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BioMed Research International
Volume 2013 (2013), Article ID 852368, 15 pages
Comparison of Informal Care Time and Costs in Different Age-Related Dementias: A Review
1UMR1027, Inserm, 31073 Toulouse, France
2UMR1027, University of Toulouse III, 31073 Toulouse, France
3Medical Information Department, University Hospital of Toulouse, 31059 Toulouse, France
4Département d'Information Médicale, Hôtel-Dieu Saint-Jacques, 2 rue Viguerie, TSA 80035, 31059 Toulouse Cedex 9, France
5LIRAES, University of Paris Descartes, 75005 Paris, France
6Department of Geriatric Medicine, University Hospital of Toulouse, Gérontopôle of Toulouse, 31059 Toulouse, France
7Department of Epidemiology and Public Health, University Hospital of Toulouse, 31059 Toulouse, France
8EDISS, University of Lyon I, 69100 Villeurbanne, France
Received 12 July 2012; Revised 25 October 2012; Accepted 25 October 2012
Academic Editor: Stefan Agewall
Copyright © 2013 Nadège Costa et al. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
- Alzheimer's Association Report. Alzheimer's disease facts and figures. 2010.
- K. M. Langa, M. E. Chernew, M. U. Kabeto et al., “National estimates of the quantity and cost of informal caregiving for the elderly with dementia,” Journal of General Internal Medicine, vol. 16, no. 11, pp. 770–778, 2001.
- B. van den Berg, W. B. F. Brouwer, and M. A. Koopmanschap, “Economic valuation of informal care: an overview of methods and applications,” The European Journal of Health Economics, vol. 5, no. 1, pp. 36–45, 2004.
- H. Verbeek, G. Meyer, H. Leino-Kilpi et al., “A European study investigating patterns of transition from home care towards institutional dementia care: the protocol of a RightTimePlaceCare study,” BMC Public Health, vol. 12, article 68, 2012.
- R. Hébert, M. F. Dubois, C. Wolfson, L. Chambers, and C. Cohen, “Factors associated with long-term institutionalization of older people with dementia: data from the Canadian study of health and aging,” Journals of Gerontology A, vol. 56, no. 11, pp. M693–M699, 2001.
- Alzheimer's Disease International, World Alzheimer Report 2010: The Global Economic Impact of Dementia, 2011.
- J. Mauskopf and L. Mucha, “A review of the methods used to estimate the cost of Alzheimer's disease in the United States,” American Journal of Alzheimer's Disease and other Dementias, vol. 26, no. 4, pp. 298–309, 2011.
- G. McKhann, D. Drachman, and M. Folstein, “Clinical diagnosis of Alzheimer's disease: report of the NINCDS-ADRDA work group under the auspices of Department of Health and Human Services Task Force on Alzheimer's disease,” Neurology, vol. 34, no. 7, pp. 939–944, 1984.
- Gibb and Lees, United Kingdom Parkinson's Disease Society Brain Bank Clinical Diagnosis Criteria, 1988.
- G. C. Román, T. K. Tatemichi, T. Erkinjuntti et al., “Vascular dementia: diagnostic criteria for research studies: report of the NINDS-AIREN International Workshop,” Neurology, vol. 43, no. 2, pp. 250–260, 1993.
- I. G. McKeith, D. Galasko, K. Kosaka et al., “Consensus guidelines for the clinical and pathologic diagnosis of dementia with Lewy bodies (DLB): report of the consortium on DLB international workshop,” Neurology, vol. 47, no. 5, pp. 1113–1124, 1996.
- The Lund and Manchester Groups, “Clinical and neuropathological criteria for frontotemporal dementia,” Journal of Neurology, Neurosurgery & Psychiatry, vol. 57, no. 4, pp. 416–418, 1994.
- A. S. Rigaud, F. Fagnani, C. Bayle, F. Latour, L. Traykov, and F. Forette, “Patients with Alzheimer's disease living at home in France: costs and consequences of the disease,” Journal of Geriatric Psychiatry and Neurology, vol. 16, no. 3, pp. 140–145, 2003.
