Research Article

Assessing Systems of Care for US Children with Epilepsy/Seizure Disorder

Table 1

Estimated frequency/prevalence of parent-reported current and lifetime epilepsy/seizure disorder among children with special health care needs; adjusted models of the association between having a current or lifetime parent-reported epilepsy/seizure disorder diagnosis as a function of selected sociodemographic characteristics among CSHCN: National Survey of Children with Special Health Care Needs, USA, 2009-2010.

Sociodemographic characteristicCurrent epilepsy/seizure disorder (CE/SD)Lifetime epilepsy/seizure disorder (LE/SD)
Unweighted N Estimated frequency of CE/SD among CSHCNaPrevalence of CE/SD among US CSHCN, per 1,000Adjusted model
for having CE/SD among
US CSHCN
AOR (95% CI)
Unweighted
N
Estimated frequency of LE/SD among CSHCNaPrevalence of LE/SD among US CSHCN, per 1,000Adjusted model for having LE/SD among US CSHCN
AOR (95% CI)

Total1,226240321,87036649
Race
  Non-Hispanic white82718829reference124028744Reference
  Non-Hispanic black14767371.13 (0.72–1.76)20592511.00 (0.74–1.37)
  Hispanic14659320.96 (0.68–1.36)246105571.03 (0.73–1.46)
  Non-Hispanic other1073137 1.21 (0.81–1.80)17953631.36 (0.99–1.88)
Age (Yrs)
  1–52407633reference34811450Reference
  6–11467131310.95 (0.70–1.30)706203470.99 (0.78–1.28)
  12–17519138310.99 (0.77–1.27)816220491.07 (0.86–1.34)
Gender
  Male709202310.97 (0.78–1.22)1,109324491.04 (0.87–1.23)
  Female51414432reference75821448Reference
Income (FPL)b
  ≤100%29610141reference45816265Reference
  101–200%25388360.86 (0.54–1.36)402128530.82 (0.58–1.14)
  201–400%35682260.63 (0.440.90)535139440.71 (0.530.94)
  400+% 32175240.61 (0.410.89)475109360.59 (0.430.80)
Education
  Less than high school713327reference1286553Reference
  High school22396431.80 (1.093.00)337142641.45 (0.99–2.12)
  More than high school932217281.45 (0.91–2.32)1,406331431.20 (0.84–1.71)
Urbanicity
  Large metro71424231reference1,10337348Reference
  Medium/small metro11127260.84 (0.60–1.16)15836350.74 (0.560.98)
  Urban nonmetro18239341.03 (0.76–1.39)28264561.12 (0.86–1.47)
  Urban small town10824361.06 (0.74–1.53)16238561.12 (0.83–1.50)
  Rural10713280.83 (0.56–1.22)15824511.01 (0.71–1.44)
Household language
  English116931631reference175947846Reference
  Spanish4323371.15 (0.63–2.09)9049781.53 (0.97–2.42)
  Other146471.45 (0.68–3.13)2110851.72 (0.78–3.79)

CSHCN: children with special health care needs; CE/SD: current seizure disorder; LE/SD: lifetime seizure disorder; AOR: adjusted odds ratio; CI: confidence interval; FPL: federal poverty level.
Frequencies are expressed in thousands. Population estimates for each category may not equal the total because of rounding error and missing values.
Data are based on the US Department of Health and Human Services poverty guidelines. For households surveyed in 2009 and 2010, 100% of poverty level was defined as $22,050 for a family of 4.
Each model is adjusted for age, race/ethnicity, gender, income, highest level of education in the household, urbanicity, and household language. Significant findings are shown in bold P > 0.05. Multiple logistic regression was used to derive adjusted odds ratios (AOR).