The Registry and Follow-Up of Complex Pediatric Therapies Program of Western Canada: A Mechanism for Service, Audit, and Research after Life-Saving Therapies for Young Children

Table 4

Selected outcomes of neonates having complex cardiac surgery for congenital heart disease followed by the Complex Pediatric Therapies Follow-up Program.

Group (years, n)	2-year survival	MDI (mean, SD)	PDI (mean, SD)
ASO (1996–2004; 𝑛=88) [54]	99%	89 (17)	92 (15)
TAPVC (1996–2004; 𝑛=32) [60]	97%	87 (16)	89 (13)
Norwood MBTS (1996–2002; 𝑛=62) [58]	48%	79 (18)	67 (19)
Norwood RVPA (2002–2005; 𝑛=32) [58]	81%	85 (18)	78 (18)
IAA (1996–2006; 𝑛=27) [66]	96.5%	76 (17)	72 (17)
Deletion22q11.2 (1996–2004; 𝑛=16) [7]	81%	66 (11)	55 (9)
Cardiac ECLS (2002–2004; 𝑛=39) [63]	41%	73 (16)	—
E-CPR subgroup (𝑛=9)	33%	—	—
Heart transplant under age 6 yr (1999–2006; 𝑛=33) [67]	88%	Delay 34%	Delay 52%

ASO: arterial switch operation for transposition of the great arteries; TAPVC: total anomalous pulmonary venous correction; MBTS: modified Blalock-Taussig shunt; RVPA: right ventricle-to-pulmonary artery shunt; IAA: correction of interrupted aortic arch; ECLS: extracorporeal life support; E-CPR: ECLS started during ongoing chest compressions for refractory cardiac arrest; MDI: Mental Developmental Index; PDI: Psychomotor Developmental Index.