Assessing Systems of Care for US Children with Epilepsy/Seizure Disorder
Table 1
Estimated frequency/prevalence of parent-reported current and lifetime epilepsy/seizure disorder among children with special health care needs; adjusted models of the association between having a current or lifetime parent-reported epilepsy/seizure disorder diagnosis as a function of selected sociodemographic characteristics among CSHCN: National Survey of Children with Special Health Care Needs, USA, 2009-2010.
Sociodemographic characteristic
Current epilepsy/seizure disorder (CE/SD)
Lifetime epilepsy/seizure disorder (LE/SD)
Unweighted N
Estimated frequency of CE/SD among CSHCNa
Prevalence of CE/SD among US CSHCN, per 1,000
Adjusted† model for having CE/SD among US CSHCN AOR (95% CI)
Unweighted N
Estimated frequency of LE/SD among CSHCNa
Prevalence of LE/SD among US CSHCN, per 1,000
Adjusted† model for having LE/SD among US CSHCN AOR (95% CI)
Total
1,226
240
32
1,870
366
49
Race
Non-Hispanic white
827
188
29
reference
1240
287
44
Reference
Non-Hispanic black
147
67
37
1.13 (0.72–1.76)
205
92
51
1.00 (0.74–1.37)
Hispanic
146
59
32
0.96 (0.68–1.36)
246
105
57
1.03 (0.73–1.46)
Non-Hispanic other
107
31
37
1.21 (0.81–1.80)
179
53
63
1.36 (0.99–1.88)
Age (Yrs)
1–5
240
76
33
reference
348
114
50
Reference
6–11
467
131
31
0.95 (0.70–1.30)
706
203
47
0.99 (0.78–1.28)
12–17
519
138
31
0.99 (0.77–1.27)
816
220
49
1.07 (0.86–1.34)
Gender
Male
709
202
31
0.97 (0.78–1.22)
1,109
324
49
1.04 (0.87–1.23)
Female
514
144
32
reference
758
214
48
Reference
Income (FPL)b
≤100%
296
101
41
reference
458
162
65
Reference
101–200%
253
88
36
0.86 (0.54–1.36)
402
128
53
0.82 (0.58–1.14)
201–400%
356
82
26
0.63 (0.44–0.90)
535
139
44
0.71 (0.53–0.94)
400+%
321
75
24
0.61 (0.41–0.89)
475
109
36
0.59 (0.43–0.80)
Education
Less than high school
71
33
27
reference
128
65
53
Reference
High school
223
96
43
1.80 (1.09–3.00)
337
142
64
1.45 (0.99–2.12)
More than high school
932
217
28
1.45 (0.91–2.32)
1,406
331
43
1.20 (0.84–1.71)
Urbanicity
Large metro
714
242
31
reference
1,103
373
48
Reference
Medium/small metro
111
27
26
0.84 (0.60–1.16)
158
36
35
0.74 (0.56–0.98)
Urban nonmetro
182
39
34
1.03 (0.76–1.39)
282
64
56
1.12 (0.86–1.47)
Urban small town
108
24
36
1.06 (0.74–1.53)
162
38
56
1.12 (0.83–1.50)
Rural
107
13
28
0.83 (0.56–1.22)
158
24
51
1.01 (0.71–1.44)
Household language
English
1169
316
31
reference
1759
478
46
Reference
Spanish
43
23
37
1.15 (0.63–2.09)
90
49
78
1.53 (0.97–2.42)
Other
14
6
47
1.45 (0.68–3.13)
21
10
85
1.72 (0.78–3.79)
CSHCN: children with special health care needs; CE/SD: current seizure disorder; LE/SD: lifetime seizure disorder; AOR: adjusted odds ratio; CI: confidence interval; FPL: federal poverty level. Frequencies are expressed in thousands. Population estimates for each category may not equal the total because of rounding error and missing values. Data are based on the US Department of Health and Human Services poverty guidelines. For households surveyed in 2009 and 2010, 100% of poverty level was defined as $22,050 for a family of 4. Each model is adjusted for age, race/ethnicity, gender, income, highest level of education in the household, urbanicity, and household language. Significant findings are shown in bold P > 0.05. Multiple logistic regression was used to derive adjusted odds ratios (AOR).