Table of Contents Author Guidelines Submit a Manuscript
International Journal of Alzheimer’s Disease
Volume 2013, Article ID 436271, 6 pages
http://dx.doi.org/10.1155/2013/436271
Research Article

Family Composition and Expressions of Family-Focused Care Needs at an Academic Memory Disorders Clinic

1Department of Gerontology, Virginia Commonwealth University, Richmond, VA 23298, USA
2Neuroscience Graduate Program, University of Southern California, Los Angeles, CA 90089, USA
3Department of Neurology, University of Virginia, Charlottesville, VA 22908, USA
4University of Alabama-Birmingham, Birmingham, AL 35294, USA

Received 30 July 2013; Revised 26 September 2013; Accepted 29 September 2013

Academic Editor: Patrizia Mecocci

Copyright © 2013 Brandalyn C. Riedel et al. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

Linked References

  1. C. P. Ferri, M. Prince, C. Brayne et al., “Global prevalence of dementia: a Delphi consensus study,” The Lancet, vol. 366, no. 9503, pp. 2112–2117, 2005. View at Publisher · View at Google Scholar · View at Scopus
  2. P. J. Whitehouse and P. V. Rabins, “Quality of life and dementia,” Alzheimer Disease and Associated Disorders, vol. 6, no. 3, pp. 135–137, 1992. View at Google Scholar · View at Scopus
  3. J. L. Mack and P. J. Whitehouse, “Quality of life in dementia: state of the art-report of the international working group for harmonization of dementia drug guidelines and the Alzheimer's society satellite meeting,” Alzheimer Disease and Associated Disorders, vol. 15, no. 2, pp. 69–71, 2001. View at Publisher · View at Google Scholar · View at Scopus
  4. S. E. Starkstein, R. Jorge, R. Mizrahi, and R. G. Robinson, “A diagnostic formulation for anosognosia in Alzheimer's disease,” Journal of Neurology, Neurosurgery and Psychiatry, vol. 77, no. 6, pp. 719–725, 2006. View at Publisher · View at Google Scholar · View at Scopus
  5. R. E. Ready and B. R. Ott, “Quality of life measures for dementia,” Health and Quality of Life Outcomes, vol. 1, article 11, 2003. View at Publisher · View at Google Scholar · View at Scopus
  6. L. Jönsson, N. Andreasen, L. Kilander et al., “Patient- and proxy-reported utility in Alzheimer disease using the EuroQoL,” Alzheimer Disease and Associated Disorders, vol. 20, no. 1, pp. 49–55, 2006. View at Publisher · View at Google Scholar · View at Scopus
  7. J. H. Karlawish, A. Zbrozek, B. Kinosian et al., “Caregivers' assessments of preference-based quality of life in Alzheimer's disease,” Alzheimer's and Dementia, vol. 4, no. 3, pp. 203–211, 2008. View at Publisher · View at Google Scholar · View at Scopus
  8. G. Naglie, “Quality of life in dementia,” Canadian Journal of Neurological Sciences, vol. 34, no. 1, pp. S57–S61, 2007. View at Google Scholar · View at Scopus
  9. P. A. Scuffham, J. A. Whitty, A. Mitchell, and R. Viney, “The use of QALY weights for QALY calculations: a review of industry submissions requesting listing on the Australian Pharmaceutical Benefits Scheme 2002-4,” PharmacoEconomics, vol. 26, no. 4, pp. 297–310, 2008. View at Publisher · View at Google Scholar · View at Scopus
  10. P. J. Neumann, “Health utilities in Alzheimer's disease and implications for cost-effectiveness analysis,” PharmacoEconomics, vol. 23, no. 6, pp. 537–541, 2005. View at Publisher · View at Google Scholar · View at Scopus
  11. M. M. Friedman, V. R. Bowden, and E. G. Jones, Family Nursing: Research, Theory, and Practice, Prentice Hall, Upper Saddle River, NJ, USA, 5th edition, 2003.
  12. L. Pearlin, H. Turner, and S. Semple, “Coping and the mediation of caregiver stress,” in Alzheimer’s Disease Treatment and Family Stress, E. Light and B. Lebowitz, Eds., pp. 198–217, DHHS, Rockville, Md, USA, 1989. View at Google Scholar
  13. Lifespan Respite: National Respite Coalition, 2010, http://chtop.org/ARCH/ARCH-National-Respite-Coalition.html.
  14. Family Caregiver Alliance, 2010, http://www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=2380.
  15. D. Poston, A. Turnbull, J. Park, H. Mannan, J. Marquis, and M. Wang, “Family quality of life: a qualitative inquiry,” Mental Retardation, vol. 41, no. 5, pp. 313–392, 2003. View at Google Scholar · View at Scopus
  16. J. A. Summers, D. J. Poston, A. P. Turnbull et al., “Conceptualizing and measuring family quality of life,” Journal of Intellectual Disability Research, vol. 49, no. 10, pp. 777–783, 2005. View at Publisher · View at Google Scholar · View at Scopus
  17. J. K. Ducharme and D. S. Geldmacher, “Family quality of life in dementia: a qualitative approach to family-identified care priorities,” Quality of Life Research, vol. 20, no. 8, pp. 1331–1335, 2011. View at Publisher · View at Google Scholar · View at Scopus
  18. D. S. Knopman, S. T. DeKosky, J. L. Cummings et al., “Practice parameter: diagnosis of dementia (an evidence-based review): report of the quality standards subcommittee of the american academy of neurology,” Neurology, vol. 56, no. 9, pp. 1143–1153, 2001. View at Google Scholar · View at Scopus
  19. J. Lofland and L. H. Lofland, Analyzing Social Settings: A Guide to Qualitative Observation and Analysis, Wadsworth Publishing, Belmont, Calif, USA, 3rd edition, 1995.
  20. B. E. Harrison, G.-R. Son, J. Kim, and A. L. Whall, “Preserved implicit memory in dementia: a potential model for care,” American Journal of Alzheimer's Disease and other Dementias, vol. 22, no. 4, pp. 286–293, 2007. View at Publisher · View at Google Scholar · View at Scopus