Table of Contents
International Journal of Family Medicine
Volume 2013, Article ID 967872, 8 pages
http://dx.doi.org/10.1155/2013/967872
Research Article

Everyday Living with Diabetes Described by Family Members of Adult People with Type 1 Diabetes

School of Health Sciences, Nursing Science, University of Tampere, Kuntokatu 4, 33520 Tampere, Finland

Received 10 June 2013; Revised 17 November 2013; Accepted 21 November 2013

Academic Editor: Christos D. Lionis

Copyright © 2013 Tuula-Maria Rintala et al. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

Linked References

  1. L. A. Gonder-Frederick, D. J. Cox, and L. M. Ritterband, “Diabetes and behavioral medicine: the second decade,” Journal of Consulting and Clinical Psychology, vol. 70, no. 3, pp. 611–625, 2002. View at Publisher · View at Google Scholar · View at Scopus
  2. R. Salman, “Empowerment: an approach for diabetes education,” Bahrain Medical Bulletin, vol. 3, pp. 133–140, 2005. View at Google Scholar · View at Scopus
  3. R. A. Jones, S. W. Utz, I. C. Williams et al., “Family interactions among african americans diagnosed with type 2 diabetes,” The Diabetes Educator, vol. 34, no. 2, pp. 318–326, 2008. View at Publisher · View at Google Scholar · View at Scopus
  4. B. Karlsen, T. Idsoe, B. R. Hanestad, T. Murberg, and E. Bru, “Perceptions of support, diabetes-related coping and psychological well-being in adults with type 1 and type 2 diabetes,” Psychology, Health and Medicine, vol. 9, no. 1, pp. 53–70, 2004. View at Publisher · View at Google Scholar · View at Scopus
  5. B. Karlsen, B. Oftedal, and E. Bru, “The relationship between clinical indicators, coping styles, perceived support and diabetes-related distress among adults with type 2 diabetes,” Journal of Advanced Nursing, vol. 68, no. 2, pp. 391–401, 2012. View at Publisher · View at Google Scholar · View at Scopus
  6. M. Kelo, M. Martikainen, and E. Eriksson, “Self-care of school-age children with diabetes: an integrative review,” Journal of Advanced Nursing, vol. 67, no. 10, pp. 2096–2108, 2011. View at Publisher · View at Google Scholar · View at Scopus
  7. Å. Kneck, B. Klang, and I. Fagerberg, “Learning to live with diabetes—integrating an illness or objectifying a disease,” Journal of Advanced Nursing, 2012. View at Publisher · View at Google Scholar · View at Scopus
  8. J. Nagelkerk, K. Reick, and L. Meengs, “Perceived barriers and effective strategies to diabetes self-management,” Journal of Advanced Nursing, vol. 54, no. 2, pp. 151–158, 2006. View at Publisher · View at Google Scholar · View at Scopus
  9. T. A. Armour, S. L. Norris, L. Jack Jr., X. Zhang, and L. Fisher, “The effectiveness of family interventions in people with diabetes mellitus: a systematic review,” Diabetic Medicine, vol. 22, no. 10, pp. 1295–1305, 2005. View at Publisher · View at Google Scholar · View at Scopus
  10. C. Dashiff, T. Hardeman, and R. McLain, “Parent-adolescent communication and diabetes: an integrative review,” Journal of Advanced Nursing, vol. 62, no. 2, pp. 140–162, 2008. View at Publisher · View at Google Scholar · View at Scopus
  11. A. I. Carcone, D. A. Ellis, A. Weisz, and S. Naar-King, “Social support for diabetes illness management: supporting adolescents and caregivers,” Journal of Developmental and Behavioral Pediatrics, vol. 32, no. 8, pp. 581–590, 2011. View at Publisher · View at Google Scholar · View at Scopus
  12. B. J. Leonard, Y.-P. Jang, K. Savik, and M. A. Plumbo, “Adolescents with type 1 diabetes: family functioning and metabolic control,” Journal of Family Nursing, vol. 11, no. 2, pp. 102–121, 2005. View at Google Scholar · View at Scopus
  13. O. Hsin, A. M. La Greca, J. Valenzuela, C. T. Moine, and A. Delamater, “Adherence and glycemic control among hispanic youth with type 1 diabetes: role of family involvement and acculturation,” Journal of Pediatric Psychology, vol. 35, no. 2, pp. 156–166, 2010. View at Publisher · View at Google Scholar · View at Scopus
