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Nursing Research and Practice
Volume 2012 (2012), Article ID 568242, 14 pages
Psychosocial Well-Being in Persons with Aphasia Participating in a Nursing Intervention after Stroke
1Department of Nursing Science, Faculty of Medicine, Institute of Health and Society, University of Oslo, P.O. Box 1130 Blindern, 0318 Oslo, Norway
2Department of Nursing and Mental Health, Faculty of Public Health, Hedmark University College, P.O. Box 400, 2418 Elverum, Norway
3Institute of Public Health, University of Århus, Nordre Ringgade 1, 8000 Århus C, Denmark
4Faculty of Medicine, Institute of Clinical Medicine, University of Oslo, P.O. Box 1171 Blindern, 0318 Oslo, Norway
5Department of Geriatric Medicine, Oslo University Hospital, P.O. Box 4956 Nydalen, 0424 Oslo, Norway
Received 19 March 2012; Accepted 10 May 2012
Academic Editor: Kim Usher
Copyright © 2012 Berit Arnesveen Bronken et al. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
- S. T. Engelter, M. Gostynski, S. Papa et al., “Epidemiology of aphasia attributable to first ischemic stroke: incidence, severity, fluency, etiology, and thrombolysis,” Stroke, vol. 37, no. 6, pp. 1379–1384, 2006.
- C. Code and B. Petheram, “Delivering for aphasia,” International Journal of Speech-Language Pathology, vol. 13, no. 1, pp. 3–10, 2011.
- A. C. Laska, A. Hellblom, V. Murray, T. Kahan, and M. Von Arbin, “Aphasia in acute stroke and relation to outcome,” Journal of Internal Medicine, vol. 249, no. 5, pp. 413–422, 2001.
- C. Code and M. Herrmann, “The relevance of emotional and psychosocial factors in aphasia to rehabilitation,” Neuropsychological Rehabilitation, vol. 13, no. 1-2, pp. 109–132, 2003.
- D. E. Polkinghorne, Narrative Knowing and the Human Sciences, State University of New York Press, Albany, NY, USA, 1988.
- M. Bury, “Chronic illness as biographical disruption,” Sociology of Health and Illness, vol. 4, no. 2, pp. 167–182, 1982.
- S. Parr, Living with Severe Aphasia—The Experience of Communication Impairment After Stroke, Joseph Rowntree Foundation, Pavillion, Wyo, USA, 2004.
- F. J. Carod-Artal and J. A. Egido, “Quality of life after stroke: the importance of a good recovery,” Cerebrovascular Diseases, vol. 27, no. 1, supplement, pp. 204–214, 2009.
- M. L. Kauhanen, J. T. Korpelainen, P. Hiltunen et al., “Aphasia, depression, and non-verbal cognitive impairment in ischaemic stroke,” Cerebrovascular Diseases, vol. 10, no. 6, pp. 455–461, 2000.
- B. B. Shadden, “Aphasia as identity theft: theory and practice,” Aphasiology, vol. 19, no. 3–5, pp. 211–223, 2005.
- M. C. Hallé, F. Duhamel, and G. Le Dorze, “The daughter-mother relationship in the presence of aphasia: how daughters view changes over the first year poststroke,” Qualitative Health Research, vol. 21, no. 4, pp. 549–562, 2011.
- G. Le Dorze and F. H. Signori, “Needs, barriers and facilitators experienced by spouses of people with aphasia,” Disability and Rehabilitation, vol. 32, no. 13, pp. 1073–1087, 2010.
- S. Parr, “Living with severe aphasia: tracking social exclusion,” Aphasiology, vol. 21, no. 1, pp. 98–123, 2007.
- C. Code, “The quantity of life for people with chronic aphasia,” Neuropsychological Rehabilitation, vol. 13, no. 3, pp. 379–390, 2003.
- M. Cruice, L. Worrall, L. Hickson, and R. Murison, “Finding a focus for quality of life with aphasia: social and emotional health, and psychological well-being,” Aphasiology, vol. 17, no. 4, pp. 333–353, 2003.
- K. Brown, L. Worrall, B. Davidson, and T. Howe, “Snapshots of success: an insider perspective on living successfully with aphasia,” Aphasiology, vol. 24, no. 10, pp. 1267–1295, 2010.
- J. Smith, A. Forster, A. House, P. Knapp, J. Wright, and J. Young, “Information provision for stroke patients and their caregivers,” Cochrane Database of Systematic Reviews, no. 2, Article ID CD001919, 2008.
- P. Knapp, J. Young, A. House, and A. Forster, “Non-drug strategies to resolve psycho-social difficulties after stroke,” Age and Ageing, vol. 29, no. 1, pp. 23–30, 2000.
