Developing Strategies to Improve Advance Care Planning in Long Term Care Homes: Giving Voice to Residents and Their Family Members
Table 1
Interview domains and sample questions for family members.
Interview domains
Sample questions
Perceptions of ACP
(i) What is your understanding of advance care planning? Do you see it as a valuable process? (ii) Have you and resident’s name ever had conversations about his/her wishes surrounding end-of-life care? If yes, can you describe how and when these discussions occurred?
Resident care wishes
(i) What would be his/her wishes for medical, social, psychological, and spiritual support at the end of life? (ii) What do you think LTC staff should know about your resident to best provide his/her care at the end of life?
Beginning conversations
(i) When do you think care planning, related to end-of-life issues, should begin? (ii) Who should initiate these conversations?
Implementing ACP
(i) How would you like to be involved in resident’s care planning for end-of-life care? (ii) How can the LTC home encourage residents and families to get involved in advanced care planning?