Clinical Study

Self-Care Recommendations of Middle-Aged and Older Adults with Sickle Cell Disease

Table 1

Demographic description of respondents.

VariableFemale response ( )Male response ( )

Age (years)57 (range 50–72)54 (range 48–61)
Education12.3 (range 5–16)13 (range 12–15)
1st SCD crisis (age in years)10.2* (1.5–21)6 (range 3–9)
Average SCD crises per year (number)2.3 (range 1–4.5)1.2 (0–3)

Variable (%) (%)

Employment
  Disabled4 (66.7%)3 (60%)
  Full-time1 (16.7%)1 (20%)
  Retired1 (20%)
  Never employed1 (16.7%)
Marital Status
  Married2 (33.3%)1 (20%)
  Living with domestic partner2 (33.3%)1 (20%)
  Separated1 (16.7%)
  Divorced1 (16.7%)1 (20%)
  Single1 (20%)
  Widow1 (20%)
SCD Type
  SCD-SS4 (66.7%)4 (80%)
  SCD-SC1 (16.7%)
  Unsure(14%)1 (20%)

*Note that the average number of SCD crises was skewed by 2 respondents who reported first SCD crises at age 21.