, Washington, DC, USA, 4th edition, 2000.
- Centers for Disease Control, “Autistic spectrum disorders among children. Diagnostic and statistical manual,” 2010, http://www.cdc.gov/ncbddd.
- R. P. Hastings, H. Kovshoff, T. Brown, N. J. Ward, F. D. Espinosa, and B. Remington, “Coping strategies in mothers and fathers of preschool and school-age children with autism,” Autism, vol. 9, no. 4, pp. 377–391, 2005.
- H. Meadan, J. W. Halle, and T. A. Ebata, “Families of children who have autism spectrum disorder: stress and support,” Exceptional Children, vol. 77, no. 1, pp. 7–36, 2010.
- A. Turnbull, R. Turnbull, E. Erwin, L. Soodak, and K. Shogren, Families, Professionals, and Exceptionality: Positive Outcomes through Partnerships and Trust, Pearson/Merrill/Prentice Hall, Upper Saddle River, NJ, USA, 6th edition, 2011.
- D. Olson, “FACES IV and the circumplex model: validation study,” Journal of Marital and Family Therapy, vol. 37, no. 1, pp. 64–80, 2011.
- T. H. Powell and P. A. Gallagher, Eds., Brothers and Sisters: A Special Part of Exceptional Families, Brookes, Baltimore, Md, USA, 2nd edition, 1993.
- G. I. Orsmond, H. Y. Kuo, and M. M. Seltzer, “Siblings of individuals with an autism spectrum disorder: sibling relationships and wellbeing in adolescence and adulthood,” Autism, vol. 13, no. 1, pp. 59–80, 2009.
- J. W. Rivers and Z. Stoneman, “Sibling relationships when a child has autism: marital stress and support coping,” Journal of Autism and Developmental Disorders, vol. 33, no. 4, pp. 383–394, 2003.
- P. R. Benson and K. L. Karlof, “Child, parent, and family predictors of latter adjustment in siblings of children with autism,” Research in Autism Spectrum Disorders, vol. 2, no. 4, pp. 583–600, 2008.
- S. Fisman, L. Wolf, D. Ellison, and T. Freeman, “A longitudinal study of siblings of children with chronic disabilities,” Canadian Journal of Psychiatry, vol. 45, no. 4, pp. 369–375, 2000.
- R. P. Hastings, “Behavioral adjustment of siblings of children with autism engaged in applied behavior analysis early intervention programs: the moderating role of social support,” Journal of Autism and Developmental Disorders, vol. 33, no. 2, pp. 141–150, 2003.
- R. P. Hastings, “Brief report: behavioral adjustment of siblings of children with autism,” Journal of Autism and Developmental Disorders, vol. 33, no. 1, pp. 99–104, 2003.
- L. Kaminsky and D. Dewey, “Psychosocial adjustment in siblings of children with autism,” Journal of Child Psychology and Psychiatry and Allied Disciplines, vol. 43, no. 2, pp. 225–232, 2002.
- R. J. Macks and R. E. Reeve, “The adjustment of non-disabled siblings of children with autism,” Journal of Autism and Developmental Disorders, vol. 37, no. 6, pp. 1060–1067, 2007.
- K. Mascha and J. Boucher, “Preliminary investigation of a qualitative method of examining siblings' experiences of living with a child with ASD,” British Journal of Developmental Disabilities, vol. 52, no. 1, pp. 19–28, 2006.
- H. Meadan, J. B. Stoner, and M. E. Angell, “Review of literature related to the social, emotional, and behavioral adjustment of siblings of individuals with autism spectrum disorder,” Journal of Developmental and Physical Disabilities, vol. 22, no. 1, pp. 83–100, 2010.
- Z. Stoneman, “Siblings of children with disabilities: research themes,” Mental Retardation, vol. 43, no. 5, pp. 339–350, 2005.
- J. F. Beyer, “Autism spectrum disorders and sibling relationships: research and strategies,” Education and Training in Developmental Disabilities, vol. 44, no. 4, pp. 444–452, 2009.
- L. Kaminsky and D. Dewey, “Siblings relationships of children with autism,” Journal of Autism and Developmental Disorders, vol. 31, no. 4, pp. 399–410, 2001.
- T. J. Foden, “Sibling studies: The good, the bad, and the contradictory,” 2007, http://www.iancommunity.org/cs/articles/sibling_relationships.
