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Main category | Subcategory | Definition | Quotes |
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Description of Relapse Experience | Impact on Physical Health | Descriptions related to physical limitations caused by the most recent relapse | “Excruciating pain through my arms, like that burning, and just feeling – the arms feel really heavy, like I can’t use them, extremely weak.” |
Impact on Cognitive Health | Descriptions related to cognitive limitations caused by the most recent relapse | “It’s just reading sentences or certain things that I will have to keep reading and keep reading and keep reading to completely understand it … something as simple as getting directions to my husband’s job that I know that he’s been working there for 20 years. I know how to get there, but I could not – I just couldn’t understand it. I couldn’t understand what he was saying, so I had to write down verbatim …” |
Impact on Emotional Health | Descriptions related to one’s emotional health being affected and/or changed by the most recent relapse | “This one [relapse], I think, more affected my pride, and it affected me more emotionally because I wasn’t able to function as me.” |
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Interpretation of Relapse Experience | Minor Event with No Impact | Making reference to having no consequences to or no changes in themselves or their lives as a result of the most recent relapse | “Like I say, it’s [relapse] just been so mild. Other than the optic neuritis, it just – most of the time I forget I even have it. I don’t think of it.” |
Manageable Event with Some Impact | Making reference to having manageable consequences to or changes in themselves or their lives as a result of the most recent relapse | “…I’m still able to do them [daily activities]; it just takes me longer to do them…” “It [relapse] was easy for me because I felt as though I had already went through this experience right before, and I basically knew what to expect.” |
Major Event with Severe Impact | Making reference to having severe consequences to or major changes in themselves or their lives as a result of the most recent relapse | “Well, how it [relapse] affected my daily life was completely. If I took my daily life before, it was not possible … I had to move out of my house for two-and-a-half months. I couldn’t live here. Everything was different.” |
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Perceived Need for Postrelapse Care | Necessary | Making reference to requiring/desiring healthcare services to manage the most recent relapse | “I continually say, I have a problem with this [inability to self-care]. And everyone said, just give it time. No, I need help now.” |
Unnecessary | Making reference to not requiring/desiring any healthcare services to manage the most recent relapse | “…the symptoms of optic neuritis, but I really don’t think there’s an awful lot you can do better because it’s not the eyeball. Because it’s the pathway up to the brain.” |
Undetermined | Making reference to undetermined needs/desires for healthcare services to manage the most recent relapse | “…they say that it [vision] will usually come back itself over time, I decided just to try to wait it out this time and see what happens.” |
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