Table of Contents
Advances in Nursing
Volume 2015 (2015), Article ID 653624, 7 pages
http://dx.doi.org/10.1155/2015/653624
Research Article

A Qualitative Study of Communication between Young Women with Disorders of Sex Development and Health Professionals

1Alder Hey Children’s Hospital NHS FT, Liverpool, UK
2University of Central Lancashire and Children’s Nursing Research Unit (UCLan), Alder Hey Foundation Trust, Brook Building 437, Preston PR1 2HE, UK

Received 18 November 2014; Revised 18 December 2014; Accepted 22 December 2014

Academic Editor: Violeta Lopez

Copyright © 2015 Caroline Sanders and Bernie Carter. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

Linked References

  1. S. F. Ahmed, J. C. Achermann, W. Arlt et al., “UK guidance on the initial evaluation of an infant or an adolescent with a suspected disorder of sex development,” Clinical Endocrinology, vol. 75, no. 1, pp. 12–26, 2011. View at Publisher · View at Google Scholar · View at PubMed · View at Scopus
  2. B. Köhler, M. Jürgensen, E. Kleinemeier, and M. D. Ute Thyen, “Psychosexual development in individuals with disorders of sex development,” in Gender Dysphoria and Disorders of Sex Development, pp. 115–134, Springer, New York, NY, USA, 2014. View at Google Scholar
  3. V. Pasterski, K. Mastroyannopoulou, D. Wright, K. J. Zucker, and I. A. Hughes, “Predictors of posttraumatic stress in parents of children diagnosed with a disorder of sex development,” Archives of Sexual Behavior, vol. 43, no. 2, pp. 369–375, 2014. View at Publisher · View at Google Scholar · View at PubMed · View at Scopus
  4. K. Karkazis, A. Tamar-Mattis, and A. A. Kon, “Genital surgery for disorders of sex development: implementing a shared decision-making approach,” Journal of Pediatric Endocrinology and Metabolism, vol. 23, no. 8, pp. 789–806, 2010. View at Publisher · View at Google Scholar · View at Scopus
  5. I. Mooreland, “The injured world,” Differences: A Journal of Feminist Cultural Studies, vol. 25, no. 2, pp. 20–41, 2012. View at Google Scholar
  6. Z. Kolesinska, S. F. Ahmed, M. Niedziela et al., “Changes over time in sex assignment for disorders of sex development,” Pediatrics, vol. 134, no. 3, pp. e710–e715, 2014. View at Publisher · View at Google Scholar · View at PubMed
  7. A. Wisniewski, “Gender development in 46,XY DSD: influences of chromosomes, hormones, and interactions with parents and healthcare professionals,” Scientifica, vol. 2012, Article ID 834967, 15 pages, 2012. View at Publisher · View at Google Scholar
  8. J. C. Streuli, B. Köhler, K. Werner-Rosen, and C. Mitchell, “DSD and professionalism from a multilateral view: supplementing the consensus statement on the basis of a qualitative survey,” Advances in Urology, vol. 2012, Article ID 185787, 8 pages, 2012. View at Publisher · View at Google Scholar · View at Scopus
  9. C. Sebastian, S. Burnett, and S. J. Blakemore, “Development of the self-concept during adolescence,” Trends in Cognitive Sciences, vol. 12, no. 11, pp. 441–446, 2008. View at Publisher · View at Google Scholar · View at PubMed · View at Scopus
  10. P. Ekman, “Basic emotions,” in Handbook of Cognition and Emotion, T. Dalgleish and M. Power, Eds., John Wiley & Sons, Sussex, UK, 1999. View at Google Scholar
  11. S. A. Lewis, J. Noyes, and S. Mackereth, “Knowledge and information needs of young people with epilepsy and their parents: mixed-method systematic review,” BMC Pediatrics, vol. 10, article 103, 2010. View at Publisher · View at Google Scholar · View at PubMed · View at Scopus
  12. M. Paul, D. M. Foreman, and L. Kent, “Out-patient clinic attendance consent from children and young people: ethical aspects and practical considerations,” Clinical Child Psychology and Psychiatry, vol. 5, no. 2, pp. 203–211, 2000. View at Publisher · View at Google Scholar · View at Scopus
  13. J. Crossley and H. Davies, “Doctors' consultations with children and their parents: a model of competencies, outcomes and confounding influences,” Medical Education, vol. 39, no. 8, pp. 807–819, 2005. View at Publisher · View at Google Scholar · View at PubMed · View at Scopus
  14. M. Fischer and G. Eraut, When Doctors and Patients Talk: Making Sense of the Consultation, The Health Foundation, London, UK, 2012.
  15. S. M. Sawyer, S. Drew, M. S. Yeo, and M. T. Britto, “Adolescents with a chronic condition: challenges living, challenges treating,” The Lancet, vol. 369, no. 9571, pp. 1481–1489, 2007. View at Publisher · View at Google Scholar · View at PubMed · View at Scopus
  16. J. A. Smith, M. Jarman, and M. Osborn, “Doing interpretive phenomenological analysis,” Data Analysis, pp. 215–239, 2007. View at Google Scholar
  17. M. Sandelowski, “What ever happened to qualitative description?” Research in Nursing and Health, vol. 23, pp. 334–340, 2000. View at Google Scholar
  18. I. A. Hughes, C. Houk, S. F. Ahmed, and P. A. Lee, “Consensus statement on management of intersex disorders,” Archives of Disease in Childhood, vol. 91, no. 7, pp. 554–563, 2006. View at Publisher · View at Google Scholar · View at PubMed · View at Scopus
  19. P. Gee, “Approach and sensibility: a personal reflection on analysis and writing using interpretive phenomenological analysis,” Qualitative Methods in Psychology Bulletin, vol. 11, pp. 8–22, 2011. View at Google Scholar
  20. K. Curtis, K. Liabo, H. Roberts, and M. Barker, “Consulted but not heard: a qualitative study of young people's views of their local health service,” Health Expectations, vol. 7, no. 2, pp. 149–156, 2004. View at Publisher · View at Google Scholar · View at PubMed · View at Scopus
  21. I. Coyne and L. Kirwan, “Ascertaining children's wishes and feelings about hospital life,” Journal of Child Health Care, vol. 16, no. 3, pp. 293–304, 2012. View at Publisher · View at Google Scholar · View at PubMed · View at Scopus
  22. S. R. Grover, “Gynaecological management,” in Disorders of Sex Development: An Integrated Approach to Management, J. M. Hutson, G. L. Warne, and S. R. Grover, Eds., pp. 241–248, Springer, 2012. View at Google Scholar
  23. K. Karkazis, Fixing Sex: Intersex, Medical Authority, and Lived Experience, Duke University Press, 2008. View at Publisher · View at Google Scholar
  24. N. Kimberley, J. M. Hutson, B. R. Southwell, and S. R. Grover, “Well-being and sexual function outcomes in women with vaginal agenesis,” Fertility and Sterility, vol. 95, no. 1, pp. 238–241, 2011. View at Publisher · View at Google Scholar · View at PubMed · View at Scopus
  25. S. Kirk, S. Beatty, P. Callery, J. Gellatly, L. Milnes, and S. Pryjmachuk, “The effectiveness of self-care support interventions for children and young people with long-term conditions: a systematic review,” Child: Care, Health and Development, vol. 39, no. 3, pp. 305–324, 2013. View at Publisher · View at Google Scholar · View at PubMed · View at Scopus