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Nursing Research and Practice
Volume 2014 (2014), Article ID 702683, 13 pages
Evaluating the Linguistic Appropriateness and Cultural Sensitivity of a Self-Report System for Spanish-Speaking Patients with Cancer
1University of South Florida, 4202 E Fowler Avenue, Tampa, FL 33620, USA
2University of Massachusetts Boston, 100 Morrissey Boulevard, Boston, MA 02125, USA
3Dana-Farber Cancer Institute, 450 Brookline Avenue, Boston, MA 02215, USA
4University of Central Florida, 4000 Central Florida Boulevard, Orlando, FL 32816, USA
5California Department of State Hospitals, P.O. Box 2297, Vacaville, CA 95696, USA
Received 18 January 2014; Revised 3 June 2014; Accepted 4 June 2014; Published 19 June 2014
Academic Editor: Patsy Yates
Copyright © 2014 Cindy Tofthagen et al. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
- R. Bernstein, U.S. Hispanic Population Surpasses 45 Million-Now 15 Percent of Total U.S.C. Bureau, US Deartment of Commerce, Washington, DC, USA, 2008.
- J. Martínez and G. Velasco, Pew Research Hispanic Trends Project: Language Use among Latinos, 2012, http://www.pewhispanic.org/2012/04/04/iv-language-use-among-latinos.
- A. G. Ramirez, G. A. Talavera, R. Villarreal et al., “Breast cancer screening in regional hispanic populations,” Health Education Research, vol. 15, no. 5, pp. 559–568, 2000.
- R. E. Zambrana, N. Breen, S. A. Fox, and M. L. Gutierrez-Mohamed, “Use of cancer screening practices by Hispanic women: analyses by subgroup,” Preventive Medicine, vol. 29, no. 6, part I, pp. 466–477, 1999.
- D. A. Savitz, T. M. Janevic, S. M. Engel, J. S. Kaufman, and A. H. Herring, “Ethnicity and gestational diabetes in New York City, 1995–2003,” BJOG, vol. 115, no. 8, pp. 969–978, 2008.
- L. N. Borrell and N. D. Crawford, “Disparities in self-reported hypertension in Hispanic subgroups, non-Hispanic black and non-Hispanic white adults: the national health interview survey,” Annals of Epidemiology, vol. 18, no. 10, pp. 803–812, 2008.
- J. V. Bowie, H.-S. Juon, J. Cho, and E. M. Rodriguez, “Factors associated with overweight and obesity among Mexican Americans and Central Americans: results from the 2001 California Health Interview Survey,” Preventing Chronic Disease, vol. 4, no. 1, p. A10, 2007.
- M. A. Oquendo, D. Lizardi, S. Greenwald, M. M. Weissman, and J. J. Mann, “Rates of lifetime suicide attempt and rates of lifetime major depression in different ethnic groups in the United States,” Acta Psychiatrica Scandinavica, vol. 110, no. 6, pp. 446–451, 2004.
- M. Alegría, G. Canino, P. E. Shrout et al., “Prevalence of mental illness in immigrant and non-immigrant U.S. Latino groups,” American Journal of Psychiatry, vol. 165, no. 3, pp. 359–369, 2008.
- American Cancer Society, Cancer Facts & Figures for Hispanics/Latinos 2012–2014, 2012.
- J. Alexander, H. T. Kwon, R. Strecher, and J. Bartholomew, “Multicultural media outreach: increasing cancer information coverage in minority communities,” Journal of Cancer Education, vol. 28, no. 4, pp. 744–747, 2013.
- S. Fox and G. Livinston, Latinos online: hispanics with lower levels of education and English proficiency remain largely disconnected from the internet, 2007.
- J. Z. Ayanian, A. M. Zaslavsky, E. Guadagnoli et al., “Patients' perceptions of quality of care for colorectal cancer by race, ethnicity, and language,” Journal of Clinical Oncology, vol. 23, no. 27, pp. 6576–6586, 2005.
