Psychometric Properties of the Greek Haem-A-QoL for Measuring Quality of Life in Greek Haemophilia Patients
Table 1
Sociodemographic and clinical characteristics of the sample ().
(a)
Sociodemographic Data
%
Age group
18–30 yrs
33
28.0
31–40 yrs
31
26.3
41–50 yrs
30
25.4
51–60 yrs
16
13.6
60 yrs
8
6.8
Gender
Male
117
99.2
Female
1
0.8
Family status
Unmarried
72
61.0
Married
43
36.4
Divorced/widowed/separated
3
2.6
Residence
Attica
68
57.6
Rest of Greece
50
42.4
Educational level
Elementary
6
5.1
High school
68
57.6
Graduate
40
33.9
Postgraduate
4
3.4
Employment
Unemployed
18
15.3
Employee
38
32.2
pensioner
32
27.1
Student
18
15.3
Farmer
4
3.4
Self-employed
8
6.8
(b)
Clinical data
%
Haemophilia
Α (factor VΙ ΙΙ deficiency)
92
78.0
Β (factor IX deficiency)
26
22.0
Severity
Severe
75
63.6
Moderate
16
13.5
Mild
27
22.9
Inhibitor
Yes
9
7.6
No
109
92.4
Prophylaxis
No
90
76.3
Transient
11
9.3
Constant
17
14.4
Haemarthrosis
Yes
92
78.0
No
26
22.0
Muscle hematomas
Yes
106
89.8
No
12
10.2
Other bleeding
Yes
88
74.6
No
30
25.4
Factor concentrates
Recombinant
112
94.9
Plasma derived
6
5.1
HIV infection
Yes
33
28.0
No
85
72.0
HCV infection
Yes
84
71.2
No
34
28.8
HBV infection
Yes
2
1.7
No
116
98.3
Bold numbers indicate the demographic and clinical data with the higher percentage. HIV: human immunodeficiency virus, HCV: hepatitis C virus, and HBV: hepatitis B virus.