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Nursing Research and Practice
Volume 2012, Article ID 326506, 8 pages
http://dx.doi.org/10.1155/2012/326506
Research Article

A Web-Based Programme for Person-Centred Learning and Support Designed for Preschool Children with Long-Term Illness: A Pilot Study of a New Intervention

1Institute of Health and Care Sciences, The Sahlgrenska Academy, University of Gothenburg, P.O. Box 457, 405 30 Gothenburg, Sweden
2Urotherapy Department, Queen Silvia Children’s Hospital, 416 85 Gothenburg, Sweden
3Centre for Person-Centred Care (GPCC), University of Gothenburg, P.O. Box 100, 405 30 Gothenburg, Sweden
4Department of Education Communication and Learning, University of Gothenburg, P.O. Box 300, 405 30 Gothenburg, Sweden

Received 22 June 2012; Accepted 16 December 2012

Academic Editor: Patricia M. Davidson

Copyright © 2012 Anna-Lena Hellström et al. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

Linked References

  1. L. Berntsson, M. Brydolf, M. Berg, and A.-L. Hellström, “School children and adolescents’ perception of health, well-being and participation,” Scandinavian Journal of Caring Sciences, vol. 21, pp. 419–425, 2007. View at Google Scholar
  2. A.-L. Hellstrom, M. Berg, E. Sölsnes, G. Holmdahl, and U. Sillén, “Feeling good in daily life—from the point of view of boys with urethral valves,” Journal of Urology, vol. 176, pp. 1742–1746, 2006. View at Google Scholar
  3. G. Holmdahl, U. Sillén, K. Abrahamsson, A. Hellström, S. Kruse, and E. Sölsnes, “Self-catheterization during adolescence,” Scandinavian Journal of Urology and Nephrology, vol. 41, no. 3, pp. 214–217, 2007. View at Publisher · View at Google Scholar · View at Scopus
  4. R. M. Taylor, F. Gibson, and L. S. Franck, “A concept analysis of health-related quality of life in young people with chronic illness,” Journal of Clinical Nursing, vol. 17, no. 14, pp. 1823–1833, 2008. View at Publisher · View at Google Scholar · View at Scopus
  5. C. J. Wilson, N. Pistrang, C. R. J. Woodhouse, and D. Christie, “The psychosocial impact of bladder exstrophy in adolescence,” Journal of Adolescent Health, vol. 41, no. 5, pp. 504–508, 2007. View at Publisher · View at Google Scholar · View at Scopus
  6. A. Ebert, S. Scheuering, G. Schott, and W. H. Roesch, “Psychosocial and psychosexual development in childhood and adolescence within the exstrophy-epispadias complex,” Journal of Urology, vol. 174, no. 3, pp. 1094–1098, 2005. View at Publisher · View at Google Scholar · View at Scopus
  7. M. Af Sandeberg, E. Johansson, O. Björk, and L. Wettergren, “Health-related quality of life relates to school attendance in children on treatment for cancer,” Journal of Pediatric Oncology Nursing, vol. 25, no. 5, pp. 265–274, 2008. View at Publisher · View at Google Scholar · View at Scopus
  8. P. W. Lau, E. Y. Lau, P. Wongdel, and L. Ransdell, “A systematic review of information and communication technology-based interventions for promoting physical activity behavior change in children and adolescents,” Journal of Medical Internet Research, vol. 13, article e 48, 2011. View at Google Scholar
  9. C. M. Ruland, H. H. Holte, J. Røislien et al., “Effects of a computer-supported interactive tailored patient assessment tool on patient care, symptom distress, and patients’ need for symptom management support: a randomized clinical trial,” Journal of American Medical Informatics Association, vol. 17, pp. 403–410, 2010. View at Google Scholar
  10. C. M. Ruland, J. Starren, and T. M. Vatne, “Participatory design with children in the development of a support system for patient-centered care in pediatric oncology,” Journal of Biomedical Informatics, vol. 41, no. 4, pp. 624–635, 2008. View at Publisher · View at Google Scholar · View at Scopus
