Research Article
The Lived Experience of Lupus Flares: Features, Triggers, and Management in an Australian Female Cohort
| | | Borderline SLE
ACR 3+1
() | SLE
ACR 4+
() | All patients
() |
| | | Number (%) | Number (%) | Number (%) |
| | Did you change your steroid levels? | 12 (57.1) | 38 (47.5) | 50 (49.50) | | Steroid adjustment by medical specialist | 8 (38.1) | 28 (35) | 36 (35.6) | | Steroid adjustment by self-management | 2 (9.5) | 12 (15) | 14 (13.9) | | P notification | 7 (33.3) | 18 (22.5) | 25 (24.8) | | “Only if bad” | 2 (9.5) | 3 (3.8) | 5 (5) | | Specialist notification | 2 (9.5) | 17 (21.3) | 19 (18.8) | | “Only if bad” | | 7 (8.8) | 7 (6.9) | | “When I see them” | 2 (9.5) | 13 (16.3) | 15 (14.9) | | Patient reported flare management method* | | | | | Medication change (not specified) | 11 (52.4) | 57 (71.3) | 68 (67.3) | | Rest | 13 (61.9) | 54 (67.5) | 67 (66.3) | | Change behaviour | 5 (23.8) | 12 (15) | 17 (16.8) | | Use of aids (heat packs, wheelchair, walker) | 2 (9.5) | 14 (17.5) | 16 (15.8) | | Pace planning | 2 (9.5) | 9 (11.3) | 11 (10.9) | | Complementary therapies | 2 (9.5) | 8 (10.0) | 10 (9.9) | | Relaxation | 1 (4.8) | 8 (10.0) | 9 (8.9) | | Diet modification | 4 (19.1) | 3 (3.8) | 7 (6.9) | | Exercise | 3 (14.1) | 2(2.5) | 5 (5) | | Go to the doctor | 1 (4.8) | 4 (5) | 5 (5) | | Ignore | 1 (4.8) | 2 (2.5) | 3 (3) | | Hobby distraction from symptom | | 1 (1.3) | 1 (1) |
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How did you manage this/these event(s)?
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