Table 1: Domains and some possible roles of expert patients.

ClinicalHelp disease management (for themselves and/or other patients, particularly for chronic or rare conditions)
Identification of patient needs and communication of their values, perceptions, and preferences
Identify and report on possible side effects of treatments
Support interventions from physicians and other health care professionals, particularly in primary care—help translation of guidelines into care

EducationalEducation of other patients
Contribute to updating knowledge of health professionals
Help develop decision aids
Contribute to the development and evaluation of educational programs
Participate in patients’ versions of guidelines or directly contribute to current medical guidelines
Get involved in an internet chat or blog or in a community of practice

ResearchAdvise on study designs
Contribute to evaluation of new treatments
Help choose research questions and define patient-relevant outcomes
Help to design and implement end-of-study knowledge translation plans

OthersLobby to health care authorities
Represent patients in various committees
Participate in activities of patients’ associations
Contribute to the development of support groups