- E. Souêtre, R. M. Thwaites, and H. L. Yeardley, “Economic impact of Alzheimer's disease in the United Kingdom: cost of care and disease severity for non-institutionalised patients with Alzheimer's disease,” British Journal of Psychiatry, vol. 174, pp. 51–55, 1999.
- E. J. Souêtre, W. Qing, I. Vigoureux et al., “Economic analysis of Alzheimer's disease in outpatients: impact of symptom severity,” International Psychogeriatrics, vol. 7, no. 1, pp. 115–122, 1995.
- L. Jönsson, M. E. Jönhagen, L. Kilander et al., “Determinants of costs of care for patients with Alzheimer's disease,” International Journal of Geriatric Psychiatry, vol. 21, no. 5, pp. 449–459, 2006.
- J. Mesterton, A. Wimo, Å. By, S. Langworth, B. Winblad, and L. Jönsson, “Cross sectional observational study on the societal costs of Alzheimer's disease,” Current Alzheimer Research, vol. 7, no. 4, pp. 358–367, 2010.
- M. C. Cavallo and G. Fattore, “The economic and social burden of Alzheimer disease on families in the Lombardy Region of Italy,” Alzheimer Disease and Associated Disorders, vol. 11, no. 4, pp. 184–190, 1997.
- A. Coduras, I. Rabasa, A. Frank et al., “Prospective one-year cost-of-illness study in a cohort of patients with dementia of Alzheimer's disease type in Spain: the ECO study,” Journal of Alzheimer's Disease, vol. 19, no. 2, pp. 601–615, 2010.
- J. L. Bastida, P. Serrano-Aguilar, L. Perestelo-Perez, and J. Oliva-Moreno, “Social-economic costs and quality of life of Alzheimer disease in the Canary Islands, Spain,” Neurology, vol. 67, no. 12, pp. 2186–2191, 2006.
- W. Max, P. Webber, and P. Fox, “Alzheimer's disease: the unpaid burden of caring,” Journal of Aging and Health, vol. 7, no. 2, pp. 179–199, 1995.
- D. P. Rice, P. J. Fox, W. Max et al., “The economic burden of Alzheimer's disease care,” Health Affairs, vol. 12, no. 2, pp. 164–176, 1993.
- M. Hux, B. O'Brien, M. Iskedjian, R. Goeree, M. Gagnon, and S. Gauthier, “Relation between severity of Alzheimer's disease and costs of caring,” Canadian Medical Association Journal, vol. 159, no. 5, pp. 457–465, 1998.
- J. Leon and P. J. Neumann, “The cost of Alzheimer's disease in managed care: a cross-sectional study,” The American Journal of Managed Care, vol. 5, no. 7, pp. 867–877, 1999.
- M. Schnaider Beeri, P. Werner, Z. Adar, M. Davidson, and S. Noy, “Economic cost of Alzheimer disease in Israel,” Alzheimer Disease and Associated Disorders, vol. 16, no. 2, pp. 73–80, 2002.
- M. Zencir, N. Kuzu, G. Beşer, A. Ergin, B. Çatak, and T. Şahiner, “Cost of Alzheimer's disease in a developing country setting,” International Journal of Geriatric Psychiatry, vol. 20, no. 7, pp. 616–622, 2005.
- R. F. Allegri, J. Butman, R. L. Arizaga et al., “Economic impact of dementia in developing countries: an evaluation of costs of Alzheimer-type dementia in Argentina,” International Psychogeriatrics, vol. 19, no. 4, pp. 705–718, 2007.
- L. Findley, E. Wood, J. Lowin, C. Roeder, A. Bergman, and M. Schifflers, “The economic burden of advanced Parkinson's disease: an analysis of a UK patient dataset,” Journal of Medical Economics, vol. 14, no. 1, pp. 130–139, 2011.
- T. Keränen, S. Kaakkola, K. Sotaniemi et al., “Economic burden and quality of life impairment increase with severity of PD,” Parkinsonism & Related Disorders, vol. 9, no. 3, pp. 163–168, 2003.
