International Journal of Chronic Diseases / 2014 / Article / Tab 5

Research Article

The Lived Experience of Lupus Flares: Features, Triggers, and Management in an Australian Female Cohort

Table 5

Flare management.

Borderline SLE
ACR 3+1
()
SLE
ACR 4+
()
All patients
()

Number (%)Number (%)Number (%)

Did you change your steroid levels?12 (57.1)38 (47.5)50 (49.50)
Steroid adjustment by medical specialist8 (38.1)28 (35)36 (35.6)
Steroid adjustment by self-management2 (9.5)12 (15)14 (13.9)
P notification7 (33.3)18 (22.5)25 (24.8)
“Only if bad”2 (9.5)3 (3.8)5 (5)
Specialist notification2 (9.5)17 (21.3)19 (18.8)
“Only if bad”7 (8.8)7 (6.9)
“When I see them”2 (9.5)13 (16.3)15 (14.9)
Patient reported flare management method*
 Medication change (not specified)11 (52.4)57 (71.3)68 (67.3)
 Rest13 (61.9)54 (67.5)67 (66.3)
 Change behaviour5 (23.8)12 (15)17 (16.8)
 Use of aids (heat packs, wheelchair, walker)2 (9.5)14 (17.5)16 (15.8)
 Pace planning2 (9.5)9 (11.3)11 (10.9)
 Complementary therapies2 (9.5)8 (10.0)10 (9.9)
 Relaxation1 (4.8)8 (10.0)9 (8.9)
 Diet modification4 (19.1)3 (3.8)7 (6.9)
 Exercise3 (14.1)2(2.5)5 (5)
 Go to the doctor1 (4.8)4 (5)5 (5)
 Ignore1 (4.8)2 (2.5)3 (3)
 Hobby distraction from symptom1 (1.3)1 (1)

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