Research Article

Adolescent and Adult Children of Parents with Parkinson's Disease: Incorporating Their Needs in Clinical Guidelines

Table 3

Percentage values by parental condition for dichotomous variables of PIIS-R.

PIIS-R itemPD%MS%

(43) Have enough information62.557.1
(44) Know enough about what will happen in the future to parent46.343.5
(45) Rely solely on parents for information about parent’s condition61.368.3
(46) Have somebody to talk to about parent’s illness if want to70.469.8
(47) Have support from friends and family81.377.0
(48) Have ways to cope with any feelings of anger74.572.5
(49) Parent talks about their condition77.566.7
(50) Would help to have contact with people in similar circumstances43.629.0
(51) Would help to have training in giving practical care52.537.1
(52) Would help to have opportunity for counselling35.031.7
(53) Would help to have counselling as family21.522.2
(54) Outside help available to help care for affected parent40.855.0
(55) Think more help (e.g., meals on wheels, physiotherapy) should be provided by services61.061.9
(56) Would help to be able to talk to local services about help provided to parent40.528.6