Assessing Systems of Care for US Children with Epilepsy/Seizure Disorder
Table 4
Unadjusted rates of unmet needs for CSHCN with parent-reported diagnosis of current epilepsy/seizure disorder as a function of having met or not met the criteria for each of the six quality indicators: National Survey of Children with Special Health Care Needs, 2009-2010.
Unmet needs
Indicator 1: shared decision-making
Indicator 2: receipt of care through a medical home
Indicator 3: adequate private or public insurance
Indicator 4: early and continuous screening and surveillance
Indicator 5: services organized for ease of use
Indicator 6: effective transition planning for adult health care
Indicator 1 Criteria met
Indicator 1 Criteria not met
P
Indicator 2 Criteria met
Indicator 2 Criteria not met
P
Indicator 3 Criteria met
Indicator 3 Criteria not met
P
Indicator 4 Criteria met
Indicator 4 Criteria not met
P
Indicator 5 Criteria met
Indicator 5 Criteria not met
P
Indicator 6 Criteria met
Indicator 6 Criteria not met
P
% (SE)
% (SE)
% (SE)
% (SE)
% (SE)
% (SE)
% (SE)
% (SE)
% (SE)
% (SE)
% (SE)
% (SE)
Routine preventive medical care
2.9 (1.03)
3.5 (1.37)
0.71
1.3 (0.61)
3.3 (0.98)
0.08
2.8 (0.96)
3.5 (1.45)
0.71
1.6 (0.79)
8.3 (2.43)
0.01
0.8 (0.43)
5.4 (1.60)
0.005
0.8 (0.77)
5.2 (2.30)
0.08
Specialist care
1.2 (0.40)
9.9 (2.69)
<0.001
0.6 (0.47)
5.4 (1.30)
<0.001
2.6 (0.83)
5.6 (1.64)
0.10
3.8 (0.99)
4.1 (1.40)
0.83
0.6 (0.40)
7.1 (1.64)
<0.001
8.1 (4.32)
4.5 (1.57)
0.43
Preventive dental care
8.4 (1.37)
16.5 (3.71)
0.03
5.1 (1.86)
13.6 (2.00)
0.002
7.4 (1.32)
16.1 (3.03)
0.01
6.7 (1.41)
26.5 (3.96)
<0.001
5.3 (1.37)
17.0 (2.67)
<0.001
5.4 (2.31)
14.2 (2.98)
0.03
Other dental care
4.2 (1.02)
9.3 (2.98)
0.10
2.3 (1.35)
7.1 (1.56)
0.02
3.6 (1.12)
8.8 (3.20)
0.04
6.0 (1.41)
5.1 (1.61)
0.66
2.6 (1.01)
8.9 (2.07)
0.006
3.2 (2.00)
9.4 (2.53)
0.06
Prescriptions
2.7 (0.92)
7.3 (2.51)
0.08
0.6 (0.42)
5.0 (1.30)
0.001
2.6 (0.86)
6.2 (2.04)
0.11
4.4 (1.22)
3.1 (1.34)
0.48
0.8 (0.46)
7.4 (1.93)
<0.001
0.6 (0.65)
6.2 (2.04)
0.02
Physical, occupational, speech therapy
8.4 (1.59)
25.5 (4.86)
<0.001
3.8 (1.79)
17.7 (2.41)
<0.001
9.6 (1.84)
19.2 (3.41)
0.01
13.2 (2.02)
16.1 (3.41)
0.47
2.5 (0.95)
24.9 (3.45)
<0.001
4.9 (2.65)
12.8 (3.01)
0.05
Mental health care
3.7 (1.31)
11.9 (3.15)
0.01
0.3 (0.20)
8.4 (1.78)
<0.001
2.3 (1.04)
11.9 (2.77)
0.001
7.0 (1.61)
4.4 (1.48)
0.24
2.3 (1.16)
10.4 (2.33)
0.002
7.8 (4.14)
9.5 (2.96)
0.73
Substance abuse
0.4 (0.28)
0.4 (0.31)
0.94
0.0 (0.00)
0.6 (0.32)
0.08
0.0 (0.00)
0.8 (0.48)
0.07
0.3 (0.24)
0.7 (0.49)
0.53
0.1 (0.09)
0.7 (0.42)
0.17
0.5 (0.50)
0.0 (0.00)
0.32
Home health care
1.5 (0.50)
6.4 (2.00)
0.01
0.0 (0.00)
4.5 (1.03)
<0.001
1.8 (0.60)
4.6 (1.42)
0.06
2.5 (0.76)
4.7 (1.57)
0.21
0.4 (0.22)
5.6 (1.38)
<0.001
0.1 (0.10)
6.2 (2.00)
0.00
Eyeglasses/vision care
1.1 (0.57)
1.7 (0.80)
0.52
1.6 (1.10)
0.6 (0.27)
0.37
0.5 (0.22)
1.9 (0.97)
0.15
1.0 (0.50)
2.2 (1.12)
0.31
0.9 (0.69)
1.6 (0.62)
0.46
0.6 (0.45)
2.1 (0.95)
0.14
Hearing aids/hearing care
0.1 (0.10)
2.8 (1.69)
0.12
0.2 (0.22)
1.3 (0.78)
0.19
0.2 (0.12)
2.0 (1.25)
0.15
1.2 (0.69)
0.1 (0.1)
0.10
0.0 (0.00)
1.9 (1.06)
0.08
0.0 (0.00)
1.6 (1.49)
0.28
Mobility aids/devices
4.9 (1.65)
2.5 (0.98)
0.23
6.1 (2.12)
3.3 (1.47)
0.29
4.6 (1.82)
3.7 (1.42)
0.69
2.7 (0.75)
10.8 (5.00)
0.12
5.1 (2.12)
3.5 (1.14)
0.52
4.2 (2.99)
6.8 (3.38)
0.56
Communication aids/devices
3.0 (0.95)
8.0 (3.23)
0.12
2.0 (1.40)
5.4 (1.62)
0.11
2.7 (1.28)
6.7 (1.27)
0.11
4.8 (1.45)
3.4 (1.15)
0.45
0.47 (0.19)
8.6 (2.36)
<0.001
0.1 (0.10)
6.4 (2.26)
0.01
Durable medical equipment
2.4 (0.68)
1.3 (0.80)
0.31
0.2 (0.08)
0.6 (0.09)
0.87
1.7 (0.66)
2.3 (0.87)
0.57
1.7 (0.54)
3.2 (1.45)
0.32
0.9 (0.53)
3.1 (0.93)
0.04
1.5 (0.49)
2.1 (0.83)
0.73
SE: standard error. Bolded items are statistically significant at the Bonferroni-adjusted level of P < 0.003.