- Y. Winter, S. Campenhausen, H. Brozova et al., “Costs of Parkinson's disease in Eastern Europe: a Czech cohort study,” Parkinsonism & Related Disorders, vol. 16, no. 1, pp. 51–56, 2010.
- K. Whetten-Goldstein, F. Sloan, E. Kulas, T. Cutson, and M. Schenkman, “The burden of Parkinson's disease on society, family, and the individual,” Journal of the American Geriatrics Society, vol. 45, no. 7, pp. 844–849, 1997.
- Y. Winter, S. Campenhausen, G. Popov et al., “Costs of illness in a Russian cohort of patients with Parkinson's disease,” PharmacoEconomics, vol. 27, no. 7, pp. 571–584, 2009.
- A. Wimo and B. Winblad, “Societal burden and economics of vascular dementia: preliminary results from a Swedish-population-based study,” International Psychogeriatrics, vol. 15, no. 1, pp. 251–256, 2003.
- W. Quentin, S. G. Riedel-Heller, M. Luppa, A. Rudolph, and H. H. König, “Cost-of-illness studies of dementia: a systematic review focusing on stage dependency of costs,” Acta Psychiatrica Scandinavica, vol. 121, no. 4, pp. 243–259, 2010.
- J. Mauskopf, J. Racketa, and E. Sherrill, “Alzheimer's disease: the strength of association of costs with different measures of disease severity,” The Journal of Nutrition, Health & Aging, vol. 14, no. 8, pp. 655–663, 2010.
- N. Herman, D. Y. Tam, R. Balshaw et al., “The relation between disease severity and cost of caring for patients with Alzheimer disease in Canada,” Canadian Journal of Psychiatry, vol. 55, no. 12, pp. 768–775, 2010.
- R. M. Crum, J. C. Anthony, S. S. Bassett, and M. F. Folstein, “Population-based norms for the mini-mental state examination by age and educational level,” Journal of the American Medical Association, vol. 269, no. 18, pp. 2386–2391, 1993.
- M. M. Hoehn and M. D. Yahr, “Parkinsonism: onset, progression and mortality,” Neurology, vol. 17, no. 5, pp. 427–442, 1967.
- G. W. Small, D. D. McDonnell, R. L. Brooks, and G. Papadopoulos, “The impact of symptom severity on the cost of Alzheimer's disease,” Journal of the American Geriatrics Society, vol. 50, no. 2, pp. 321–327, 2002.
- C. W. Zhu, N. Scarmeas, R. Torgan et al., “Longitudinal study of effects of patient characteristics on direct costs in Alzheimer disease,” Neurology, vol. 67, no. 6, pp. 998–1005, 2006.
- K. Érsek, T. Kovács, A. Wimo et al., “Costs of dementia in Hungary,” The Journal of Nutrition, Health & Aging, vol. 14, no. 8, pp. 633–639, 2010.
- E. O'Shea and S. O'Reilly, “The economic and social cost of dementia in Ireland,” International Journal of Geriatric Psychiatry, vol. 15, no. 3, pp. 208–218, 2000.
- F. T. Juster and F. P. Stafford, “The allocation of time: empirical findings, behavioral models, and problems of measurement,” Journal of Economic Literature, vol. 29, no. 2, pp. 471–522, 1991.
- J. P. Robinson, “The validity and reliability of diaries versus alternative time use measures,” in Time, Goods, and Well-Being, F. T. Juster and F. P. Stafford, Eds., Institute for Social Research, The University of Michigan, Ann Arbor, Mich, USA, 1985.
- B. van den Berg and P. Spauwen, “Measurement of informal care: an empirical study into the valid measurement of time spent on informal caregiving,” Health Economics, vol. 15, no. 5, pp. 447–460, 2006.
- E. C. Clipp and M. J. Moore, “Caregiver time use: an outcome measure in clinical trial research on Alzheimer's disease,” Clinical Pharmacology and Therapeutics, vol. 58, no. 2, pp. 228–236, 1995.
- K. L. Davis, D. B. Marin, R. Kane, et al., “The Caregiver Activity Survey (CAS): development and validation of a new measure for caregivers of persons with Alzheimer's disease,” International Journal of Geriatric Psychiatry, vol. 12, no. 10, pp. 978–988, 1997.
