Research Article

Identifying the Prevalence, Trajectory, and Determinants of Psychological Distress in Extremity Sarcoma

Table 1

Sociodemographic details.

Age (years)16–86 (mean: 55.1 ± 16.4)

= 76%

Demographic
Gender
 Female3140.8
SEIFA stratification
 Low1722.4
 Middle3546.1
 High2431.6
Age group
 16–543242.1
 55–753647.4
 ≥ 76810.5
Country of birth
 Australia6078.9
Rurality
 Metropolitan3343.4
 Regional2431.6
 Rural1925.0
Non-Victorian resident
 Interstate1317.1
Education
 Primary911.8
 Secondary3647.4
 Vocational1215.8
 Tertiary/postgraduate1823.7
Social information
Occupation
 Manager/admin/professional2330.3
 Tradesperson67.9
 Sales/personnel/clerks1013.2
 Machine operator/labourer810.5
 Home duties/student45.2
 Retired2532.9
Marital status
 Partnered: married/de facto5876.3
English 1st language
 Yes6990.8
Charlson Comorbidity IndexMean: 2 ± 2.24
Health information
Significant pain as a presenting feature
 Yes2634.2
Past history of depression and/or anxiety (no other psychiatric diagnoses listed)
 Depression1517.9
 Anxiety33.6
 Depression and anxiety11.2
Required psychological intervention for cancer diagnosis induced distress on diagnosis
 Yes1315.5
Cancer characteristics
Type of sarcoma
 Osteosarcoma, Ewing’s sarcoma911.9
 Chondrosarcoma79.2
 Soft tissue sarcoma6078.9
Location of cancer
(lower limb = 56, 73.7%)
 Proximal upper limb1114.5
 Distal upper limb911.8
 Proximal lower limb3951.3
 Distal lower limb1722.4
Dominant upper limb involved (out of = 20)
 Yes945
Neoadjuvant therapy
 Radiation only5167.1
 Chemotherapy 810.5
Sarcoma diagnosis delayed: for example, not thinking the lump was anything to worry about; doctor dismissed lump as not important
 Yes3748.7
Sarcoma diagnosis made from unplanned manipulation for misdiagnosed benign condition
 Yes3544.7
Surgery details
Type of surgery
 Soft tissue resection 5673.7
 Limb-sparing surgery1215.8
 Amputation810.5
Perception of most significant source of stress at = 0
 Mortality22.6
 Disruption to life/plans/goals, for example, career, school, and recreational/social interactions; financial implications2330.3
 Change in life role(s), for instance, feeling useless, burden on family911.8
 Fear of the unknown911.8
 Loss of locus of control, for instance, having to wait for things to happen 22.6
 Cosmetic related concerns33.9
 Let down by healthcare system1925.0
 Other or cannot say11.3
 Not stressed/no complaint810.6