Assessing Systems of Care for US Children with Epilepsy/Seizure Disorder

Table 3

Unadjusted and adjusted odds ratios and adjusted prevalence for meeting criteria for each of the six quality indicators among CSHCN with and without parent-reported epilepsy/seizure disorder: National Survey of Children with Special Health Care Needs, 2009-2010.

Indicator	Unadjusted	Adjusted^a	Adjusted^a
	OR (95% CI)	OR (95% CI)	% (SE)
Indicator 1: family shares in decision-making
Child has epilepsy/seizure disorder	0.93 (0.68–1.27)	1.11 (0.83–1.49)	72.4 (2.85)
Child does not have epilepsy/seizure disorder	Reference	Reference	70.3 (0.44)
Indicator 2: child receives coordinate, ongoing, comprehensive care within a medical home
Child has epilepsy/seizure disorder	0.61 (0.49–0.77)	0.76 (0.61–0.96)	37.7 (2.52)
Child does not have epilepsy/seizure disorder	Reference	Reference	43.2 (0.46)
Indicator 3: family has adequate insurance to pay for the services they need
Child has epilepsy/seizure disorder	0.89 (0.69–1.15)	0.98 (0.76–1.26)	60.1 (3.02)
Child does not have epilepsy/seizure disorder	Reference	Reference	60.6 (0.46)
Indicator 4: child is screened early and continuously for special health care needs
Child has epilepsy/seizure disorder	0.93 (0.73–1.19)	0.95 (0.74–1.21)	77.8 (1.99)
Child does not have epilepsy/seizure disorder	Reference	Reference	78.6 (0.39)
Indicator 5: community-based service systems are organized so the family can use them easily
Child has epilepsy/seizure disorder	0.52 (0.41–0.65)	0.65 (0.51–0.83)	55.8 (2.81)
Child does not have epilepsy/seizure disorder	Reference	Reference	65.5 (0.45)
Indicator 6: youth with special health care needs receive services necessary to make the transition to adult life
Child has epilepsy/seizure disorder	0.69 (0.49–0.98)	0.87 (0.59–1.28)	36.9 (4.22)
Child does not have epilepsy/seizure disorder	Reference	Reference	40.0 (0.70)

OR: odds ratio; CI: confidence interval; SE: standard error.
Findings significant at P < 0.05 are bolded.
aAdjusted for age, race/ethnicity, gender, income, urbanicity, household language, household educational level, and other neurologically based comorbid conditions.