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Project | Start | End | URL | Description |
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BBMRI | 2008 | 2011 | http://bbmri.eu/ | BBMRI connects researchers, biobankers, patient advocacy groups, and pharmaceutical research companies to foster a quicker discovery of new treatments [26]. Their strategy is based on the enrichment and harmonization of biobanks. |
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BioMedBridges | 2012 | 2015 | http://www.biomedbridges.eu/ | BioMedBridges’ goal is to launch a shared e-infrastructure for biological and biomedical data. |
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BioSHaRe-EU | 2010 | 2015 | https://www.bioshare.eu/ | BioSHaRe-EU partners are working to ensure the development of harmonized measures and standardized computing infrastructures. |
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BRIDGEtoData | 2011 | — | http://www.bridgetodata.org/ | BRIDGEtoData aims to be an online reference platform describing population healthcare databases for use in epidemiology and health outcomes research. |
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DDMoRe | 2011 | 2016 | http://www.ddmore.eu/ | The Drug Disease Model Resources (DDMoRe) project aims to establish a universal standard framework for modelling drugs and diseases [27, 28]. |
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EHR4CR | 2011 | 2014 | http://www.ehr4cr.eu/ | EHR4CR partners built, validated, and deployed a Europe-wide innovative technological platform to reuse EHRs data for clinical research purposes [29]. |
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ELIXIR | 2010 | 2018 | http://www.elixir-europe.org/ | ELIXIR project’s goal is to coordinate the collection, quality control, and archiving of large amounts of biological data [30]. |
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EMIF | 2012 | 2018 | http://www.emif.eu/ | EMIF’s goal involves the creation of an innovative and connected patient registry catalogue that will enable researchers and pharmaceutical companies to search for patient-level data based on the databases’ digital fingerprints [31]. |
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ESGI | 2011 | 2015 | http://www.esgi-infrastructure.eu/ | ESGI’s goal is to integrate and standardise current and emerging technologies, providing access to infrastructures so that a broad group of European researchers can use the new technologies. |
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eTRIKS | 2012 | 2017 | http://www.etriks.org/ | eTRIKS’ objective is to address knowledge management gaps by building a sustainable translational research informatics/knowledge management platform and to provide additional sustainable services. |
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EU-ADR | 2008 | 2012 | https://bioinformatics.ua.pt/euadr/ | EU-ADR project aimed developing a unique computerized system to detect adverse drug reactions (ADRs), supplementing spontaneous reporting systems [32]. |
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EURenOmics | 2012 | 2018 | http://www.eurenomics.eu/ | EURenOmics work is based on rare kidney diseases, where the project seeks to establish more accurate diagnoses strategies and improve clinical care. |
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Euro-BioImaging | 2010 | 2014 | http://www.eurobioimaging.eu/ | Euro-BioImaging’s main work covered the improvement of existing research infrastructures on a large scale. |
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GEN2PHEN | 2008 | 2013 | http://gen2phen.org/ | GEN2PHEN was created to unify human and model organism genetic variation databases towards increasingly holistic views into Genotype-to-Phenotype (G2P) data and to link this system into other biomedical knowledge sources via genome browser functionality [33]. |
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NeurOmics | 2012 | 2018 | http://rd-neuromics.eu/ | NeurOmics’ research objectives feature the study of neurodegenerative and neuromuscular diseases in an attempt to explore Omics technologies to improve diagnosis, treatments, and general patient care. |
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OMOP | 2008 | 2013 | http://omop.org/ | OMOP’s goal was to design experiments testing a variety of analytical methodologies in a range of data types to look for drug impacts, going towards a complete database analysis standard [34]. |
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Oncotrack | 2011 | 2016 | http://www.oncotrack.eu/ | Oncotrack deploys several methods for systematic next generation oncology biomarker development [35, 36]. |
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OpenPHACTS | 2011 | 2014 | http://www.openphacts.org/ | OpenPHACTS works with the integration of a relevant and continuously expanding subset of distributed heterogeneous data sources into one “virtual resource,” via the creation of a semantic interoperability layer [37]. |
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RD-Connect | 2012 | 2018 | http://rd-connect.eu/ | RD-Connect will launch an integrated platform connecting databases, registries, biobanks, and clinical bioinformatics for rare diseases research [38]. |
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Sentinel | 2008 | — | http://www.fda.gov/Safety/FDAsSentinelInitiative/default.htm | Sentinel is a USA-based electronic system that will transform FDA’s ability to track the safety of drugs, biologics, and medical devices [39, 40]. This initiative aims to develop and implement a proactive system that will complement existing systems that the FDA has in place to track reports of adverse events linked to the use of its regulated products. |
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