Table of Contents
International Journal of Family Medicine
Volume 2014 (2014), Article ID 678127, 6 pages
http://dx.doi.org/10.1155/2014/678127
Research Article

Measuring Staff Empowerment Regarding Health Care for Clients with Intellectual Disabilities

1Department of Family Medicine, Boston University School of Medicine, Dowling 5, 771 Albany Street, Boston, MA 02118, USA
2Department of Community Health Sciences, Boston University School of Public Health, 801 Massachusetts Avenue, Boston, MA 02118, USA
3Department of Biostatistics, Boston University School of Public Health, 715 Albany Street, Boston, MA 02118, USA

Received 3 October 2013; Revised 9 January 2014; Accepted 12 January 2014; Published 25 February 2014

Academic Editor: Jens Søndergaard

Copyright © 2014 Joanne Wilkinson et al. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

Linked References

  1. M. P. Janicki, A. J. Dalton, C. M. Henderson, and P. W. Davidson, “Mortality and morbidity among older adults with intellectual disability: health services considerations,” Disability and Rehabilitation, vol. 21, no. 5-6, pp. 284–294, 1999. View at Publisher · View at Google Scholar · View at Scopus
  2. G. L. Krahn, L. Hammond, and A. Turner, “A cascade of disparities: health and health care access for people with intellectual disabilities,” Mental Retardation and Developmental Disabilities Research Reviews, vol. 12, no. 1, pp. 70–82, 2006. View at Publisher · View at Google Scholar · View at Scopus
  3. H. Ouellette-Kuntz, “Understanding health disparities and inequities faced by individuals with intellectual disabilities,” Journal of Applied Research in Intellectual Disabilities, vol. 18, no. 2, pp. 113–121, 2005. View at Publisher · View at Google Scholar · View at Scopus
  4. T. Iacono and G. Sutherland, “Health screening and developmental disabilities,” Journal of Practice and Policy in Intellectual Disabilities, vol. 3, no. 3, pp. 155–163, 2006. View at Google Scholar
  5. R. G. Jones and M. P. Kerr, “A randomized control trial of an opportunistic health screening tool in primary care for people with intellectual disability,” Journal of Intellectual Disability Research, vol. 41, no. 5, pp. 409–415, 1997. View at Google Scholar · View at Scopus
  6. W. F. Sullivan, J. Heng, D. Cameron et al., “Consensus guidelines for primary health care of adults with developmental disabilities,” Canadian Family Physician, vol. 52, no. 11, pp. 1410–1418, 2006. View at Google Scholar · View at Scopus
  7. M. Truesdale-Kennedy, L. Taggart, and S. Mcilfatrick, “Breast cancer knowledge among women with intellectual disabilities and their experiences of receiving breast mammography,” Journal of Advanced Nursing, vol. 67, no. 6, pp. 1294–1304, 2011. View at Publisher · View at Google Scholar · View at Scopus
  8. S. G. Sullivan, R. Hussain, T. Threlfall, and A. H. Bittles, “The incidence of cancer in people with intellectual disabilities,” Cancer Causes and Control, vol. 15, no. 10, pp. 1021–1025, 2004. View at Publisher · View at Google Scholar · View at Scopus
  9. K. Patja, P. Eero, and M. Iivanainen, “Cancer incidence among people with intellectual disability,” Journal of Intellectual Disability Research, vol. 45, no. 4, pp. 300–307, 2001. View at Publisher · View at Google Scholar · View at Scopus
  10. N. Davies and M. Duff, “Breast cancer screening for older women with intellectual disability living in community group homes,” Journal of Intellectual Disability Research, vol. 45, no. 3, pp. 253–257, 2001. View at Publisher · View at Google Scholar · View at Scopus
  11. S. G. Sullivan, E. J. Glasson, R. Hussain et al., “Breast cancer and the uptake of mammography screening services by women with intellectual disabilities,” Preventive Medicine, vol. 37, no. 5, pp. 507–512, 2003. View at Publisher · View at Google Scholar · View at Scopus
  12. L. Taggart, M. Truesdale Kennedy, and S. McIlfatrick, “The role of community nurses and residential staff in supporting women with intellectual disability to access breast screening services,” Journal of Intellectual Disability Research, vol. 55, no. 1, pp. 41–52, 2011. View at Publisher · View at Google Scholar · View at Scopus
  13. J. E. Wilkinson, E. Lauer, K. M. Freund, and A. K. Rosen, “Determinants of mammography in women with intellectual disabilities,” Journal of the American Board of Family Medicine, vol. 24, no. 6, pp. 693–703, 2011. View at Publisher · View at Google Scholar · View at Scopus
  14. C. V. Tyler, S. J. Zyzanski, V. Panaite, and L. Council, “Nursing perspectives on cancer screening in adults with intellectual and other developmental disabilities,” Intellectual and Developmental Disabilities, vol. 48, no. 4, pp. 271–277, 2010. View at Publisher · View at Google Scholar · View at Scopus
  15. J. Wilkinson, D. Dreyfus, M. Cerreto, and B. Bokhour, “Educational needs of family physicians who care for adults with intellectual disabilities,” Intellectual and Developmental Disability, vol. 50, no. 3, pp. 243–250, 2012. View at Google Scholar
