About this Journal Submit a Manuscript Table of Contents
Parkinson’s Disease
Volume 2013 (2013), Article ID 974964, 6 pages
http://dx.doi.org/10.1155/2013/974964
Research Article

A Patient-Based Needs Assessment for Living Well with Parkinson Disease: Implementation via Nominal Group Technique

1ATC and Jeff and Diane Ross Movement Disorders Clinic, Baycrest Hospital, University of Toronto, 3560 Bathurst Street, Toronto, ON, Canada M6A 2E1
2Baycrest Hospital, University of Toronto, 3560 Bathurst Street, Toronto, ON, Canada M6A 2E1

Received 20 November 2012; Accepted 19 December 2012

Academic Editor: Marjan Jahanshahi

Copyright © 2013 Galit Kleiner-Fisman et al. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

Linked References

  1. D. Hirtz, D. J. Thurman, K. Gwinn-Hardy, M. Mohamed, A. R. Chaudhuri, and R. Zalutsky, “How common are the “common” neurologic disorders?” Neurology, vol. 68, no. 5, pp. 326–337, 2007. View at Publisher · View at Google Scholar · View at Scopus
  2. Health Canada. Economic Burden of Illness in Canada, Government of Canada, Ottawa, Canada, 1998, http://www.phac-aspc.gc.ca/publicat/ebic-femc98/pdf/ebic1998.pdf.
  3. J. J. Chen, “Parkinson's disease: health-related quality of life, economic cost, and implications of early treatment,” The American Journal of Managed Care, vol. 16, supplement, pp. S87–S93, 2010. View at Scopus
  4. Y. Winter, M. Balzer-Geldsetzer, A. Spottke et al., “Longitudinal study of the socioeconomic burden of Parkinson's disease in Germany,” European Journal of Neurology, vol. 17, no. 9, pp. 1156–1163, 2010. View at Publisher · View at Google Scholar · View at Scopus
  5. R. C. Dodel, M. Singer, R. Köhne-Volland et al., “The economic impact of Parkinson's disease: an estimation based on a 3- month prospective analysis,” Pharmaco Economics, vol. 14, no. 3, pp. 299–312, 1998. View at Publisher · View at Google Scholar · View at Scopus
  6. M. Pugliatti, P. Sobocki, E. Beghi et al., “Cost of disorders of the brain in Italy,” Neurological Sciences, vol. 29, no. 2, pp. 99–107, 2008. View at Publisher · View at Google Scholar · View at Scopus
  7. E. A. Spottke, J. Volkmann, D. Lorenz et al., “Evaluation of healthcare utilization and health status of patients with Parkinson's disease treated with deep brain stimulation of the subthalamic nucleus,” Journal of Neurology, vol. 249, no. 6, pp. 759–766, 2002. View at Publisher · View at Google Scholar · View at Scopus
  8. G. Kleiner-Fisman, M. B. Stern, and D. N. Fisman, “Health-Related Quality of Life in Parkinson disease: correlation between Health Utilities Index III and Unified Parkinson's Disease Rating Scale (UPDRS) in U.S. Male veterans,” Health and Quality of Life Outcomes, vol. 8, article 91, 2010. View at Publisher · View at Google Scholar · View at Scopus
  9. L. E. I. A'Campo, E. M. Wekking, N. G. A. Spliethoff-Kamminga, S. Le Cessie, and R. A. C. Roos, “The benefits of a standardized patient education program for patients with Parkinson's disease and their caregivers,” Parkinsonism and Related Disorders, vol. 16, no. 2, pp. 89–95, 2010. View at Publisher · View at Google Scholar · View at Scopus
  10. L. Tickle-Degnen, T. Ellis, M. H. Saint-Hilaire, C. A. Thomas, and R. C. Wagenaar, “Self-management rehabilitation and health-related quality of life in Parkinson's disease: a randomized controlled trial,” Movement Disorders, vol. 25, no. 2, pp. 194–204, 2010. View at Publisher · View at Google Scholar · View at Scopus
  11. A. W. Willis, M. Schootman, B. A. Evanoff, J. S. Perlmutter, and B. A. Racette, “Neurologist care in Parkinson disease: a utilization, outcomes, and survival study,” Neurology, vol. 77, pp. 851–857, 2011.
  12. E. R. Dorsey, T. S. Voss, D. R. Shprecher et al., “A U.S. Survey of patients with Parkinson's disease: satisfaction with medical care and support groups,” Movement Disorders, vol. 25, no. 13, pp. 2128–2135, 2010. View at Publisher · View at Google Scholar · View at Scopus
  13. E. M. Cheng, K. Swarztrauber, A. D. Siderowf et al., “Association of specialist involvement and quality of care for Parkinson's disease,” Movement Disorders, vol. 22, no. 4, pp. 515–522, 2007. View at Publisher · View at Google Scholar · View at Scopus