- M. L. Hackett, C. S. Anderson, A. House, and C. Halteh, “Interventions for preventing depression after stroke,” Cochrane Database of Systematic Reviews, no. 3, Article ID CD003689, 2008.
- M. L. Hackett, C. S. Anderson, A. House, and J. Xia, “Interventions for treating depression after stroke,” Cochrane Database of Systematic Reviews, no. 4, Article ID CD003437, 2008.
- G. Ellis, J. Mant, P. Langhorne, M. Dennis, and S. Winner, “Stroke liaison workers for stroke patients and carers: an individual patient data meta-analysis,” Cochrane Database of Systematic Reviews, vol. 5, Article ID CD005066, 2010.
- J. Redfern, C. McKevitt, and C. D. A. Wolfe, “Development of complex interventions in stroke care: a systematic review,” Stroke, vol. 37, no. 9, pp. 2410–2419, 2006.
- C. Burton and B. Gibbon, “Expanding the role of the stroke nurse: a pragmatic clinical trial,” Journal of Advanced Nursing, vol. 52, no. 6, pp. 640–650, 2005.
- C. L. Watkins, M. F. Auton, C. F. Deans et al., “Motivational interviewing early after acute stroke: a randomized, controlled trial,” Stroke, vol. 38, no. 3, pp. 1004–1009, 2007.
- C. Pound, “Reciprocity, resources, and relationships: new discourses in healthcare, personal, and social relationships,” International Journal of Speech-Language Pathology, vol. 13, no. 3, pp. 197–206, 2011.
- K. Hilari and S. Byng, “Health-related quality of life in people with severe aphasia,” International Journal of Language and Communication Disorders, vol. 44, no. 2, pp. 193–205, 2009.
- E. Carlsson, B. L. Paterson, S. Scott-Findlay, M. Ehnfors, and A. Ehrenberg, “Methodological issues in interviews involving people with communication impairments after acquired brain damage,” Qualitative Health Research, vol. 17, no. 10, pp. 1361–1371, 2007.
- I. E. Poslawsky, M. J. Schuurmans, E. Lindeman, and T. B. Hafsteinsdóttir, “A systematic review of nursing rehabilitation of stroke patients with aphasia,” Journal of Clinical Nursing, vol. 19, no. 1-2, pp. 17–32, 2010.
- F. Hjelmblink, C. B. Bernsten, H. Uvhagen, S. Kunkel, and I. Holmström, “Understanding the meaning of rehabilitation to an aphasic patient through phenomenological analysis—a case study,” International Journal of Qualitative Studies on Health and Well-Being, vol. 2, no. 2, pp. 93–100, 2007.
- M. Kirkevold, “The role of nursing in the rehabilitation of stroke survivors: an extended theoretical account,” Advances in Nursing Science, vol. 33, no. 1, pp. E27–E40, 2010.
- C. Burton, Developing Stroke Services: A Key Role for Nursing and Nurses, Wiley-Blackwell, Oxford, UK, 2010.
- P. Craig, P. Dieppe, S. Macintyre, S. Mitchie, I. Nazareth, and M. Petticrew, “Developing and evaluating complex interventions: the new medical research council guidance,” British Medical Journal, vol. 337, no. 7676, pp. 979–983, 2008.
- M. Kirkevold, B. A. Bronken, R. Martinsen, and K. Kvigne, “Promoting psychosocial well-being following a stroke: developing a theoretically and empirically sound complex intervention,” International Journal of Nursing Studies, vol. 49, no. 4, pp. 386–397, 2012.
- M. Q. Patton, Qualitative Research & Evaluation Methods, SAGE, Thousand Oaks, Calif, USA, 2002.
- K. L. Easton, “The poststroke journey: from agonizing to owning,” Geriatric Nursing, vol. 20, no. 2, pp. 70–76, 1999.
- M. Kirkevold, “The unfolding illness trajectory of stroke,” Disability and Rehabilitation, vol. 24, no. 17, pp. 887–898, 2002.
- V. Z. Knudsen, Guided Self-determination: A Life Skills Approach Developed in Difficult Type 1 Diabetes, Department of Nursing Science, University of Aarhus, Aarhus, Denmark, 2004.
- S. Næss, “Quality of life as psychological well-being,” Tidsskr Nor Lægeforen, vol. 16, no. 121, pp. 1940–1944, 2001.
- C. Code, G. Hemsley, and M. Herrmann, “The emotional impact of aphasia,” Seminars in Speech and Language, vol. 20, no. 1, pp. 19–31, 1999.
- B. Fure, T. B. Wyller, K. Engedal, and B. Thommessen, “Emotional symptoms in acute ischemic stroke,” International Journal of Geriatric Psychiatry, vol. 21, no. 4, pp. 382–387, 2006.