- R. M. Hodapp and R. C. Urbano, “Adult siblings of individuals with Down syndrome versus with autism: findings from a large-scale US survey,” Journal of Intellectual Disability Research, vol. 51, no. 12, pp. 1018–1029, 2007.
- M. A. Petalas, R. P. Hastings, S. Nash, A. Dowey, and D. Reilly, “‘I like that he always shows who he is’: the perceptions and experiences of siblings with a brother with autism spectrum disorder,” International Journal of Disability, Development and Education, vol. 56, no. 4, pp. 381–399, 2009.
- A. Strauss and J. Corbin, Basics of Qualitative Research: Techniques and Procedures for Developing Grounded Theory, Sage, Thousand Oaks, Calif, USA, 1998.
- R. Stake, “Case studies,” in Handbook of Qualitative Research, N. K. Denzin and Y. S. Lincoln, Eds., pp. 435–454, Sage, Thousand Oaks, Calif, USA, 2000.
- E. Brantlinger, R. Jimenez, J. Klingner, M. Pugach, and V. Richardson, “Qualitative studies in special education,” Exceptional Children, vol. 71, no. 2, pp. 195–207, 2005.
- M. Miles and A. Huberman, Qualitative Data Analysis, Sage, Thousand Oaks, Calif, USA, 1994.
- K. Charmaz, “Grounded theory: objectivist and constructivist methods,” in Handbook of Qualitative Research, N. K. Denzin and Y. S. Lincoln, Eds., pp. 509–536, Sage, Thousand Oaks, Calif, USA, 2000.
- B. G. Glaser and A. L. Strauss, The Discovery of Grounded Theory: Strategies for Qualitative Research, Aldine, New York, NY, USA, 1967.
- R. S. Barbour, “Checklists for improving rigour in qualitative research: a case of the tail wagging the dog?” British Medical Journal, vol. 322, no. 7294, pp. 1115–1117, 2001.
- L. Richards, NVivo. [Computer software], Bundoora, Victoria, Australia, 2002.
- R. Bogdan and S. Biklen, Qualitative Research in Education: An Introduction to Theory and Methods., Allyn and Bacon, Boston, Mass, USA, 2006.
- A. Coffey and P. Atkinson, Making Sense of Qualitative Data: Complementary Research Strategies, Sage, Thousand Oaks, Calif, USA, 1992.
- D. Premack, “Toward empirical behavior laws: I. Positive reinforcement,” Psychological Review, vol. 66, no. 4, pp. 219–233, 1959.
- D. Premack, “Prediction of the comparative reinforcement values of running and drinking,” Science, vol. 139, no. 3559, pp. 1062–1063, 1963.
- L. Dellve, L. Cernerud, and L. R. M. Hallberg, “Harmonizing dilemmas—siblings of children with DAMP and Asperger syndrome's experiences of coping with their life situations,” Scandinavian Journal of Caring Sciences, vol. 14, no. 3, pp. 172–178, 2000.
- B. A. Glasberg, “The development of siblings' understanding of autism spectrum disorders,” Journal of Autism and Developmental Disorders, vol. 30, no. 2, pp. 143–156, 2000.
- K. D. Sage and B. Jegatheesan, “Perceptions of siblings with autism and relationships with them: European American and Asian American siblings draw and tell,” Journal of Intellectual and Developmental Disability, vol. 35, no. 2, pp. 92–103, 2010.
- K. A. Meyer, B. Ingersoll, and D. Z. Hambrick, “Factors influencing adjustment in siblings of children with autism spectrum disorders,” Research in Autism Spectrum Disorders, vol. 5, no. 4, pp. 1413–1420, 2011.
- L. O. Smith and J. H. Elder, “Siblings and family environments of persons with autism spectrum disorder: a review of the literature,” Journal of Child and Adolescent Psychiatric Nursing, vol. 23, no. 3, pp. 189–195, 2010.
- R. Twoy, P. M. Connolly, and J. M. Novak, “Coping strategies used by parents of children with autism,” Journal of the American Academy of Nurse Practitioners, vol. 19, no. 5, pp. 251–260, 2007.