- L. S. Morales, W. E. Cunningham, J. A. Brown, H. Liu, and R. D. Hays, “Are Latinos less satisfied with communication by health care providers?” Journal of General Internal Medicine, vol. 14, no. 7, pp. 409–417, 1999.
- J. Z. Ayanian, A. M. Zaslavsky, N. K. Arora et al., “Patients' experiences with care for lung cancer and colorectal cancer: findings from the cancer care outcomes research and surveillance consortium,” Journal of Clinical Oncology, vol. 28, no. 27, pp. 4154–4161, 2010.
- R. Eversley, D. Estrin, S. Dibble, L. Wardlaw, M. Pedrosa, and W. Favila-Penney, “Post-treatment symptoms among ethnic minority breast cancer survivors,” Oncology Nursing Forum, vol. 32, no. 2, pp. 250–256, 2005.
- K. T. Ashing-Giwa, G. V. Padilla, D. E. Bohórquez, J. S. Tejero, and M. Garcia, “Understanding the bre0ast cancer experience of Latina women,” Journal of Psychosocial Oncology, vol. 24, no. 3, pp. 19–52, 2006.
- K. M. Christie, B. E. Meyerowitz, and R. C. Maly, “Depression and sexual adjustment following breast cancer in low-income Hispanic and non-Hispanic White women,” Psycho-Oncology, vol. 19, no. 10, pp. 1069–1077, 2010.
- G. Juarez, B. Ferrell, and T. Borneman, “Influence of culture on cancer pain management in hispanic patients,” Cancer Practice, vol. 6, no. 5, pp. 262–269, 1998.
- K. O. Anderson, C. R. Green, and R. Payne, “Racial and ethnic disparities in pain: causes and consequences of unequal care,” Journal of Pain, vol. 10, no. 12, pp. 1187–1204, 2009.
- K. O. Anderson, T. R. Mendoza, R. Payne et al., “Pain education for underserved minority cancer patients: a randomized controlled trial,” Journal of Clinical Oncology, vol. 22, no. 24, pp. 4918–4925, 2004.
- R. C. Maly, Y. Liu, B. Leake, A. Thind, and A. L. Diamant, “Treatment-related symptoms among underserved women with breast cancer: the impact of physician-patient communication,” Breast Cancer Research and Treatment, vol. 119, no. 3, pp. 707–716, 2010.
- J. E. Nelson, E. B. Gay, A. R. Berman, C. A. Powell, J. Salazar-Schicchi, and J. P. Wisnivesky, “Patients rate physician communication about lung cancer,” Cancer, vol. 117, no. 22, pp. 5212–5220, 2011.
- A. G. Ramirez, K. J. Gallion, L. Suarez et al., “A national agenda for Latino cancer prevention and control,” Cancer, vol. 103, no. 11, pp. 2209–2215, 2005.
- S. M. Dy, S. M. Harman, U. K. Braun, L. J. Howie, P. F. Harris, and R. L. Jayes, “To stent or not to stent: an evidence-based approach to palliative procedures at the end of life,” Journal of Pain and Symptom Management, vol. 43, no. 4, pp. 795–801, 2012.
- D. L. Berry, B. A. Blumenstein, B. Halpenny et al., “Enhancing patient-provider communication with the electronic self-report assessment for cancer: a randomized trial,” Journal of Clinical Oncology, vol. 29, no. 8, pp. 1029–1035, 2011.
- D. L. Berry, L. J. Trigg, W. B. Lober et al., “Computerized symptom and quality-of-life assessment for patients with cancer part I: development and pilot testing,” Oncology Nursing Forum, vol. 31, no. 5, pp. 75–83, 2004.
- B. T. Karras, S. Wolpin, W. B. Lober, N. Bush, J. R. Fann, and D. L. Berry, “Electronic Self-report Assessment—Cancer (ESRA-C): working towards an integrated survey system,” Studies in Health Technology and Informatics, vol. 122, pp. 514–518, 2006.
