|
Rank | Categories | Items or ideas included | Frequency | Importance score |
|
(1) |
Emotional coping, relationships, and social aspects | (i) Dealing with fear about the future. (ii) Coping strategies. (iii) Coming to terms with living with a chronic illness. (iv) Challenges for marital relationship (including helping unaffected spouses come to terms with living with a chronically ill individual). (v) Availability of programs that promote a sense of wellbeing in dealing with disease. |
34 |
143 |
|
(2) | Legal, financial, and bureaucratic implications of life with PD | (i) Legal implications of living with PD (e.g., maintenance of driver’s license; proxy decision making). (ii) Financial implications of living with PD (e.g., public financial assistance and subsidies; financial and estate planning). (iii) Transportation. (iv) Managing government paperwork. (v) Where to find local resources for people with disabilities. (vi) Health-care system interactions. |
19 |
76 |
|
(3) |
Empowerment and self-advocacy | (i) Managing one’s own expectations. (ii) Managing expectations of family and friends. (iii) Strategies to ensure assertive and informed participation in health-related decisions. |
16 |
50 |
|
(4) |
Nonmotor symptoms | (i) Sleep difficulties. (ii) Bowel, and bladder dysfunction. (iii) Mood changes. (iv) Difficulties with cognition. (v) Holistic approaches to managing nonmotor symptoms. |
11 |
65 |
|
(5) | Strategies and lifestyle tips to cope with symptoms | (i) Practical solutions for common symptoms experienced in PD. (ii) Use of adaptive technologies to facilitate activities of daily living and home safety. |
15 |
47 |
|
(6) |
Physical approaches to symptom management | (i) Role of exercise in PD management. (ii) Information on accessible home activity programs. (iii) Management of daily physical challenges (e.g., rolling over in bed or getting out of chair). |
11 |
46 |
|
(7) |
PD symptoms | (i) Definition of “symptoms of parkinsonism.” (ii) Differentiation of PD symptoms from medication side-effects. |
10 |
35 |
|
(8) |
Medications | (i) Correct use of medications (e.g., timing, quantity). (ii) Common drug side-effects and their management. (iii) Relationship between diet and medications. | 8 | 33 |
|
(9) | Scientific information | (i) Genetic basis of PD and heritability. (ii) Current promising areas of research. (iii) Etiology of PD. | 5 | 15 |
|