  11. N. Mead and P. Bower, “Patient-centredness: a conceptual framework and review of the empirical literature,” Social Science and Medicine, vol. 51, no. 7, pp. 1087–1110, 2000. View at Publisher · View at Google Scholar · View at Scopus
  12. T. Gambling and A. F. Long, “The realisation of patient-centred care during a 3-year proactive telephone counselling self-care intervention for diabetes,” Patient Education and Counseling, vol. 80, no. 2, pp. 219–226, 2010. View at Publisher · View at Google Scholar · View at Scopus
  13. I. Ekman, K. Swedberg, and C. Taft, “Person-centered care—ready for prime time,” European Journal of Cardiovascular Nursing, vol. 10, pp. 248–251, 2011. View at Google Scholar
  14. A. Antonovsky, Unraveling the Mystery of Health How People Manage Stress and Stay Well, Jossey-Bass, San Francisco, Calif, USA, 1987.
  15. F. Marton and W. Y. Pong, “On the unit of description in phenomenography,” Higher Education Research & Development, vol. 24, no. 4, pp. 335–348, 2005. View at Google Scholar
  16. I. P. Samuelsson and M. A. Carlsson, “The playing learning child: towards a pedagogy of early childhood,” Scandinavian Journal of Educational Research, vol. 52, no. 6, pp. 623–641, 2008. View at Publisher · View at Google Scholar · View at Scopus
  17. I. Pramling Samuelsson and E. Johansson, “Play and learning—inseparable dimensions in preschool practice,” Early Child Development and Care, vol. 176, pp. 47–65, 2006. View at Google Scholar
  18. K. Gustafsson and M. Nolbris, See-Hear-Do Pictures. Teaching About Children’s Cancer with Cartoon Tools, MediaCuben AB, Barncancerfonden, Stockholm, Sweden, 2006.
  19. M. Nolbris, J. Abrahamsson, A.-L. Hellström, L. Olofsson, and K. Enskär, “The experiences of therapeutic support groups by siblings of children with cancer,” Pediatric Nursing, vol. 36, pp. 298–304, 2010. View at Google Scholar
  20. J. A. Rollins, “Tell me about it: drawing as a communication tool for children with cancer,” Journal of Pediatric Oncology Nursing, vol. 22, no. 4, pp. 203–221, 2005. View at Publisher · View at Google Scholar · View at Scopus
  21. C. C. Wang, W. K. Yi, Z. W. Tao, and K. Carovano, “Photovoice as a participatory health promotion strategy,” Health Promotion International, vol. 13, no. 1, pp. 75–86, 1998. View at Publisher · View at Google Scholar · View at Scopus
  22. P. Pridmore and G. Bendelow, “Images of health: exploring beliefs of children using draw and write’ technique,” Health Education Journal, vol. 54, pp. 473–488, 1995. View at Google Scholar
  23. R. M. Milteer and K. R. Ginsburg, “The importance of play in promoting healthy child development and maintaining strong parent-child bond: focus on children in poverty,” Pediatrics, vol. 129, pp. 204–213, 2012. View at Google Scholar
  24. J. Howard and K. McInnes, “The impact of children’s perception of an activity as play rather than not play on emotional well-being,” Child: Care, Health and Development. In press. View at Publisher · View at Google Scholar
  25. E. Erikson, Childhood and Society, WW Morton, New York, NY, USA, 1963.
  26. L. Shields, I. Kristensson-Hallström, G. Kristjánsdóttir, and J. Hunter, “Who owns the child in hospital? A preliminary discussion,” Journal of Advanced Nursing, vol. 41, no. 3, pp. 213–222, 2003. View at Publisher · View at Google Scholar · View at Scopus
  27. UNICEF homepage Convention on the Rights of the Child and entry into force 2 September 1990. April 2012, http://www2.ohchr.org/english/law/crc.htm.
  28. H. Shier, “Pathways to participation: openings, opportunities and obligations,” Children & Society, vol. 15, pp. 107–117, 2001. View at Google Scholar
  29. I. Pramling Samuelsson and S. Sheridan, “Preschool quality and young children’s learning in Sweden,” International Journal of Child Care and Education Policy, vol. 1, pp. 1–12, 2009. View at Google Scholar