  14. L. Keough, S. Sullivan-Bolyai, S. Crawford, L. Schilling, and J. Dixon, “Self-management of type 1 diabetes across adolescence,” The Diabetes Educator, vol. 37, no. 4, pp. 486–500, 2011. View at Publisher · View at Google Scholar · View at Scopus
  15. E. A. Beverly and L. A. Wray, “The role of collective efficacy in exercise adherence: a qualitative study of spousal support and type 2 diabetes management,” Health Education Research, vol. 25, no. 2, pp. 211–223, 2010. View at Publisher · View at Google Scholar · View at Scopus
  16. K. Ridge, J. Treasure, A. Forbes, S. Thomas, and K. Ismail, “Themes elicited during motivational interviewing to improve glycaemic control in adults with type1 diabetes mellitus,” Diabetic Medicine, vol. 29, no. 1, pp. 148–152, 2012. View at Publisher · View at Google Scholar · View at Scopus
  17. S. Bowes, L. Lowes, J. Warner, and J. W. Gregory, “Chronic sorrow in parents of children with type 1 diabetes,” Journal of Advanced Nursing, vol. 65, no. 5, pp. 992–1000, 2009. View at Publisher · View at Google Scholar · View at Scopus
  18. M. Marshall, B. Carter, K. Rose, and A. Brotherton, “Living with type 1 diabetes: perceptions of children and their parents,” Journal of Clinical Nursing, vol. 18, no. 12, pp. 1703–1710, 2009. View at Publisher · View at Google Scholar · View at Scopus
  19. A. Wennick and I. Hallström, “Families' lived experience one year after a child was diagnosed with type 1 diabetes,” Journal of Advanced Nursing, vol. 60, no. 3, pp. 299–307, 2007. View at Publisher · View at Google Scholar · View at Scopus
  20. P. White, S. M. Smith, and T. O'Dowd, “Living with type 2 diabetes: a family perspective,” Diabetic Medicine, vol. 24, no. 7, pp. 796–801, 2007. View at Publisher · View at Google Scholar · View at Scopus
  21. R. Stödberg, H. Sunvisson, and G. Ahlström, “Lived experience of significant others of persons with diabetes,” Journal of Clinical Nursing B, vol. 16, no. 7, pp. 215–222, 2007. View at Publisher · View at Google Scholar · View at Scopus
  22. B. Lohri-Posey, “Middle-aged appalachians living with diabetes mellitus: a family affair,” Family and Community Health, vol. 29, no. 3, pp. 214–220, 2006. View at Google Scholar · View at Scopus
  23. H. V. Jørgensen, U. Pedersen-Bjergaard, Å. K. Rasmussen, and K. Borch-Johnsen, “The impact of severe hypoglycemia and impaired awareness of hypoglycemia on relatives of patients with type 1 diabetes,” Diabetes Care, vol. 26, no. 4, pp. 1106–1109, 2003. View at Publisher · View at Google Scholar · View at Scopus
  24. P. White, S. M. Smith, D. Hevey, and T. O'Dowd, “Understanding type 2 diabetes: including the family member's perspective,” The Diabetes Educator, vol. 35, no. 5, pp. 810–817, 2009. View at Publisher · View at Google Scholar · View at Scopus
  25. L. Fisher, C. A. Chesla, M. M. Skaff, J. T. Mullan, and R. A. Kanter, “Depression and anxiety among partners of European-American and Latino patients with type 2 diabetes,” Diabetes Care, vol. 25, no. 9, pp. 1564–1570, 2002. View at Publisher · View at Google Scholar · View at Scopus
  26. K. J. August, K. S. Rook, M. A. Parris Stephens, and M. M. Franks, “Are spouses of chronically ill partners burdened by exerting health-related social control?” Journal of Health Psychology, vol. 16, no. 7, pp. 1109–1119, 2011. View at Publisher · View at Google Scholar · View at Scopus
  27. E. Orvik, L. Ribu, and O. E. Johansen, “Spouses' educational needs and perceptions of health in partners with type 2 diabetes,” European Diabetes Nursing, vol. 7, no. 2, pp. 63–69, 2010. View at Publisher · View at Google Scholar · View at Scopus
  28. C. Sparud-Lundin, I. Öhrn, and E. Danielson, “Redefining relationships and identity in young adults with type 1 diabetes,” Journal of Advanced Nursing, vol. 66, no. 1, pp. 128–138, 2010. View at Publisher · View at Google Scholar · View at Scopus
  29. T. -M. Rintala, P. Jaatinen, E. Paavilainen, and P. Åstedt-Kurki, “Interrelation between adult persons with diabetes and their family: a systematic review of the literature,” Journal of Family Nursing, vol. 19, no. 1, pp. 3–28, 2013. View at Google Scholar
