Patient Views on Advance Care Planning in Cirrhosis: A Qualitative Analysis

Box 1

Participant demographic characteristics.

(1) Do you have a GCD designation, personal directive, will, etc.? What do each of these mean to you?

(2) At what stage in your liver disease did you have these ACP/GCD discussions with your

doctor? What were your experiences of these discussions?

(3) What other information with regard to your liver disease would you want to have in making

ACP/GCD decisions? How were these things incorporated in the discussions/decisions you have

already had?

(4) Before watching the videos, what was your understanding about ACP and GCD?

(5) What do you think could be changed to make these resources more useful to other people

living with liver disease?

(6) What are your thoughts about the information in the video and pamphlet (probe for language,

message, and GCP process)?

(7) What advice would you give your doctor in having these discussions with you?

(8) How do you think being on a liver transplant wait list would affect advance care planning and

goals of care for you (asked of transplant wait-listed patients)?