Research Article

Information Experiences and Needs in Patients with Pulmonary Arterial Hypertension or Chronic Thromboembolic Pulmonary Hypertension

Table 1

Demographic data and disease characteristics of the patients .

Gender13 women/4 men

Age
 Mean ± SD56 ± 15
 Median (range)60 (28–73)
Years since diagnosis
 Mean ± SD5 ± 3
 Median (range)4 (1–12)
Marital status
 Single 5
 Married/living together 12
Education
 Elementary school 4
 High school 6
 College/university 7
Diagnosis
 IPAH1  6
 APAH2  1
 IPAH + APAH 1
 APAH + SSC3  4
 CTEPH4  3
 CTEPH with surgery 2
Drugs
 ERAa  +  PDEb  +  warfarin7
 ERA + PDE4
 ERA1
 ERA + Warfarin1
 ERA + CCBc  +  warfarin1
 CCB1
 PDE1
 PDE + warfarin1
Current occupation
 Full time job 3
 Part time job 5
 Disability/retirement pension9

1Idiopathic pulmonary arterial hypertension.
2Associated pulmonary arterial hypertension.
3Sclerosis-associated pulmonary arterial hypertension.
4Chronic thromboembolic pulmonary hypertension.
aEndothelin receptor antagonists.
bPhosphodiesterase.
cCalcium channel blockers.