  30. J. Corbin and A. L. Strauss, Basics of Qualitative Research Techniques and Procedures for Developing Grounded Theory, Sage, Los Angeles, Calif, USA, 2008.
  31. K. Charmaz, Constructing Grounded Theory a Practical Guide through Qualitative Analysis, Sage, Thousand Oaks, Calif, USA, 2006.
  32. B. Taylor and H. De Vocht, “Interviewing separately or as couples? Considerations of authenticity of method,” Qualitative Health Research, vol. 21, no. 11, pp. 1576–1587, 2011. View at Publisher · View at Google Scholar · View at Scopus
  33. P. Åstedt-Kurki, E. Paavilainen, and K. Lehti, “Methodological issues in interviewing families in family nursing research,” Journal of Advanced Nursing, vol. 35, no. 2, pp. 288–293, 2001. View at Publisher · View at Google Scholar · View at Scopus
  34. A. Strauss and J. Corbin, Basics of Qualitative Research: Techniques and Procedures for Developing Grounded Theory, Sage, London, UK, 1998.
  35. R. F. Chiovitti and N. Piran, “Rigour and grounded theory research,” Journal of Advanced Nursing, vol. 44, no. 4, pp. 427–435, 2003. View at Publisher · View at Google Scholar · View at Scopus
  36. A. Cooney, “Rigour and grounded theory,” Nurse Researcher, vol. 18, no. 4, pp. 17–22, 2011. View at Google Scholar · View at Scopus
  37. S. Nam, C. Chesla, N. A. Stotts, L. Kroon, and S. L. Janson, “Barriers to diabetes management: patient and provider factors,” Diabetes Research and Clinical Practice, vol. 93, no. 1, pp. 1–9, 2011. View at Publisher · View at Google Scholar · View at Scopus
  38. A. J. Ahola and P. H. Groop, “Barriers to self-management of diabetes,” Diabetic Medicine, vol. 30, pp. 413–420, 2013. View at Google Scholar
  39. D. K. King, R. E. Glasgow, D. J. Toobert et al., “Self-efficacy, problem solving, and social-environmental support are associated with diabetes self-management behaviors,” Diabetes Care, vol. 33, no. 4, pp. 751–753, 2010. View at Publisher · View at Google Scholar · View at Scopus
  40. A. Gherman, J. Schnur, R. Sassu, I. Veresiu, and D. David, “How are adherent people more likely to think?: a meta-analysis of health beliefs and diabetes self-care,” The Diabetes Educator, vol. 37, no. 3, pp. 392–408, 2011. View at Publisher · View at Google Scholar · View at Scopus
  41. W. A. Fisher, T. Kohut, H. Schachner, and P. Stenger, “Understanding self-monitoring of blood glucose among individuals with type 1 and type 2 diabetes: an information-motivation-behavioral skills analysis,” The Diabetes Educator, vol. 37, no. 1, pp. 85–94, 2011. View at Publisher · View at Google Scholar · View at Scopus
  42. K. K. Burns, A. Nicolucci, R. I. G. Holt et al., “Educational and Psychological Issues Diabetes Attitudes, Wishes and Needs Second Study (DAWN2TM): cross-national benchmarking indicators for family members living with people with diabetes,” Diabetic Medicine, vol. 30, no. 7, pp. 778–788, 2013. View at Google Scholar
  43. M. DeBono and E. Cachia, “The impact of diabetes on psychological well being and quality of life. The role of patient education,” Psychology, Health and Medicine, vol. 12, no. 5, pp. 545–555, 2007. View at Publisher · View at Google Scholar · View at Scopus
  44. A.-S. Brazeau, R. Rabasa-Lhoret, I. Strychar, and H. Mircescu, “Barriers to physical activity among patients with type 1 diabetes,” Diabetes Care, vol. 31, no. 11, pp. 2108–2109, 2008. View at Publisher · View at Google Scholar · View at Scopus
  45. A. Haugstvedt, T. Wentzel-Larsen, M. Graue, O. Søvik, and B. Rokne, “Fear of hypoglycaemia in mothers and fathers of children with type 1 diabetes is associated with poor glycaemic control and parental emotional distress: a population-based study,” Diabetic Medicine, vol. 27, no. 1, pp. 72–78, 2010. View at Publisher · View at Google Scholar · View at Scopus
  46. F. Wu, J. Juang, and M. C. Yeh, “The dilemma of diabetic patients living with hypoglycaemia,” Journal of Clinical Nursing, vol. 20, no. 15, pp. 2277–2285, 2011. View at Google Scholar