Research Article

The Impact of Migrations on the Health Services for Rare Diseases in Europe: The Example of Haemoglobin Disorders

Table 2

Disease burden with the expected births and the number of known patients.

CountriesExpected thalassaemia births/1000 live birthsExpected SCD births/1000 live birthsNumber of known or estimated patients with thalassaemia syndromesNumber of known or estimated patients with sickle cell syndromes

(1) Austria0.00150.00008NANA
(2) Belgium0.0020.0035100400
(3) Cyprus5.50.001863940
(4) Denmark0.00180.00004NANA
(5) France0.00160.001857110000
(6) Germany0.00160.000115003000
(7) Greece1.60.00932411080
(8) Italy0.460.1170006000
(9) The Netherlands0.00180.0008250750
(10) Spain0.0670.0011113>200
(11) Sweden0.00250.0002150100
(12) UK0.00180.001392015000