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Gastroenterology Research and Practice
Volume 2012 (2012), Article ID 986475, 6 pages
Health-Related Quality of Life in Children and Adolescents with Celiac Disease: From the Perspectives of Children and Parents
1Division of Nursing Science, Department of Medical and Health Sciences, Faculty of Health Sciences, Linköping University, 581 85 Linköping, Sweden
2Division of Medical Microbiology, Department of Clinical and Experimental Medicine, Faculty of Health Sciences, Linköping University, 581 85 Linköping, Sweden
3Division of Pediatrics, Department of Clinical and Experimental Medicine, Faculty of Health Sciences, Linköping University, 581 85 Linköping, Sweden
Received 9 December 2011; Accepted 30 January 2012
Academic Editor: Carlo Catassi
Copyright © 2012 Ing-Marie Byström et al. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
- A. Fasano and C. Catassi, “Current approaches to diagnosis and treatment of celiac disease: an evolving spectrum,” Gastroenterology, vol. 120, no. 3, pp. 636–651, 2001.
- I. Epstein, J. Stinson, and B. Stevens, “The effects of camp on health-related quality of life in children with chronic illnesses: a review of the literature,” Journal of Pediatric Oncology Nursing, vol. 22, no. 2, pp. 89–103, 2005.
- S. M. Sawyer and R. A. Aroni, “Self-management in adolescents with chronic illness. What does it mean and how can it be achieved?” Medical Journal of Australia, vol. 183, no. 8, pp. 405–409, 2005.
- N. N. Youssef, T. G. Murphy, A. L. Langseder, and J. R. Rosh, “Quality of life for children with functional abdominal pain: a comparison study of patients' and parents' perceptions,” Pediatrics, vol. 117, no. 1, pp. 54–59, 2006.
- A. Sverker, G. Hensing, and C. Hallert, ““Controlled by food”-lived experiences of coeliac disease,” Journal of Human Nutrition and Dietetics, vol. 18, no. 3, pp. 171–180, 2005.
- L. Mazzone, L. Reale, M. Spina et al., “Compliant gluten-free children with celiac disease: an evaluation of psychological distress,” BMC Pediatrics, vol. 11, article 46, 2011.
- A. Sverker, G. Östlund, C. Hallert, and G. Hensing, “Sharing life with a gluten-intolerant person—the perspective of close relatives,” Journal of Human Nutrition and Dietetics, vol. 20, no. 5, pp. 412–422, 2007.
- L. Nuutila and S. Salanterä, “Children with a long-term illness: parents' experiences of care,” Journal of Pediatric Nursing, vol. 21, no. 2, pp. 153–160, 2006.
- C. Hallert, C. Grännö, S. Hultén et al., “Living with coeliac disease: controlled study of the burden of illness,” Scandinavian Journal of Gastroenterology, vol. 37, no. 1, pp. 39–42, 2002.
- F. Nachman, E. Mauriño, H. Vázquez et al., “Quality of life in celiac disease patients. Prospective analysis on the importance of clinical severity at diagnosis and the impact of treatment,” Digestive and Liver Disease, vol. 41, no. 1, pp. 15–25, 2009.
- F. Casellas, L. Rodrigo, J. López Vivancos et al., “Factors that impact health-related quality of life in adults with celiac disease: a multicenter study,” World Journal of Gastroenterology, vol. 14, no. 1, pp. 46–52, 2008.
- S. D. Dorn, L. Hernandez, M. T. Minaya et al., “Psychosocial factors are more important than disease activity in determining gastrointestinal symptoms and health status in adults at a celiac disease referral center,” Digestive Diseases and Sciences, vol. 55, no. 11, pp. 3154–3163, 2010.
- C. M. de Lorenzo, J. C. Xikota, M. C. Wayhs, S. M. Nassar, and M. M. de Souza Pires, “Evaluation of the quality of life of children with celiac disease and their parents: a case-control study,” Quality of Life Research, vol. 21, pp. 77–85, 2012.
- M. M. P. Kolsteren, H. M. Koopman, G. Schalekamp, and M. L. Mearin, “Health-related quality of life in children with celiac disease,” Journal of Pediatrics, vol. 138, no. 4, pp. 593–595, 2001.
- G. Ljungman and U. Myrdal, “Compliance in teenagers with coeliac disease—a Swedish follow-up study,” Acta Paediatrica, vol. 82, no. 3, pp. 235–238, 1993.
- P. Upton, J. Lawford, and C. Eiser, “Parent-child agreement across child health-related quality of life instruments: a review of the literature,” Quality of Life Research, vol. 17, no. 6, pp. 895–913, 2008.
- M. White-Koning, C. Arnaud, H. O. Dickinson et al., “Determinants of child-parent agreement in quality-of-life reports: a European study of children with cerebral palsy,” Pediatrics, vol. 120, no. 4, pp. e804–e814, 2007.
- R. M. Baars, C. I. Atherton, H. M. Koopman et al., “The European DISABKIDS project: development of seven condition-specific modules to measure health related quality of life in children and adolescents,” Health and Quality of Life Outcomes, vol. 3, article no. 70, 2005.
- C. Petersen, S. Schmidt, M. Power, and M. Bullinger, “Development and pilot-testing of a health-related quality of life chronic generic module for children and adolescents with chronic health conditions: a European perspective,” Quality of Life Research, vol. 14, no. 4, pp. 1065–1077, 2005.
- C. Eiser and R. Morse, “Quality-of-life measures in chronic diseases of childhood,” Health Technology Assessment, vol. 5, no. 4, pp. 1–147, 2001.
- P. T. Jackson, J. F. T. Glasgow, and R. Thom, “Parents' understanding of coeliac disease and diet,” Archives of Disease in Childhood, vol. 60, no. 7, pp. 672–674, 1985.
- L. Högberg, E. Grodzinsky, and L. Stenhammar, “Better dietary compliance in patients with coeliac disease diagnosed in early childhood,” Scandinavian Journal of Gastroenterology, vol. 38, no. 7, pp. 751–754, 2003.
- M. Cinquetti, C. Trabucchi, N. Menegazzi, A. Comucci, F. Bressan, and G. Zoppi, “Psychological problems connected to the dietary restrictions in the adolescent with coeliac disease,” Pediatria Medica e Chirurgica, vol. 21, no. 6, pp. 279–283, 1999.
- L. Greco, M. Mayer, G. Ciccarelli, R. Troncone, and S. Auricchio, “Compliance to a gluten-free diet in adolescents, or “What do 300 coeliac adolescents eat every day?”,” Italian Journal of Gastroenterology and Hepatology, vol. 29, no. 4, pp. 305–311, 1997.
- J. F. Ludvigsson, P. Ansved, K. Fälth-Magnusson et al., “Symptoms and signs have changed in Swedish children with coeliac disease,” Journal of Pediatric Gastroenterology and Nutrition, vol. 38, no. 2, pp. 181–186, 2004.
- C. Eiser and R. Morse, “Can parents rate their child's health-related quality of life? Results of a systematic review,” Quality of Life Research, vol. 10, no. 4, pp. 347–357, 2001.
- M. G. Sawyer, K. E. Reynolds, J. J. Couper et al., “A two-year prospective study of the health-related quality of life of children with chronic illness—the parents' perspective,” Quality of Life Research, vol. 14, no. 2, pp. 395–405, 2005.