|
Predetermined codes | Inductively derived codes | Category | Theme |
|
Social participation and involvement (ASCOT) | Participation | Long term effects of caring; concern for the future | Social network and relationships |
Enjoyment and pleasure (ICECAP-O) | Positive coping |
Love and friendship (ICECAP-O) | Being positive |
Anxiety/depression (EQ-5D) | Blame |
Support from family and friends (CES) | Safety |
Activities outside caring (CES) | Embarrassment |
Getting on with the person you care for (CES) | Isolation |
Fulfilment from caring (CES) | ā |
|
Assistance from organisations and the government (CES) | Dealing with professionals | Feelings about involvement with decisions; beliefs about health and social care agencies | Interactions with agencies |
Recording experiences |
Need for information |
|
Control over caring (CES) | Raising awareness | Helping others | Recognition of role |
Doing things that make you feel valued (ICECAP-O) | Respect |
Occupation (ASCOT) | Person with dementia awareness |
|
Self-care (EQ-5D) | Own health | Direct impact of caring | Time for yourself |
Usual activities (EQ-5D) | Feeling overwhelmed |
Independence (ICECAP-O) | Frustration |
Thinking about the future (ICECAP-O) | Guilt |
Control over daily life (CES) | Dignity |
Accommodation, cleanliness, and comfort (CES) | Difficulty articulating |
Personal cleanliness and comfort (CES) | ā |
|