|
| | Active Relapse Manager | Early-Stage Proactive Relapse Monitor | Adapted Passive Relapse Manager | Passive Relapse Monitor |
|
| Personal profile | | | | |
| Age | 26 to 56 years | 33 and 50 years | 36 to 69 years | 33, 34, and 60 years |
| Time since diagnosis | 3 months to 22 years | 8 and 12 years | 10 to 28 years | 4 to 11 years |
| Time since relapse | 1 month to 5 months | <2 weeks | 1 week to 6 months | 2 to 3 months |
|
| Description of relapse experience | | | | |
| Examples: symptoms or limitations | (i) Problems with balance, mobility, memory, expression, fatigue, anxiety, depression, and fear
(ii) Inability to self-care, to walk, to read, to think, to remember, to drive, and to run errands in their community | (i) Problems with vision, memory, fatigue, pain, mobility, depression, fear, and anger
(ii) Inability to manage basic house chores, to read, to think, to remember, and to drive to work | (i) Presence of pain, fatigue, numbness in hands or legs, heaviness in legs, problems with memory, and word searching | (i) Presence of acute short-term pain without residual disabilities, minor problems with vision, or numbness between toes |
| Notion about daily routines | (i) Daily routine significantly affected
(ii) Unable to work and to perform necessary or desired activities in their daily life (e.g., socializing, taking care of house chores, pursuing regular hobbies, and leisure activities) | (i) Daily routines altered significantly
(ii) Unable to work and to perform necessary or desired activities in their daily life (e.g., taking care of young children, family members and performing basic house chores) | (i) Daily routine was not altered significantly due to the most recent relapse
(ii) Able to manage and continue performing necessary or desired activities of their daily life | (i) Daily routine was not altered
(ii) Able to manage and continue performing necessary or desired activities of their daily life |
|
| Interpretation of relapse experience | Severe | Severe | Manageable | Minor (including a short-term acute relapse with no residual disability) |
|
| Perception of postrelapse care need | Necessary | Uncertain
(i) Possibly due to being at the early stage of a relapse
(ii) Presence of self-monitoring the progress of the relapse | Unnecessary
(i) Possibly due to the belief about postrelapse care and the disease progression | Unnecessary
(i) Possibly due to a lack of residual disabilities |
|
| Summary | (i) Participants in this pattern were mostly at the peak of their career and family development phase
(ii) Symptoms and/or limitations due to the relapse were preventing the participants in this pattern from performing necessary or desired activities in their daily life
(iii) These participants had to make considerable changes in their daily routine to cope with their challenges and/or disabilities that occurred during and after relapse | (i) Participants in this pattern were at the peak of their career and family development phase
(ii) Symptoms and limitations due to the relapse were preventing participants in this pattern from performing necessary or desired activities in their daily life
(iii) These participants interpreted the effect of the relapse as negative and severe; however, they were at the early stage of their relapse and expressed their uncertainty as to whether or not they needed the postrelapse care | (i) Some of the participants in this pattern were at the peak of their career and family development and others were in their retirement
(ii) Type or severity of symptoms/limitations due to the relapse did not affect how the participants in this pattern interpreted their relapse experience
(iii) The participants interpreted their relapse experience as manageable possibly due to their experiences with the past relapses and belief about available care being ineffective | (i) Some of the participants in this pattern were at the peak of their career and family development and others were in their retirement
(ii) Participants in this pattern experienced minor or short-term acute symptoms/limitation without residual disabilities
(iii) These participants were able to continue performing necessary or desired activities in their daily life without altering their daily routine; thus, they expressed no need for postrelapse care |
|
