Information Experiences and Needs in Patients with Pulmonary Arterial Hypertension or Chronic Thromboembolic Pulmonary Hypertension

Table 2

A summary of categories and subcategories.

Categories	Subcategories
Handling of information	Winding road to a PAH specialist care team
	Usefulness of written information
	Lacking information to relatives
	Using and avoiding Internet as a source of information and knowledge
	The unspoken about the prognosis
	Being rational regarding surgical procedures
Struggling with feelings that also affect others	Fear of hereditary disease
	Feelings of injustice in not being able to have children
Vulnerability associated with uncertainty	Failing healthcare organization
	Pondering about why they are affected