Measuring Family Members’ Satisfaction with End-of-Life Care in Long-Term Care: Adaptation of the CANHELP Lite Questionnaire

Table 5

Family members’ importance ratings of elements related to quality end-of-life care in long-term care home.

	Frequency (%)
	Not	Somewhat important
Characteristics of LTC staff
(1) Staff are compassionate/supportive of resident	—	.7	99.2
(2) Staff are compassionate/supportive of family member	2.9	23.9	73.2
Illness management
(3) Tests/treatments are given in the LTC home	—	2.2	97.8
(4) Physical symptoms adequately assessed/managed	—	.7	98.5
(5) Emotional problems adequately assessed/controlled	—	3.0	96.3
(6) Help with personal care when needed	—	.7	99.3
(7) Care received when family not there	—	1.5	98.5
(8) Health care workers work as a team	—	—	100
(9) Management of financial costs	1.5	6.0	89.6
(10) Environment is calm and restful	—	6.0	94.0
(11) The care/treatment is consistent with wishes	1.4	3.7	94.0
Communication and decision-making
(12) Staff communicate to you straightforwardly/honestly	.7	2.2	97.0
(13) Receive consistent information about resident’s condition	.7	4.5	94.8
(14) The LTC staff listen to what you say	.7	1.5	97.0
(15) Discuss options about hospital transfer with the staff	2.2	4.5	90.3
Relationship with doctors
(16) LTC home doctor takes a personal interest in relative	2.2	3.7	93.3
(17) LTC home doctor available when needed	2.2	4.5	90.3
(18) Trust and confidence in the doctor	.7	2.2	95.6
Your involvement
(19) Discuss options with staff about life sustaining technologies	3.7	4.5	90.3
(20) You discuss palliative/comfort care measures with staff	1.4	3.0	90.2
(21) Your role in decision-making about medical care LTC home	1.4	3.0	94.8
(22) Discuss options with staff about relative’s EOLC wishes	3.4	5.2	87.3

are abbreviated; full wording can be seen in Figure 1. percentage of “not at all” and “not very” important ratings. percentage of “very” and “extremely” important ratings.
Note. Not all frequencies sum to 100 because of some missing data/no response.