  14. P. Hartzband and J. Groopman, “Untangling the web—patients, doctors, and the internet,” The New England Journal of Medicine, vol. 362, no. 12, pp. 1063–1066, 2010. View at Publisher · View at Google Scholar · View at Scopus
  15. L. Baker, T. H. Wagner, S. Singer, and M. K. Bundorf, “Use of the internet and E-mail for health care information: results from a national survey,” Journal of the American Medical Association, vol. 289, no. 18, pp. 2400–2406, 2003. View at Publisher · View at Google Scholar · View at Scopus
  16. P. R. Fitzsimmons, B. D. Michael, J. L. Hulley, and G. O. Scott, “A readability assessment of online Parkinson's disease information,” The Journal of the Royal College of Physicians of Edinburgh, vol. 40, pp. 292–296, 2010.
  17. C. Moore, Applied Social Research Methods Series, Sage, Thousand Oaks, Cali, USA, 1994.
  18. S. O'Donnell, D. Kennedy, A. M. MacLeod, C. Kilroy, and J. Gollish, “Achieving team consensus on best practice rehabilitation guidelines following primary total hip replacement (THR) surgery,” Healthcare Quarterly, vol. 9, no. 4, pp. 60–64, 2006. View at Scopus
  19. N. Harvey and C. A. Holmes, “Nominal group technique: an effective method for obtaining group consensus,” International Journal of Nursing Practice, vol. 18, pp. 188–194, 2012.
  20. A. Sales, H. M. O'Rourke, K. Draper, G. F. Teare, and C. Maxwell, “Prioritizing information for quality improvement using resident assessment instrument data: experiences in one Canadian province,” Healthcare Policy, vol. 6, no. 3, pp. 55–67, 2011. View at Scopus
  21. A. Pena, C.A. Estrada, D. Soniat, B. Taylor, and M. Burton, “Nominal group technique: a brainstorming tool for identifying areas to improve pain management in hospitalized patients,” Journal of Hospital Medicine, vol. 7, no. 5, pp. 416–420, 2011.
  22. G. B. A. Guest and L. Johnson, “How many interviews are enough? An experiment with data saturation and variability,” Field, vol. 18, no. 1, pp. 59–82, 2006.
  23. G. Kleiner-Fisman, R. Martine, A. E. Lang, and M. B. Stern, “Development of a non-motor fluctuation assessment instrument for Parkinson disease,” Parkinson's Disease, vol. 2011, Article ID 292719, 13 pages, 2011. View at Publisher · View at Google Scholar
  24. I. O. Medicine, Crossing the Quality Chasm. A New Health Sysem for the 21st Century, National Academy Press, Washington, DC, USA, 2001.
  25. J. A. Osheroff, J. M. Teich, B. Middleton, E. B. Steen, A. Wright, and D. E. Detmer, “A roadmap for national action on clinical decision support,” Journal of the American Medical Informatics Association, vol. 14, no. 2, pp. 141–145, 2007. View at Publisher · View at Google Scholar · View at Scopus
  26. M. Macht, R. Schwarz, and H. Ellgring, “Patterns of psychological problems in Parkinson's disease,” Acta Neurologica Scandinavica, vol. 111, no. 2, pp. 95–101, 2005. View at Publisher · View at Google Scholar · View at Scopus
  27. H. Ellgring, S. Seiler, B. Perleth, W. Frings, T. Gasser, and W. Oertel, “Psychosocial aspects of Parkinson's disease,” Neurology, vol. 43, no. 12, supplement 6, pp. S41–S44, 1993. View at Scopus
  28. E. M. Cheng, S. Tonn, R. Swain-Eng, S. A. Factor, W. J. Weiner, and C. T. Bever Jr., “Quality improvement in neurology: AAN Parkinson disease quality measures: report of the Quality Measurement and Reporting Subcommittee of the American Academy of Neurology,” Neurology, vol. 75, no. 22, pp. 2021–2027, 2010. View at Publisher · View at Google Scholar · View at Scopus
  29. S. Johnson, M. Davis, A. Kaltenboeck, et al., “Early retirement and income loss in patients with early and advanced Parkinson's disease,” Applied Health Economics and Health Policy, vol. 9, pp. 367–376, 2011.
  30. M. van der Eijk, M. J. Faber, S. Al Shamma, M. Munneke, and B. R. Bloem, “Moving towards patient-centered healthcare for patients with Parkinson's disease,” Parkinsonism and Related Disorders, vol. 17, no. 5, pp. 360–364, 2011. View at Publisher · View at Google Scholar · View at Scopus
  31. C. J. L. Murray and D. Evans, “Health systems performance assessment,” in Debates, Methods, and Empiricism, World Health Organization, Geneva, Switzerland, 2003.
  32. K. A. Grosset and D. G. Grosset, “Patient-perceived involvement and satisfaction in Parkinson's disease: effect on therapy decisions and quality of life,” Movement Disorders, vol. 20, no. 5, pp. 616–619, 2005. View at Publisher · View at Google Scholar · View at Scopus