- M. M. Seltzer, L. Abbeduto, M. W. Krauss, J. Greenberg, and A. Swe, “Comparison groups in autism family research: Down syndrome, fragile X syndrome and schizophrenia,” Journal of Autism and Developmental Disorders, vol. 34, no. 1, pp. 41–48, 2004.
- A. Bagenholm and C. Gillberg, “Psychosocial effects on siblings of children with autism and mental retardation: a population-based study,” Journal of Mental Deficiency Research, vol. 35, no. 4, pp. 291–307, 1991.
- S. M. McHale, J. Sloan, and R. J. Simeonsson, “Sibling relationships of children with autistic, mentally retarded, and nonhandicapped brothers and sisters,” Journal of Autism and Developmental Disorders, vol. 16, no. 4, pp. 399–413, 1986.
- G. I. Orsmond and M. M. Seltzer, “Siblings of individuals with autism spectrum disorders across the life course,” Mental Retardation and Developmental Disabilities Research Reviews, vol. 13, no. 4, pp. 313–320, 2007.
- Y. Benderix and B. Sivberg, “Siblings' experiences of having a brother or sister with autism and mental retardation. A case study of 14 siblings from 5 families,” Journal of Pediatric Nursing, vol. 22, no. 5, pp. 410–418, 2007.
- P. Ross and M. Cuskelly, “Adjustment, sibling problems and coping strategies of brothers and sisters of children with autistic spectrum disorder,” Journal of Intellectual and Developmental Disability, vol. 31, no. 2, pp. 77–86, 2006.
- K. Stalker and C. Connors, “Children's perceptions of their disabled siblings: ‘She's different but it's normal for Us’,” Children and Society, vol. 18, no. 3, pp. 218–230, 2004.
- H. Roeyers and K. Mycke, “Siblings of a child with autism, with mental retardation and with a normal development,” Child: care, health and development, vol. 21, no. 5, pp. 305–319, 1995.
- A. T. Ebata and R. H. Moos, “Personal, situational, and contextual correlates of coping in adolescence,” Journal of Research on Adolescence, vol. 4, pp. 99–125, 1994.
- H. I. McCubbin, E. A. Thompson, A. I. Thompson, M. A. McCubbin, and A. J. Kaston, “Culture, ethnicity, and the family: critical factors in childhood chronic illnesses and disabilities,” Pediatrics, vol. 91, no. 5, pp. 1063–1070, 1993.
- M. Cuskelly and P. Gunn, “Maternal reports of behavior of siblings of children with Down syndrome,” American Journal on Mental Retardation, vol. 97, no. 5, pp. 521–529, 1993.
- L. L. Dyson, “The experiences of families of children with learning disabilities: parental stress, family functioning, and sibling self-concept,” Journal of Learning Disabilities, vol. 29, no. 3, pp. 280–286, 1996.
- L. L. Tsao and S. L. Odom, “Sibling-mediated social interaction intervention for young children with autism,” Topics in Early Childhood Special Education, vol. 26, no. 2, pp. 106–123, 2006.
- F. Knott, C. Lewis, and T. Williams, “Sibling interaction of children with autism: development over 12 months,” Journal of Autism and Developmental Disorders, vol. 37, no. 10, pp. 1987–1995, 2007.
- K. A. Reagon, T. S. Higbee, and K. Endicott, “Teaching pretend play skills to a student with autism using video modeling with a sibling as model and play partner,” Education and Treatment of Children, vol. 29, no. 3, pp. 517–528, 2006.
- E. G. Guba and Y. S. Lincoln, “Paradigmatic controversies, contradictions, and emerging confluences,” in The Sage Handbook of Qualitative Research, N. K. Denzin and Y. S. Lincoln, Eds., pp. 183–216, Sage, Thousand Oaks, Calif, USA, 3rd edition, 2005.
- P. S. Strain and C. D. Danko, “Caregivers’ encouragement of positive interaction between preschoolers with autism and their siblings,” Journal of Emotional and Behavioral Disorders, vol. 3, pp. 2–12, 1995.
- D. J. Meyer and P. F. Vadasy, Sibshops: Workshops for Siblings of Children with Special Needs, Brookes, Baltimore, Md, USA, 1994.
- G. I. Orsmond and M. M. Seltzer, “Brothers and sisters of adults with mental retardation: gendered nature of the sibling relationship,” American Journal on Mental Retardation, vol. 105, no. 6, pp. 486–508, 2000.