Research Article

Diagnostic Delay in Coeliac Disease: A Survey among Danish Patients

Table 4

Self-reported diagnostic delay in a Danish population of patients with coeliac disease.

Patients’ diagnostic delayDoctors’ diagnostic delayTotal diagnostic delay

Mean diagnostic delay (SD)1.8 years (5.0)4.0 years (8.0)5.8 years (9.5)
Diagnostic delay of more than 3 years (%)14.5%26.3%37.9%
Diagnostic delay of more than 10 years (%)5.3%12.4%18.6%

Mean years (SD)Mean years (SD)Mean years (SD)

Year of diagnosis
 1945–1959 (n = 6)0.1 (0.3)0.3 (0.4)0.5 (0.5)
 1960–1979 (n = 23)1.0 (2.6)2.2 (4.7)3.2 (5.6)
 1980–1999 (n = 113)1.9 (5.6)5.7 (10.2)7.6 (11.4)
 2000–2021 (n = 1097)1.8 (5.0)3.8 (7.8)5.7 (9.4)
Age at diagnosis for the 1097 participants diagnosed during the years 2000–2021
 0–9 years (n = 191)0.4 (1.0)1.1 (1.5)1.6 (1.8)
 10–19 years (n = 134)1.4 (2.8)2.0 (3.3)3.5 (4.1)
 20–39 years (n = 311)1.9 (4.2)3.4 (6.3)5.3 (7.3)
 40–59 years (n = 330)2.8 (7.4)6.1 (10.3)8.9 (12.6)
 60–79 years (n = 97)1.2 (3.2)5.8 (12.2)7.1 (12.7)

34 participants missing age at diagnosis. SD: standard derivation.