Table 1: Studies characteristics.

StudiesCountriesYearDementia criteriaSeverity criteriaCare settingAge (mean year)Sample sizeNumber of caregiversInformal care measure instrumentActivity typeNumber of patients using informal careFollowup (months)

Rigaud et al. [13]France2003NINCDS-ADRDAMMSEHome80.5048>1QuestionnaireADL, IADL, supervisionNS6
Souêtre et al. [14]UK1999NINCDS-ADRDAMMSEHome79.131281QuestionnaireNSNSNS
Souêtre et al. [15]France1995NINCDS-ADRDA MMSEHome65.95511QuestionnairesNSNS3
Jönsson et al. [16]Europe2006NSMMSEHome and institution75.90204NSRUDADL, IADL, supervisionNSNS
Mesterton et al. [17]Sweden2010NSMMSEHome and institution79.50233NSRUDADL, IADL, SupervisionNS12
Cavallo and Fattore [18]Italy1997NSAPAHome73.60423NSQuestionnaireADL, IADL, supervisionNSNS
Coduras et al. [19]Spain2009NINCDS-ADRDACDRHome and institution76.70560NSRUDADL, IADL, supervisionNSNS
ADBastida et al. [20]Spain2006NSCDRHome75.50237>1QuestionnaireADLNS12
Max et al. [21]USA1995NSMMSEHome and institution78.00NS>1CalendarADL, IADL, supervisionNS12
Rice et al. [22]USA1993NSMMSEHome and institutionNS187>1CalendarADL, IADL, supervisionNS12
Hux et al. [23]Canada1998NSMMSEHome and institutionNS948NSQuestionnaireADL, IADL, supervisionNS6
Leon and Neumann [24]USA1999NSMMSEHome79.4150NSQuestionnaireADL, IADLNS12
Schnaider Beeri et al. [25]Israel2002NSMMSEHome and institution[76.40; 81.50]121>1QuestionnaireADL, IADL, supervisionNS6
Zencir et al. [26]Turkey2005NSMMSEHome70.50421Daily Time sheetADLNS0.5
Allegri et al. [27]Argentina2006NINCDS-ADRDAMMSEHome and institution74.501001Question-naireNSNS3

Findley et al. [28]UK2010NSHoehn and YarhHome and institution71.70302NSQuestionnaireNSNS5
Keränen et al. [29]Finland2003NSHoehn and YarhHome66.50258NSQuestionnaireNS36%12
PDWinter et al. [30]Czech Republic2003NSNSHome63.60100NSQuestionnaireNSNS6
Whetten-Goldstein et al. [31]USA1997NSNSHome71.771681Questionnaire34%12
Winter et al. [32]Russie2009UKPDSHoehn and YarhHome68.90100NSQuestionnaireNS42%6

VDWimo and Winblad [33]Sweden2003NSNSHome and institutionNSNSNSRUDADL, IADL, supervisionNS12

1: several caregivers.
AD: Alzheimer disease; PD; Parkinson disease.
RUD: Resource Utilization in Dementia; ADL: activities of daily living; IADL: instrumental activities of daily living.
NS: not specified.