Ehlers-Danlos Syndrome, Hypermobility Type: An Underdiagnosed Hereditary Connective Tissue Disorder with Mucocutaneous, Articular, and Systemic Manifestations

Table 10

Lifestyle recommendations for JHS/EDS-HT.

Recommendation
Promote regular, aerobic fitness
Promote fitness support with strengthening, gentle stretching, and proprioception exercises
Promote postural and ergonomic hygiene especially during sleep, at school, and at workplace
Promote weight control (BMI < 25)
Promote daily relaxation activities
Promote lubrication during sexual intercourse (women)
Promote early treatment of malocclusion
Avoid high impact sports/activities
Avoid low environmental temperatures
Avoid prolonged sitting positions and prolonged recumbency
Avoid sudden head-up postural change
Avoid excessive weight lifting/carrying
Avoid large meals (especially of refined carbohydrates)
Avoid hard foods intake and excessive jaw movements (ice, gums, etc.)
Avoid bladder irritant foods (e.g., coffee and citrus products)
Avoid nicotine and alcohol intake

Adapted from [118].
Note: these recommendations must be intended as flexible indications for ameliorating quality of life and do not represent lifesaving solutions.