- A. L. Holland, “Why can't clinicians talk to aphasic adults? Comments on supported conversation for adults with aphasia: methods and resources for training conversational partners,” Aphasiology, vol. 12, no. 9, pp. 844–847, 1998.
- J. S. Damico, N. Simmons-Mackie, M. Oelschlaeger, R. Elman, and E. Armstrong, “Qualitative methods in aphasia research: basic issues,” Aphasiology, vol. 13, no. 9-11, pp. 651–665, 1999.
- J. S. Damico and N. N. Simmons-Mackie, “Qualitative research and speech-language pathology: a tutorial for the clinical realm,” American Journal of Speech-Language Pathology, vol. 12, no. 2, pp. 131–143, 2003.
- T. B. Wyller and U. Sveen, “Non-verbal cognitive symptoms after stroke,” Tidsskr Nor Lægeforen, vol. 122, no. 6, pp. 627–630, 2002.
- R. Riise, B. Gundersen, S. Brodal, and P. Bjerke, “Visual problems in cerebral stroke,” Tidsskrift for den Norske Laegeforening, vol. 125, no. 2, pp. 176–177, 2005.
- T. Farmer, K. Robinson, S. J. Elliott, and J. Eyles, “Developing and implementing a triangulation protocol for qualitative health research,” Qualitative Health Research, vol. 16, no. 3, pp. 377–394, 2006.
- R. E. Stake, Multiple Case Study Analysis, The Guilford Press, New York, NY, USA, 2006.
- R. K. Yin, Case Study Research: Design and Methods, Sage, Los Angeles, Calif, USA, 2009.
- K. Hilari, S. Byng, D. L. Lamping, and S. C. Smith, “Stroke and aphasia quality of life scale-39 (SAQOL-39): evaluation of acceptability, reliability, and validity,” Stroke, vol. 34, no. 8, pp. 1944–1950, 2003.
- H. Cantril, The Patterns of Human Concerns, Rutgers University Press, New Brunswick, NJ, USA, 1965.
- J. P. Robinson, P. R. Shaver, and L. S. Wrightsman, Measures of Personality and Social Psychological Attitudes, Academic Press, San Diego, Calif, USA, 1991.
- K. Tambs, Ed., Choice of Questions in Short Form Questionnairs of Established Psychometric Instruments. Proposed Procedure and Some Examples, Universtitetet i Oslo, Oslo, Norway, 2004.
- K. Hilari and S. Byng, “Measuring quality of life in people with aphasia: the stroke specific quality of life scale,” International Journal of Language and Communication Disorders, vol. 36, no. 1, pp. 86–91, 2001.
- B. H. Strand, O. S. Dalgard, K. Tambs, and M. Rognerud, “Measuring the mental health status of the Norwegian population: a comparison of the instruments SCL-25, SCL-10, SCL-5 and MHI-5 (SF-36),” Nordic Journal of Psychiatry, vol. 57, no. 2, pp. 113–118, 2003.
- P. Ricoeur, Interpretation Theory: Discourse and the Surplus of Meaning, Texas Christian University Press, Fort Worth, Tex, USA, 1976.
- P. Ricoeur, “The metaphorical process as cognition, imagination, and feeling,” Critical Inquiry, vol. 5, no. 1, pp. 143–159, 1978.
- P. Ricoeur, “Narrative time,” Critical Inquiry, vol. 7, no. 1, pp. 169–190, 1980.
- S. Kvale, Det Kvalitative Forskningsintervju, Ad notam Gyldendal, Oslo, Norway, 1997.
- S. Kvale, Doing Interviews, vol. 2, Sage, London, UK, 2007.
- K. Malterud, “The art and science of clinical knowledge: evidence beyond measures and numbers,” Lancet, vol. 358, no. 9279, pp. 397–400, 2001.
- K. Malterud, “Qualitative research: standards, challenges, and guidelines,” Lancet, vol. 358, no. 9280, pp. 483–488, 2001.
- A. Lindseth and A. Norberg, “A phenomenological hermeneutical method for researching lived experience,” Scandinavian Journal of Caring Sciences, vol. 18, no. 2, pp. 145–153, 2004.
- V. Lloyd, A. Gatherer, and S. Kalsy, “Conducting qualitative interview research with people with expressive language difficulties,” Qualitative Health Research, vol. 16, no. 10, pp. 1386–1404, 2006.
- J. M. Morse, “Ethics in action: ethical principles for doing qualitative health research,” Qualitative Health Research, vol. 17, no. 8, pp. 1003–1005, 2007.
- B. A. Bronken, M. Kirkevold, R. Martinsen, and K. Kvigne, “The aphasic storyteller: coconstructing stories to promote psychosocial well-being after stroke,” Qualitative Health Research. In press.