  16. J. E. Wilkinson, C. E. Deis, D. J. Bowen, and B. G. Bokhour, “‘It's easier said than done’: perspectives on mammography from women with intellectual disabilities,” Annals of Family Medicine, vol. 9, no. 2, pp. 142–147, 2011. View at Publisher · View at Google Scholar · View at Scopus
  17. J. E. Wilkinson, D. E. Dreyfus, D. J. Bowen, and R. B. Bokhou, “Patient and provider views on the use of medical services by women with intellectual disabilities,” Journal of Intellectual Disability Research, vol. 57, no. 11, pp. 1058–1067, 2013. View at Publisher · View at Google Scholar
  18. J. H. Hibbard, J. Stockard, E. R. Mahoney, and M. Tusler, “Development of the patient activation measure (PAM): conceptualizing and measuring activation in patients and consumers,” Health Services Research, vol. 39, no. 4, pp. 1005–1026, 2004. View at Google Scholar · View at Scopus
  19. M. Alegría, A. Polo, S. Gao et al., “Evaluation of a patient activation and empowerment intervention in mental health care,” Medical Care, vol. 46, no. 3, pp. 247–256, 2008. View at Google Scholar · View at Scopus
  20. J. H. Hibbard, E. R. Mahoney, R. Stock, and M. Tusler, “Do increases in patient activation result in improved self-management behaviors?” Health Services Research, vol. 42, no. 4, pp. 1443–1463, 2007. View at Publisher · View at Google Scholar · View at Scopus
  21. S. T. Wong, M. J. Lynam, K. B. Khan, L. Scott, and C. Loock, “The social paediatrics initiative: a RICHER model of primary health care for at risk children and their families,” BMC Pediatrics, vol. 12, article 158, 2012. View at Google Scholar
  22. T. Williams, “Patient empowerment and ethical decision making: the patient/partner and the right to act,” Dimensions of Critical Care Nursing, vol. 21, no. 3, pp. 100–104, 2002. View at Google Scholar · View at Scopus
  23. A. Wagemans, H. van Schrojenstein Lantman-de-Valk, I. Tuffrey-Wijne, G. Widdershoven, and L. Curfs, “End-of-life decisions: an important theme in the care for people with intellectual disabilities,” Journal of Intellectual Disability Research, vol. 54, no. 6, pp. 516–524, 2010. View at Publisher · View at Google Scholar · View at Scopus
  24. P. M. Wilson and C. Goodman, “Evaluation of a modified chronic diabetes self-management program for people with intellectual disabilities,” Journal of Nursing and Healthcare of Chronic Illness, vol. 3, no. 3, pp. 310–318, 2011. View at Google Scholar
  25. K. R. McLeroy, D. Bibeau, A. Steckler, and K. Glanz, “An ecological perspective on health promotion programs,” Health Education and Behavior, vol. 15, no. 4, pp. 351–377, 1988. View at Google Scholar · View at Scopus
  26. H. R. Bernard and G. W. Ryan, Analyzing Qualitative Data: Systematic Approaches, SAGE Publications, Thousand Oaks, Calif, USA, 2010.
  27. K. Charmaz, Constructing Grounded Theory: A Practical Guide through Qualitative Analysis, SAGE Publications, Thousand Oaks, Calif, USA, 2006.
  28. A. Rydlewska, J. Krzysztofik, J. Libergal et al., “Health locus of control and the sense of self-efficacy in patients with systolic heart failure: a pilot study,” Patient Preference and Adherence, vol. 19, no. 7, pp. 337–343, 2013. View at Google Scholar
  29. J. Drennan, “Cognitive interviewing: verbal data in the design and pretesting of questionnaires,” Journal of Advanced Nursing, vol. 42, no. 1, pp. 57–63, 2003. View at Publisher · View at Google Scholar · View at Scopus
  30. N. Sharma, P. S. Lalinde, and J. P. Brosco, “What do residents learn by meeting with families of children with disabilities? A qualitative analysis of an experiential learning module,” Pediatric Rehabilitation, no. 3, pp. 185–189, 2006. View at Publisher · View at Google Scholar · View at Scopus
  31. L. K. Jones, T. E. Binger, C. R. McKenzie, P. Ramcharan, and K. Nankervis, “Sexuality, pregnancy and midwifery care for women with intellectual disabilities: a pilot study on attitudes of university students,” Contemporary Nurse, vol. 35, no. 1, pp. 47–57, 2010. View at Google Scholar · View at Scopus
  32. N. Lennox, M. Taylor, T. Rey-Conde, C. Bain, F. M. Boyle, and D. M. Purdie, “ASK for it: development of a health advocacy intervention for adults with intellectual disability and their general practitioners,” Health Promotion International, vol. 19, no. 2, pp. 167–175, 2004. View at Publisher · View at Google Scholar · View at Scopus
  33. I. Tuffrey-Wijne, J. Bernal, A. Jones, G. Butler, and S. Hollins, “People with intellectual disabilities and their need for cancer information,” European Journal of Oncology Nursing, vol. 10, no. 2, pp. 106–116, 2006. View at Publisher · View at Google Scholar · View at Scopus
  34. J. K. Barr, T. E. Giannotti, T. J. Van Hoof, J. Mongoven, and M. Curry, “Understanding barriers to participation in mammography by women with disabilities,” The American Journal of Health Promotion, vol. 22, no. 6, pp. 381–385, 2008. View at Google Scholar · View at Scopus