Journal of Cancer Epidemiology / 2009 / Article / Tab 1

Methodology Report

Kids, Adolescents, and Young Adults Cancer Study—A Methodologic Approach in Cancer Epidemiology Research

Table 1

Representative sample of variables collected in KAYAC case and parent questionnaires.

Case (birth–early childhood)CaseCase (at diagnosis)MotherMother PrenatalFatherFather PrenatalExtended family

Demographics
 Race/ethnicityXXXX
 Marital statusXXX
 Date of birthXXXXX
 Date of death (if applicable)XXX
 Religious affiliationXXXX
 BirthplaceXXXX

Cancer information
 History of cancerXXXX
 Cancer type and histologyX XXX
 Date/age of diagnosisXXXX
 Hospital of diagnosisXXXX

Social and economic status (SES)
 EducationXXXX
 Health insuranceXXX
 IncomeXX (household)
Risks, exposures, general health
 General Health and IllnessesXXXXXXX
 Height and weightXXXXX
 ImmunizationsXXX
 Medications and vitamins takenXXXXXX
 Pesticide and chemical exposureXXXXXX
 Radiation/X-ray exposureXXX
 Animal exposureXX
 International travelX
 Occupational historyXXXXX
 Tobacco useXXXXXX
 Alcohol useXX
 BreastfeedingX
 Reproductive historyXXX

Other
 Psychological/emotional well-being X
 Social support X
 Quality of lifeX

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