Growing Up: Not an Easy Transition—Perspectives of Patients and Parents regarding Transfer from a Pediatric Liver Transplant Center to Adult Care

Table 1

What can be done to make the transition to adult care easier?

Suggestion	Parents	Patients	Total
Educate about their disease	14	4	18
Educate about insurance	13	4	17
Educate about college with transplant	13	3	16
Educate about drugs/alcohol/sex	13	4	17
Educate about medication	14	4	18
Educate about nutrition after transplant	12	3	15
Educate about total body care (hygiene, yearly exams, etc.)	13	7	20
Educate about support system	13	4	17
Make the kids listen	1	1	2
Give specific instructions about new place	0	1	1
Meet other transitioned teens	1	0	1
Teen clinic	1	0	1
Nothing	4	3	7