Table of Contents
ISRN Nephrology
Volume 2013 (2013), Article ID 308986, 8 pages
http://dx.doi.org/10.5402/2013/308986
Research Article

The Psychosocial Experience of Patients with End-Stage Renal Disease and Its Impact on Quality of Life: Findings from a Needs Assessment to Shape a Service

1Florence Nightingale School of Nursing and Midwifery, Kings College London, London SE1 8WA, UK
2Department of Psychology, Institute of Psychiatry, Kings College London, De Crespigny Park, London SE5 8AF, UK
3Department of Haematology, Guy's Hospital, 4th Floor Southwark Wing, Great Maze Pond, London SE1 9RT, UK

Received 12 June 2012; Accepted 11 July 2012

Academic Editors: M. Arici and G. H. Kim

Copyright © 2013 Jennifer Finnegan-John and Veronica J. Thomas. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

Abstract

Background. A needs assessment was conducted on renal patients registered to a leading hospital trust in London in order to explore their psychological, social, and spiritual needs. The aim of the needs assessment was to create an evidence base for the development of a comprehensive health psychology service to run concurrently with a renal counselling support service within the department. Methodology. This study utilised a series of semistructured face-to-face interviews and focus groups with renal patients and their carers, to explore how ESRD impacted quality of life. Results. A thematic analysis was undertaken. Seven emergent themes were identified that influenced the quality of life of people with EDRD: physiological impact, impact of treatment, impact on daily life, psychological impact, impact on relationships, social impact and coping responses. Conclusion. The needs assessment clearly identified that ESRD carries with it emotional, physical, psychological, social, and existential burdens. The data from this needs assessment study has created an evidence base upon which future health psychology services can be built within this leading UK hospital.