Parental Reports of Stigma Associated with Child’s Disorder of Sex Development
Table 5
Frequency of moderate to high concern on individual items reported by mothers and fathers and informant comparisons, ordered by highest percentage in the mother’s group.
Total Sample
Paired comparisona
Moderate–high concernb,c,d
P
Mothers
Fathers
(b1) I worry my child will look different from other teenagers or adults because of his/her urogenital condition.
96
61.5%
58
40.4%
46
.004*
(a3) In many people’s minds, having a urogenital condition attaches a stigma or label to my child.
96
57.3%
58
45.6%
46
ns
(a2) It really doesn’t matter what I say to people about my child’s urogenital condition, they usually have their minds made up.
96
45.8%
58
34.5%
47
ns
(b2) I worry my child won’t be/isn’t able to do things he/she wants to do because of the urogenital condition.
95
37.9%
57
26.3%
45
ns
(b5) I feel self-conscious about my child’s urogenital condition.
96
29.2%
58
15.8%
46
ns
(b6) People treat me the way they always have when they find out I have a child with a urogenital condition.
91
27.5%
57
32.1%
44
ns
(b3) I feel that I am odd or abnormal because of my child’s urogenital condition.
96
19.8%
58
10.5%
46
ns
(b7) I feel embarrassed about my child’s urogenital condition.
95
15.8%
56
10.7%
44
ns
(a1) People who know that my child has a urogenital condition treat him/her differently.
96
15.6%
58
17.2%
47
ns
(b4) There have been times when I have felt ashamed about having a child with a urogenital condition.
96
12.5%
58
6.9%
47
ns
(b9) People say negative or unkind things about me behind my back because I have a child with a urogenital condition.
94
8.5%
57
0%
46
ns
(b8) People look down on me because I have a child with a urogenital condition.
94
6.4%
56
3.6%
45
ns
(b10) I have been excluded from social gatherings because I have a child with a urogenital condition.
94
4.3%
56
0%
45
ns
McNemar test bModerate–high concern = response of “3,” “4,” or “5”; cscale for items in Part A: 1 = “strongly disagree,” 2 = “disagree,” 3 = “neither agree nor disagree,” 4 = “agree,” 5 = “strongly agree”; dscale for items in Part B: 1 = “never true,” 2 = “seldom true,” 3 = “sometimes true,” 4 = “usually true,” 5 = “always true.” *Denoting P values that remain statistically significant after set-wise Bonferroni correction (or that are <.05 when correction not needed).
