Research Article

Conceptualisation and Development of a Quality of Life Measure for Parents of Children with Autism Spectrum Disorder

Table 1

QoLA items.

QoLA—Part A (QoL subscale)QoLA—Part B (impact of ASD symptoms subscale)

(1)I am satisfied with my lifeSocialising with people
(2)I feel stressed*Having friends
(3)I feel happy and contentUnderstanding others’ feelings
(4)I feel depressed or anxious*Holding a conversation
(5)I feel good about myself as a personCommunicating needs
(6)I am satisfied with my close relationshipsTaking a literal meaning of comments
(7)People are there for me when I need themSaying things that are socially embarrassing
(8)I am satisfied with my social lifeNeeding to stick to a routine
(9)I am satisfied with my family lifeBeing overly interested in a particular topic
(10)I am satisfied with my financial situationGetting anxious in a specific situation or during changes
(11)I am satisfied with where I liveSensitivity to certain sensations
(12)I have enough money to meet my needsUnderstanding the rules of social interaction
(13)I am satisfied with my achievementsManaging emotional responses
(14)I am satisfied with my general healthNeeding to do things a certain way
(15)I have a healthy lifestyle Destructive behaviours including anger and aggression
(16)I am satisfied with my leisure activities Showing inappropriate emotional reactions
(17)Health problems stop me doing things that I want to*Unusual repetitive behaviours or body movements
(18)I feel in control of my lifeEngaging in reckless or tactless behaviours
(19)I set and achieve goals in my lifeDoing daily living tasks independently
(20)I can make a plan of action and follow itResponding when approached socially
(21)I make my own decisions
(22)I feel guilty*
(23)I am part of a community
(24)I can get the support that I need from the community
(25)I am able to get to where I need to
(26)I feel safe in my everyday life
(27)I feel respected in my everyday life
(28)I am satisfied with the availability of health services

Item is reverse scored.