| (1) How do you think a child’s life changes after having a liver transplant? |
| (2) How do you see the quality of life for these children after having a liver transplant? |
| (3) How do liver transplant patients relate to their parents and how do the parents relate to their children? |
| (4) What type of things (if any) do these parents assist their children with at varying ages? |
| (5) Do you think having a liver transplant affects these children at school (or |
| with their family or their relationships with friends) and if so how? |
| (6) Are there any specific daily activities that you have noticed to be a problem for these children? |
| (7) What daily activities, if any, pose no problem to these children? Are there any activities |
| (daily or in general) that these kids do that seems surprising to you given the fact that |
| they have had a liver transplant? |
| (8) Is there anything that these children want to do that they are not able to do because of |
| their transplant? Are there any areas in which they are physically limited or limited based |
| on medical recommendations? |
| (9) How do you think other people perceive and as a result treat these children? |
| (10) How do you think these children feel about taking medications? |
| (11) Are there any side effects from the medications that tend to bother these children? |
| (12) What, if anything, do you think these children worry about? |
| (13) How do these children feel about being away from their home or community? |
| (14) In your experience, what do these children find to be the worst thing about having had a liver transplant? |
| (15) What do they find to be the best thing? |
| (16) Is the self-esteem of children who have had a liver transplant affected? If yes how? Do |
| they compare themselves to other children? |