- D. L. Berry, F. Hong, J. R. Fann, et al., “Electronic self-report assessment for cancer and self-care support: results of a multicenter randomized trial,” Journal of Clinical Oncology, vol. 32, no. 3, pp. 199–205, 2013.
- N. K. Aaronson, S. Ahinedzai, B. Bergman et al., “The European Organization for Research and Treatment of Cancer QLQ-C30: a quality-of-life instrument for use in international clinical trials in oncology,” Journal of the National Cancer Institute, vol. 85, no. 5, pp. 365–376, 1993.
- T. J. Postma, N. K. Aaronson, J. J. Heimans et al., “The development of an EORTC quality of life questionnaire to assess chemotherapy-induced peripheral neuropathy: the QLQ-CIPN20,” European Journal of Cancer, vol. 41, no. 8, pp. 1135–1139, 2005.
- D. Amtmann, K. F. Cook, M. P. Jensen et al., “Development of a PROMIS item bank to measure pain interference,” Pain, vol. 150, no. 1, pp. 173–182, 2010.
- National Institutes of Health, Patient-Reported Outcomes Measurement Information System (PROMIS) ADULT PAIN INTERFERENCE PROFILE SHORT FORMS A brief guide to the 4-item PROMIS Short Form v1.0-Pain Interference 4a, the 6-item PROMIS.
- National Institutes of Health, Patient-Reported Outcomes Measurement Information System (PROMIS) ADULT FATIGUE VERSION 1.0 SHORT FORM. A brief guide to the 7-item PROMIS Short Form v1.0-Fatigue 7a.
- National Institutes of Health, Patient-Reported Outcomes Measurement Information System (PROMIS) ADULT DEPRESSION. A brief guide to the PROMIS Depression instruments.
- P. Chang, K. M. Szymanski, R. L. Dunn et al., “Expanded prostate cancer index composite for clinical practice: development and validation of a practical health related quality of life instrument for use in the routine clinical care of patients with prostate cancer,” Journal of Urology, vol. 186, no. 3, pp. 865–872, 2011.
- R. McCorkle and K. Young, “Development of a symptom distress scale,” Cancer Nursing, vol. 1, no. 5, pp. 373–378, 1978.
- K. Kroenke, R. L. Spitzer, and J. B. W. Williams, “The PHQ-9: validity of a brief depression severity measure,” Journal of General Internal Medicine, vol. 16, no. 9, pp. 606–613, 2001.
- R. L. Spitzer, K. Kroenke, and J. B. W. Williams, “Validation and utility of a self-report version of PRIME-MD: the PHQ Primary Care Study,” Journal of the American Medical Association, vol. 282, no. 18, pp. 1737–1744, 1999.
- D. B. Friedman and E. K. Kao, “A comprehensive assessment of the difficulty level and cultural sensitivity of online cancer prevention resources for older minority men,” Preventing Chronic Disease, vol. 5, no. 1, p. A07, 2008.
- M. E. Ruiz, “Familismo and filial piety among Latino and Asian elders: reevaluating family and social support,” Hispanic Health Care International, vol. 5, no. 2, pp. 81–89, 2007.
- H. Y. Adames, S. P. Salas, N. Y. Chavez-Duenas, et al., “Integration of Latino/a cultural values into palliative health care: a culture centered model,” Palliative and Supportive Care, vol. 12, no. 2, pp. 149–157, 2014.
- C. Gelman, “Familismo and its impact on the family caregiving of Latinos with Alzheimers Disease: a complex narrative,” Research on Aging, vol. 36, no. 1, pp. 40–71, 2014.
- E. Fry, “A readibility formula that saves time,” Journal of Reading, vol. 11, no. 7, pp. 513–516, 1968.
- D. B. Friedman and L. Hoffman-Goetz, “A systematic review of readability and comprehension instruments used for print and web-based cancer information,” Health Education and Behavior, vol. 33, no. 3, pp. 352–373, 2006.
