Table of Contents Author Guidelines Submit a Manuscript
AIDS Research and Treatment
Volume 2016, Article ID 2607249, 10 pages
http://dx.doi.org/10.1155/2016/2607249
Research Article

Perceptions and Experiences about Self-Disclosure of HIV Status among Adolescents with Perinatal Acquired HIV in Poor-Resourced Communities in South Africa

1School of Public Health, Department of Environmental and Occupational Heath, Sefako Makgatho Health Sciences University, Pretoria, South Africa
2School of Public Health, Department of Biostatistics, Sefako Makgatho Health Sciences University, Pretoria, South Africa

Received 31 May 2016; Accepted 11 August 2016

Academic Editor: David Katzenstein

Copyright © 2016 Sphiwe Madiba and Mathildah Mokgatle. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

Linked References

  1. G. Fatti, P. Bock, A. Grimwood, and B. Eley, “Increased vulnerability of rural children on antiretroviral therapy attending public health facilities in South Africa: a retrospective cohort study,” Journal of the International AIDS Society, vol. 13, article 46, 2010. View at Publisher · View at Google Scholar · View at Scopus
  2. C. Foster and S. Fidler, “Optimizing antiretroviral therapy in adolescents with perinatally acquired HIV-1 infection,” Expert Review of Anti-Infective Therapy, vol. 8, no. 12, pp. 1403–1416, 2010. View at Publisher · View at Google Scholar · View at Scopus
  3. D. Evans, C. Menezes, K. Mahomed et al., “Treatment outcomes of HIV-infected adolescents attending public-sector HIV clinics across Gauteng and Mpumalanga, South Africa,” AIDS Research and Human Retroviruses, vol. 29, no. 6, pp. 892–900, 2013. View at Publisher · View at Google Scholar · View at Scopus
  4. W. Mavhu, J. Berwick, P. Chirawu et al., “Enhancing Psychosocial Support for HIV Positive Adolescents in Harare, Zimbabwe,” PLoS ONE, vol. 8, no. 7, Article ID e70254, 2013. View at Publisher · View at Google Scholar · View at Scopus
  5. WHO, Guideline on HIV Disclosure Counselling for Children up to 12 Years of Age, WHO, Geneva, Switzerland, 2011.
  6. V. Midtbø, V. Shirima, M. Skovdal, and M. Daniel, “How disclosure and antiretroviral therapy help HIV-infected adolescents in sub-Saharan Africa cope with stigma,” African Journal of AIDS Research, vol. 11, no. 3, pp. 261–271, 2012. View at Publisher · View at Google Scholar · View at Scopus
  7. L. Vaz, A. Corneli, J. Dulyx et al., “The process of HIV status disclosure to HIV-positive youth in Kinshasa, Democratic Republic of the Congo,” AIDS Care: Psychological and Socio-Medical Aspects of AIDS/HIV, vol. 20, no. 7, pp. 842–852, 2008. View at Publisher · View at Google Scholar · View at Scopus
  8. L. M. E. Vaz, E. Eng, S. Maman, T. Tshikandu, and F. Behets, “Telling children they have HIV: lessons learned from findings of a qualitative study in sub-saharan Africa,” AIDS Patient Care and STDs, vol. 24, no. 4, pp. 247–256, 2010. View at Publisher · View at Google Scholar · View at Scopus
  9. S. Bakeera-Kitaka, G. Siu, A. Dhabangi, and A. Kambugu, “Lived experiences, perceptions and treatment disclosure by HIV infected adolescents at the Transition Clinic of Mulago Hospital, Kampala,” in Proceedings of the 18th International AIDS Conference, Abstract TUAX0103, Vienna, Austria, 2010.
  10. H. Birungi, F. Obare, J. F. Mugisha, H. Evelia, and J. Nyombi, “Preventive service needs of young people perinatally infected with HIV in Uganda,” AIDS Care, vol. 21, no. 6, pp. 725–731, 2009. View at Publisher · View at Google Scholar · View at Scopus
  11. B. Lee and P. Oberdorfer, “Risk-taking behaviors among vertically HIV-infected adolescents in northern Thailand,” Journal of the International Association of Physicians in AIDS Care (JIAPAC), vol. 8, no. 4, pp. 221–228, 2009. View at Publisher · View at Google Scholar · View at Scopus
  12. J. Hogwood, T. Campbell, and S. Butler, “I wish I could tell you but I can't: adolescents with perinatally acquired HIV and their dilemmas around self-disclosure,” Clinical Child Psychology and Psychiatry, vol. 18, no. 1, pp. 44–60, 2013. View at Publisher · View at Google Scholar · View at Scopus
  13. M. Evangeli and C. Foster, “Who, then what? the need for interventions to help young people with perinatally acquired HIV disclose their HIV status to others,” AIDS, vol. 28, no. 3, pp. S343–S346, 2014. View at Publisher · View at Google Scholar · View at Scopus
  14. C. A. Thoth, C. Tucker, M. Leahy, and S. M. Stewart, “Self-disclosure of serostatus by youth who are HIV-positive: a review,” Journal of Behavioral Medicine, vol. 37, no. 2, pp. 276–288, 2014. View at Publisher · View at Google Scholar · View at Scopus
  15. C. Campbell, M. Skovdal, Z. Mupambireyi, C. Madanhire, C. Nyamukapa, and S. Gregson, “Building adherence-competent communities: factors promoting children's adherence to anti-retroviral HIV/AIDS treatment in rural Zimbabwe,” Health & Place, vol. 18, no. 2, pp. 123–131, 2012. View at Publisher · View at Google Scholar · View at Scopus
