Support Needs of Patients with Cushing’s Disease and Cushing’s Syndrome: Results of a Survey Conducted in Germany and the USA

Table 4

Questions concerning educational and support programs. Data are presented as frequency and valid percent (%) or as mean ± standard deviation.

Variable	US	Germany	value
Topics for educational and support programs the patients are interested in (multiple answers possible)	()	()
Communicating with other people	63 (75.0)	36 (52.9)	0.006
Relaxation	37 (44.0)	25 (36.8)	0.409
Nutritional advice	43 (51.2)	31 (45.6)	0.518
Stress management	51 (60.7)	23 (33.8)	0.001
Exercise	44 (52.4)	31 (45.6)	0.420
Health care bureaucracy/financial issues	30 (35.7)	23 (33.8)	0.865
Coping with daily hassles	31 (36.9)	21 (30.9)	0.493
Others	20 (23.8)	16 (24.2)	1.000
Type of program the patients are interested in (multiple answers possible)	()	()
Internet-based program	75 (89.3)	46 (75.4)	0.040
In-person seminars: weekend meetings	39 (46.4)	21 (34.4)	0.173
In-person seminars: meetings during the week	30 (35.7)	13 (21.3)	0.068
Duration of the program	()	()
Several hours	36 (42.9)	22 (36.7)	0.494
Entire day	11 (13.1)	10 (16.7)	0.634
Entire weekend	2 (2.4)	2 (3.3)	1.000^a
Flexible timing (available through internet courses only)	35 (41.7)	26 (43.3)	0.866
How far would the patients travel to attend such an in-person seminar?	()	()
Miles^b	168.0 ± 468.01	46.9 ± 49.54	0.027
How many patients would be willing to pay for a support program?	()	()
Yes	51 (60.7)	31 (52.5)	0.391
No	33 (39.3)	28 (47.5)
How much would the patients be willing to pay for a support program?	()	()
Dollar	150.9 ± 243.35	100.7 ± 196.31	0.501
Euro	137.0 ± 220.81	91.3 ± 178.13	0.501

^aFisher’s exact test. ^b1 mile = 1.609 kilometers.