- C. D. Meade, W. P. McKinney, and G. P. Barnas, “Educating patients with limited literacy skills: the effectiveness of printed and videotaped materials about colon cancer,” American Journal of Public Health, vol. 84, no. 1, pp. 119–121, 1994.
- P. C. Beatty and G. B. Willis, “Research synthesis: the practice of cognitive interviewing,” Public Opinion Quarterly, vol. 71, no. 2, pp. 287–311, 2007.
- G. Willis, Cognitive Interviewing: A How-to Guide, 1999, http://fog.its.uiowa.edu/~c07b209/interview.pdf.
- D. B. Friedman and L. Hoffman-Goetz, “Assessment of cultural sensitivity of cancer information in ethnic print media,” Journal of Health Communication, vol. 11, no. 4, pp. 425–447, 2006.
- N. C. Facione, “The Triandis model for the study of health and illness behavior: a social behavior theory with sensitivity to diversity,” Advances in Nursing Science, vol. 15, no. 3, pp. 49–58, 1993.
- R. Bayer, “AIDS prevention and cultural sensitivity: are they compatible?” American Journal of Public Health, vol. 84, no. 6, pp. 895–898, 1994.
- B. Gilliam, S. Pena, and L. R. Moutain, “The fry graph applied to Spanish readability,” Reading Teacher, pp. 426–430, 1980.
- J. J. Guidry and V. D. Walker, “Assessing cultural sensitivity in printed cancer materials,” Cancer Practice, vol. 7, no. 6, pp. 291–296, 1999.
- K. Julliard, J. Vivar, C. Delgado, E. Cruz, J. Kabak, and H. Sabers, “What Latina patients don't tell their doctors: a qualitative study,” Annals of Family Medicine, vol. 6, no. 6, pp. 543–549, 2008.
- G. P. Quinn, J. McIntyre, L. E. Gonzalez, T. M. Antonia, P. Antolino, and K. J. Wells, “Improving awareness of cancer clinical trials among hispanic patients and families: audience segmentation decisions for a media intervention,” Journal of Health Communication, vol. 18, no. 9, pp. 1131–1147, 2013.
- L. K. Ko, D. Reuland, R. Clay, et al., “Cultural and linguistic adaptation of a multimedia colorectal cancer screening decision aid for Spanish-speaking latinos,” Journal of Health Communication, vol. 19, no. 2, pp. 192–209, 2014.
- P. Pinto, H. Stanley, M. Vega, et al., An Evaluation of Cancer Educational Materials with a Focus on those Currently Distributed by Health Departments in New Jersey, 2005.
- E. Roman, Census 2010: hispanics boost Massachusetts population, The Rebublican, 2011.
- U. C. Bureau, United States Census 2010, 2010.
- C. M. Dang, S. Estrade, C. Bresee, et al., “Exploring potential use of internet, E-mail, and instant text messaging to promote breast health and mammogram use among immigrant Hispanic women in Los Angeles County,” American Surgeon, vol. 79, no. 10, pp. 997–1000, 2013.
- A. Gonzalez-Barrera and E. Patten, Closing the Digital Divide: Latinos and Technology Adoption, 2013.
- R. A. Goslin and H. A. Elhassan, “Evaluating internet health resources in ear, nose, and throat surgery,” Laryngoscope, vol. 123, no. 7, pp. 1626–1631, 2013.
- K. Ting and A. Hu, “Evaluating the quality and readability of thyroplasty information on the internet,” Journal of Voice, vol. 28, no. 3, pp. 378–381, 2013.
- B. Hebert, “Spanish health information resources for nurses,” Pediatric Nursing, vol. 32, no. 4, pp. 350–353, 2006.
- R. C. Maly, Y. Umezawa, C. T. Ratliff, and B. Leake, “Racial/ethnic group difference in treatment decision-making and treatment received among older breast carcinoma patients,” Cancer, vol. 106, no. 4, pp. 957–965, 2006.