  16. G. Mburu, I. Hodgson, S. Kalibala et al., “Adolescent HIV disclosure in Zambia: barriers, facilitators and outcomes,” Journal of the International AIDS Society, vol. 17, Article ID 18866, 2014. View at Publisher · View at Google Scholar · View at Scopus
  17. S. L. Marhefka, L. J. Koenig, S. Allison et al., “Family experiences with pediatric antiretroviral therapy: responsibilities, barriers, and strategies for remembering medications,” AIDS Patient Care and STDs, vol. 22, no. 8, pp. 637–647, 2008. View at Publisher · View at Google Scholar · View at Scopus
  18. G. Thupayagale-Tshweneagae and S. Benedict, “The burden of secrecy among South African adolescents orphaned by HIV and AIDS,” Issues in Mental Health Nursing, vol. 32, no. 6, pp. 355–358, 2011. View at Publisher · View at Google Scholar · View at Scopus
  19. P.-A. Michaud, J.-C. Suris, L. R. Thomas, C. Kahlert, C. Rudin, and J.-J. Cheseaux, “To say or not to say: a qualitative study on the disclosure of their condition by human immunodeficiency virus-positive adolescents,” Journal of Adolescent Health, vol. 44, no. 4, pp. 356–362, 2009. View at Publisher · View at Google Scholar · View at Scopus
  20. R. C. Vreeman, W. M. Nyandiko, S. O. Ayaya, E. G. Walumbe, D. G. Marrero, and T. S. Inui, “The perceived impact of disclosure of pediatric HIV status on pediatric antiretroviral therapy adherence, child well-being, and social relationships in a resource-limited setting,” AIDS Patient Care and STDs, vol. 24, no. 10, pp. 639–649, 2010. View at Publisher · View at Google Scholar · View at Scopus
  21. J. W. Creswell, Qualitative Inquiry and Research Method: Choosing Among Five Approaches, Sage, Thousand Oaks, Calif, USA, 2nd edition, 2007.
  22. M. Daniel, “Keeping the secret: how HIV-positive children in Iringa, Tanzania, respond to the perceived need for silence and secrecy,” Journal of Child & Adolescent Mental Health, vol. 27, no. 1, pp. 11–23, 2015. View at Publisher · View at Google Scholar · View at Scopus
  23. M. Mutumba, V. Musiime, A. C. Tsai et al., “Disclosure of HIV status to perinatally infected adolescents in Urban Uganda: a qualitative study on timing, process, and outcomes,” Journal of the Association of Nurses in AIDS Care, vol. 26, no. 4, pp. 472–484, 2015. View at Publisher · View at Google Scholar · View at Scopus
  24. K. Beima-Sofie, G. John-Stewart, B. Shah, D. Wamalwa, E. Maleche-Obimbo, and M. Kelley, “Using health provider insights to inform pediatric HIV disclosure: a qualitative study and practice framework from kenya,” AIDS Patient Care and STDs, vol. 28, no. 10, pp. 555–564, 2014. View at Publisher · View at Google Scholar · View at Scopus
  25. K. K. Kidia, Z. Mupambireyi, L. Cluver, C. E. Ndhlovu, M. Borok, and R. A. Ferrand, “HIV status disclosure to perinatally-infected adolescents in Zimbabwe: a qualitative study of adolescent and healthcare worker perspectives,” PLoS ONE, vol. 9, no. 1, Article ID e87322, 2014. View at Publisher · View at Google Scholar · View at Scopus
  26. S. Madiba and M. Mokgatle, “Health care workers' perspectives about disclosure to HIV-infected children; cross-sectional survey of health facilities in Gauteng and Mpumalanga provinces, South Africa,” PeerJ, vol. 3, article e893, 2015. View at Google Scholar
  27. R. Salter-Goldie, S. M. King, M. L. Smith et al., “Disclosing HIV diagnosis to infected children: a health care team's approach,” Vulnerable Children and Youth Studies, vol. 2, no. 1, pp. 12–16, 2007. View at Publisher · View at Google Scholar · View at Scopus
  28. G. Gachanja, G. J. Burkholder, and A. Ferraro, “HIV-positive parents, HIV-positive children, and HIV-negative children's perspectives on disclosure of a parent's and child's illness in Kenya,” PeerJ, vol. 2, article e486, 2014. View at Publisher · View at Google Scholar · View at Scopus
  29. J. A. Denison, H. Banda, A. C. Dennis et al., “‘The sky is the limit’: adhering to antiretroviral therapy and HIV self-management from the perspectives of adolescents living with HIV and their adult caregivers,” Journal of the International AIDS Society, vol. 18, no. 1, Article ID 19358, 2015. View at Publisher · View at Google Scholar · View at Scopus
  30. M. Di Risio, P. J. Ballantyne, S. E. Read et al., “‘HIV isn't me…’: HIV+ adolescents' experiences in a positive context of support and treatment,” AIDS Care, vol. 23, no. 6, pp. 694–699, 2011. View at Google Scholar
  31. G. Silva-Suarez, “Life experiences of youth who were born with HIV infection in puerto rico: the voices of young survivors,” FIU Electronic Theses and Dissertations, Florida International University, Miami, Fla, USA, 2014. View at Google Scholar