- A. Wimo, L. Jonsson, and A. Zbrozek, “The Resource Utilization in Dementia (RUD) instrument is valid for assessing informal care time in community-living patients with dementia,” The Journal of Nutrition, Health & Aging, vol. 14, no. 8, pp. 685–690, 2010.
- E. O'Shea, “The costs of caring for people with dementia and related cognitive impairment,” Report 60, National Council on Ageing and Older People, 2000.
- B. van den Berg, W. Brouwer, J. van Exel, M. Koopmanschap, G. A. M. van den Bos, and F. Rutten, “Economic valuation of informal care: lessons from the application of the opportunity costs and proxy good methods,” Social Science & Medicine, vol. 62, no. 4, pp. 835–845, 2006.
- B. S. Harrow, S. L. Tennstedt, and J. B. McKinlay, “How costly is it to care for disabled elders in a community setting?” Gerontologist, vol. 35, no. 6, pp. 803–813, 1995.
- J. Posnett and S. Jan, “Indirect cost in economic evaluation: the opportunity cost of unpaid inputs,” Health Economics, vol. 5, no. 1, pp. 13–23, 1996.
- M. A. Koopmanschap, N. J. A. van Exel, B. van den Berg, and W. B. F. Brouwer, “An overview of methods and applications to value informal care in economic evaluations of healthcare,” PharmacoEconomics, vol. 26, no. 4, pp. 269–280, 2008.
- B. van den Berg and A. Ferrer-I-Carbonell, “Monetary valuation of informal care: the well-being valuation method,” Health Economics, vol. 16, no. 11, pp. 1227–1244, 2007.
- B. van den Berg, W. Brouwer, J. van Exel, and M. Koopmanschap, “Economic valuation of informal care: the contingent valuation method applied to informal caregiving,” Health Economics, vol. 14, no. 2, pp. 169–183, 2005.
- B. van den Berg, M. Al, W. Brouwer, J. van Exel, and M. Koopmanschap, “Economic valuation of informal care: the conjoint measurement method applied to informal caregiving,” Social Science & Medicine, vol. 61, no. 6, pp. 1342–1355, 2005.
- J. R. Hicks, “The foundations of welfare economics,” The Economic Journal, vol. 49, no. 196, pp. 696–712, 1939.
- N. Zay, Dictionnaire-Manuel de Gérontologie Sociale, Presse de l'université Laval, Quebec, Canada, 1981.
- W. Hassink and B. van den Berg, “Time-bound opportunity costs of informal care: consequences for access to professional care, caregiver support, and labour supply estimates,” Social Science & Medicine, vol. 73, no. 10, pp. 1508–1516, 2011.
- J. Leon, C. K. Cheng, and P. J. Neumann, “Alzheimer's disease care: costs and potential savings,” Health Affairs, vol. 17, no. 6, pp. 206–216, 1998.
- J. E. Segel, “Cost-of-Illness studies-A primer,” RTI-UNC Center of Excellence in Health Promotion Economics, p.p 1–39, 2006.
- R. Ray and J. Schmitt, “No-vacation nation: a comparison of leave and holiday in OECD countries,” European Economic and Employment Policy Brief, no. 3, p. 24, 2007.
- C. Bakker, M. E. de Vugt, D. van Vliet et al., “The use of formal and informal care in early onset dementia: results from the NeedYD Study,” American Journal of Geriatric Psychiatry. In press.
- V. Hachinski, “Shifts in thinking about dementia,” Journal of the American Medical Association, vol. 300, no. 18, pp. 2172–2173, 2008.
- L. H. Hastrup, B. van den Berg, and D. Gyrd-Hansen, “Do informal caregivers in mental illness feel more burdened? A comparative study of mental versus somatic illnesses,” Scandinavian Journal of Public Health, vol. 39, no. 6, pp. 598–607, 2011.
- G. Szmukler, “From family ‘burden’ to caregiving,” The Psychiatrist, vol. 20, pp. 449–451, 1996.