Kids, Adolescents, and Young Adults Cancer Study—A Methodologic Approach in Cancer Epidemiology Research

Table 1

Representative sample of variables collected in KAYAC case and parent questionnaires.

	Case (birth–early childhood)	Case	Case (at diagnosis)	Mother	Mother Prenatal	Father	Father Prenatal	Extended family
Demographics
Race/ethnicity		X		X		X		X
Marital status		X		X		X
Date of birth		X		X	X	X	X
Date of death (if applicable)				X		X		X
Religious affiliation		X		X		X		X
Birthplace		X		X		X		X
Cancer information
History of cancer		X		X		X		X
Cancer type and histology		X		X		X		X
Date/age of diagnosis		X		X		X		X
Hospital of diagnosis		X		X		X		X
Social and economic status (SES)
Education	X	X		X		X
Health insurance	X	X	X
Income		X	X (household)
Risks, exposures, general health
General Health and Illnesses	X	X		X	X	X	X	X
Height and weight	X	X	X	X	X
Immunizations	X	X			X
Medications and vitamins taken	X	X		X	X	X	X
Pesticide and chemical exposure	X	X		X	X	X	X
Radiation/X-ray exposure	X	X			X
Animal exposure	X				X
International travel		X
Occupational history		X		X	X	X	X
Tobacco use		X		X	X	X	X	X
Alcohol use		X			X
Breastfeeding	X
Reproductive history		X		X	X
Other
Psychological/emotional well-being		X
Social support		X
Quality of life		X