Table 4: Questions concerning educational and support programs. Data are presented as frequency and valid percent (%) or as mean ± standard deviation.

VariableUSGermany value

Topics for educational and support programs the patients are interested in (multiple answers possible)()()
Communicating with other people63 (75.0)36 (52.9)0.006
Relaxation37 (44.0)25 (36.8)0.409
Nutritional advice43 (51.2)31 (45.6)0.518
Stress management51 (60.7)23 (33.8)0.001
Exercise44 (52.4)31 (45.6)0.420
Health care bureaucracy/financial issues30 (35.7)23 (33.8)0.865
Coping with daily hassles31 (36.9)21 (30.9)0.493
Others20 (23.8)16 (24.2)1.000
Type of program the patients are interested in (multiple answers possible)()()
Internet-based program75 (89.3)46 (75.4)0.040
In-person seminars: weekend meetings39 (46.4)21 (34.4)0.173
In-person seminars: meetings during the week30 (35.7)13 (21.3)0.068
Duration of the program()()
Several hours36 (42.9)22 (36.7)0.494
Entire day11 (13.1)10 (16.7)0.634
Entire weekend2 (2.4)2 (3.3)1.000a
Flexible timing (available through internet courses only)35 (41.7)26 (43.3)0.866
How far would the patients travel to attend such an in-person seminar?()()
Milesb168.0 ± 468.0146.9 ± 49.540.027
How many patients would be willing to pay for a support program?()()
Yes51 (60.7)31 (52.5)0.391
No33 (39.3)28 (47.5)
How much would the patients be willing to pay for a support program?()()
Dollar150.9 ± 243.35100.7 ± 196.310.501
Euro137.0 ± 220.8191.3 ± 178.130.501

aFisher’s exact test. b1 mile = 1.609 kilometers.