Measuring Family Members’ Satisfaction with End-of-Life Care in Long-Term Care: Adaptation of the CANHELP Lite Questionnaire

Table 6

Family members’ ranked importance ratings of elements related to quality end-of-life care in long-term care home.

	Care element	Rating, % respondents ()
		Extremely	Very
1	Staff are compassionate/supportive of resident (1)	94	5.2
2	Help with personal care when needed (6)	90.3	9
3	Care received when family not there (7)	88.8	9.7
4	Physical symptoms adequately assessed/managed (4)	88.1	10.4
5	Staff communicate to you straightforwardly/honestly (12)	84.3	12.7
6	Receive consistent information about resident’s condition (13)	80.6	14.2
6	Health care workers work as a team (8)	80.6	19.4
7	Trust and confidence in the doctor (18)	79.9	15.7
7	Your role in decision-making about medical care LTC home (21)	79.9	14.9
7	The LTC staff listen to what you say (14)	79.7	17.9
7	Emotional problems adequately assessed/controlled (5)	79.7	17.2
8	Discuss options about hospital transfer with the staff (15)	72.4	17.9
9	Tests/treatments are given in the LTC home (3)	70.9	26.9
9	LTC home doctor takes a personal interest in relative (16)	70.9	22.4
9	You discuss palliative/comfort care measures with staff (20)	70.1	20.1
9	Discuss options with staff about relative’s EOLC wishes (22)	70.1	17.5
10	Discuss options with staff about life sustaining technologies (19)	69.4	20.9
11	The care/treatment is consistent with wishes (11)	67.9	26.1
12	Environment is calm and restful (10)	66.4	27.6
13	LTC home doctor available when needed (17)	65.7	24.6
14	Management of financial costs (9)	61.2	28.4
15	Staff are compassionate/supportive of family member (2)	43.3	29.9

by the proportion of respondents who rated the element as “extremely important.” corresponds to the questionnaire item in Figure 1. Item wording in Table 4 is abbreviated. See Figure 1 for full wording of items.