- H. Ellekjær and R. Selmer, “Stroke—similar incidence, better prognosis,” Tidsskrift for den Norske Laegeforening, vol. 127, no. 6, pp. 740–743, 2007.
- A. L. Holland, A. S. Halper, and L. R. Cherney, “Tell me your story: analysis of script topics selected by persons with aphasia,” American Journal of Speech-Language Pathology, vol. 19, no. 3, pp. 198–203, 2010.
- A. Kagan, N. Simmons-Mackie, A. Rowland et al., “Counting what counts: a framework for capturing real-life outcomes of aphasia intervention,” Aphasiology, vol. 22, no. 3, pp. 258–280, 2008.
- L. Worrall, K. Brown, M. Cruice et al., “The evidence for a life-coaching approach to aphasia,” Aphasiology, vol. 24, no. 4, pp. 497–514, 2010.
- J. Bruner, “The narrative construction of reality,” Critical Inquiry, vol. 18, no. 1, pp. 1–21, 1991.
- P. Atkinson, “The life story interview,” in Institutional Ethnography Using Interviews to Investigate Ruling Relation, M. I. Devault and L. McCoy, Eds., Sage, London, UK, 2003.
- A. W. Frank, The Wounded Storyteller: Body, Illness, and Ethics, University of Chicago Press, Chicago, Ill, USA, 1995.
- C. A. Faircloth, M. Rittman, C. Boylstein, M. E. Young, and M. Van Puymbroeck, “Energizing the ordinary: biographical work and the future in stroke recovery narratives,” Journal of Aging Studies, vol. 18, no. 4, pp. 399–413, 2004.
- C. A. Faircloth, C. Boylstein, M. Rittman, M. E. Young, and J. Gubrium, “Sudden illness and biographical flow in narratives of stroke recovery,” Sociology of Health and Illness, vol. 26, no. 2, pp. 242–261, 2004.
- C. A. Faircloth, C. Boylstein, M. Rittman, and J. F. Gubrium, “Constructing the stroke: sudden-onset narratives of stroke survivors,” Qualitative Health Research, vol. 15, no. 7, pp. 928–941, 2005.
- S. Kaufman, “Illness, biography, and the interpretation of self following a stroke,” Journal of Aging Studies, vol. 2, no. 3, pp. 217–227, 1988.
- A. W. Frank, “The standpoint of storyteller,” Qualitative Health Research, vol. 10, no. 3, pp. 354–365, 2000.
- B. B. Shadden and F. Hagstrom, “The role of narrative in the life participation approach to aphasia,” Topics in Language Disorders, vol. 27, no. 4, pp. 324–338, 2007.
- J. Hinckley, “Hope for happy endings: stories of clients and clinicians,” Topics in Stroke Rehabilitation, vol. 17, no. 1, pp. 1–5, 2010.
- N. Simmons-Mackie, A. Raymer, E. Armstrong, A. Holland, and L. R. Cherney, “Communication partner training in Aphasia: a systematic review,” Archives of Physical Medicine and Rehabilitation, vol. 91, no. 12, pp. 1814–1837, 2010.
- K. Sundin, A. Norberg, and L. Jansson, “The meaning of skilled care providers' relationships with stroke and aphasia patients,” Qualitative Health Research, vol. 11, no. 3, pp. 308–321, 2001.
- K. Sundin, L. Jansson, and A. Norberg, “Understanding between care providers and patients with stroke and aphasia: a phenomenological hermeneutic inquiry,” Nursing Inquiry, vol. 9, no. 2, pp. 93–103, 2002.
- K. Sundin and L. Jansson, ““Understanding and being understood” as a creative caring phenomenon—in care of patients with stroke and aphasia,” Journal of Clinical Nursing, vol. 12, no. 1, pp. 107–116, 2003.
- K. Hilari, S. Northcott, P. Roy et al., “Psychological distress after stroke and aphasia: the first six months,” Clinical Rehabilitation, vol. 24, no. 2, pp. 181–190, 2010.
- R. MacKay, ““Tell them who i was” : the social construction of aphasia,” Disability and Society, vol. 18, no. 6, pp. 811–826, 2003.
- J. J. Hinckley, “Finding messages in bottles: living successfully with stroke and aphasia,” Topics in Stroke Rehabilitation, vol. 13, no. 1, pp. 25–36, 2006.
- K. Hilari, “The impact of stroke: are people with aphasia different to those without?” Disability and Rehabilitation, vol. 33, no. 3, pp. 211–218, 2011.
- N. Simmons-Mackie, T. T. Threats, and A. Kagan, “Outcome assessment in aphasia: a survey,” Journal of Communication Disorders, vol. 38, no. 1, pp. 1–27, 2005.