The Registry and Follow-Up of Complex Pediatric Therapies Program of Western Canada: A Mechanism for Service, Audit, and Research after Life-Saving Therapies for Young Children

Table 7

Selected outcomes of neonates having complex cardiac surgery for congenital heart disease followed by the Complex Pediatric Therapies Follow-up Program.

Group (years, 𝑛)	Microcephaly	Weight < 5th percentile	Height < 5th percentile	Cerebral palsy
ASO (1996–2004; 𝑛=88) [54]	1.5%	6.1%	9.8%	1.2%
TAPVC (1996-2004; 𝑛=32) [60]	0%	3%	0%	0%
Norwood MBTS (1996–2002; 𝑛=62) [58]	7%	17%	20%	0%
Norwood RVPA (2002–2005; 𝑛=32) [58]	0%	27%	12%	4%
IAA (1996–2006; 𝑛=27) [66]	7.7%	19%	19%	—
Deletion 22q11.2 (1996–2004; 𝑛=16) [7]	15%	8%	31%	—
Cardiac ECLS (2002–2004; 𝑛=39) [63]	20%	19%	13%	13%
Heart transplant under age 6 yr (1999–2006; 𝑛=29) [67]	—	28%	31%	10%

ASO: arterial switch operation for transposition of the great arteries; TAPVC: total anomalous pulmonary venous correction; MBTS: modified Blalock-Taussig shunt; RVPA: right ventricle-to-pulmonary artery shunt; IAA: correction of interrupted aortic arch; ECLS: extracorporeal life support.