Determining the Needs, Priorities, and Desired Rehabilitation Outcomes of Young Adults Who Have Had a Stroke

Table 2

Patient-centred needs and outcomes. Key: I: information; E: education; M: medical needs; PS: psychological support; R: rehabilitation; PA: practical assistance.

Short-term effects	Short-term needs/rehabilitation interventions	Patient-centred rehabilitation outcomes
Mortal body
Shock	Psychological support (PS)	Accommodation of the event to the individual’s altered way of being
Fear of recurrence	Diagnosis and treatment of cause (M; I); Explanation of treatment and cause (M; I); Information provision (I); Psychological support (PS); Secondary prevention (M; I; E)	Understanding of cause and treatment; Fear is manageable and does not hamper daily living; Secondary prevention strategies are in place; Nonrecurrence
Intermediate effects	Intermediate needs	Patient-centred outcomes
Situated body
Attitude to life; Coping	Education: effects of stroke and likely outcomes (I; E); Coping skills: assessment and training (PS)	Knowledge of effects of stroke and likely outcomes; Implementation of effective coping skills and strategies
Reclaiming normality; Stroke has/has not affected me; Work	Psychological support (PS); Management of fatigue (PS; R); Rehabilitation: individual’s role in the family (R); Rehabilitation: social/leisure activities; vocational rehabilitation; driving (R); Identification of practical support needs (PA)	Awareness and acceptance of impact of stroke on personal identity; Resumption of former roles and/or; Adaptation to altered ability to participate in former roles
Long-term effects	Long-term needs	Patient-centred outcomes
Embodied perception of difference
Sense of difference; Tiredness; Cognitive effects	Psychological effects of stroke: diagnosis, assessment and education (PS); Management of fatigue (PS; R); Cognitive effects of stroke: diagnosis, assessment and education (R; PS)	Effective management of psychological effects of stroke; Effective management of fatigue; Effective management cognitive impairments
Social difference; Relationships; Being in public	Body image, self-esteem: assessment (PS); Sense of self: awareness and understanding (PS); Self-efficacy (I; PS); Practical support: assessment and equity of access (PA); Family function: assessment; relationship counselling (PS)	Awareness and acceptance of impact of stroke on body image, self-esteem, and sense of identity/self; Resumption of former relationships (family and society); Acceptance of sameness/difference; Effective family functioning; “healthy” relationships

The table is divided into three sections: mortal body, situated body, and embodied perception of difference, which reflect the subthemes from the qualitative interviews. These sections are mapped to short-, medium-, and long-term effects of stroke. This temporal perspective reflects the ways in which the experience of stroke and associated needs and outcomes change over time. The table comprises three columns, that is, effects of stroke, patient-centred needs/rehabilitation interventions, and patient-centred rehabilitation outcomes.