|
| Study | Location of patients’ recruitment | Number of participants | Qualitative methods | Study aim |
|
| Nijhof, 1995 | Amsterdam, The Netherlands | 23 PD pts
(10 F; 13 M) | In-depth interviews with qualitative analysis of content | To explore PD subjective interpretations |
| Posen et al., 2000 | Tel Aviv, Israel | 15 PD pts (F) | Sessions of psychoeducational work-group (MacKenzie and Livesley, 1983) | To describe the PD experience in a female work-group |
| Sunvisson and Ekman, 2001 | Sweden | 11 PD pts
(no gender details) | Interviews during a period of 2 years and phenomenological data analysis | To elucidate environmental influences on lived PD experiences |
| Van Der Bruggen and Widdershoven, 2004 | / | 4 novels | Existential-phenomenological analysis of narrative materials of PD patients | To catch the meaning of being a PD patient |
| Bramley and Eatough, 2005 | Nottingham, UK | 1 PD pts (F)
(single case study) | Semi-structured interviews
analyzed using interpretative phenomenological analysis (IPA) | To catch the subjective PD daily experience |
| Miller et al., 2006 (a) | Sunderland, UK | 37 PD pts
(14 F; 23 M) | In-depth interviews with qualitative analysis of content | To study changes in communication impact on daily PD patients’ lives |
| Miller et al., 2006 (b) | Sunderland, UK | 37 PD pts
(14 F; 23 M) | In-depth interviews with qualitative analysis of content | To establish if and how changes in swallowing impact on daily PD patients’ lives |
| Mshana et al., 2011 | Mwanza, Tanzania | 28 PD pts, 28 caregivers, 4 health workers, 2 traditional healers
(no gender details) | In-depth interviews and focus groups | To detect how PD is perceived and treated in a rural African population
|
| Chiong-Rivero et al., 2011 | USA | 48 PD pts
(26 F; 22 M)
15 caregivers
(13 F; 2 M) | Focus groups and one-on-one interviews
| To collect Health-Related Quality of Life consequences of Parkinson’s disease from the patient’s and caregivers’ perspective |
| Hermanns, 2013 | Texas, USA | 14 PD pts
(7 F; 7 M) | Ethnographic approach using interview data, participant observations, and fieldwork (2-year exposure) | To discuss the visible and invisible stigma |
| Soleimani et al., 2014 | Iran | 10 PD pts
(3 F; 7 M) | Semistructured, face-to-face interviews and content analysis approach | To explore the effects of PD on people’s social interactions |
| Soundy et al., 2014 | / | 37 qualitative articles (review) | Metaethnography | To summarize and to synthesize qualitative studies concerning the PD experience and perception |
| Giardini et al., 2016 | Montescano (PV), Italy | 27 PD pts
(14 F; 13 M) | Semi-structured interviews with PD patients analyzed using the Grounded Theory methodology | To qualitatively describe the rehabilitation experience of PD inpatients |
| Soleimani et al., 2016 | Iran | 17 PD pts
(7 F; 10 M) | Semistructured, face-to-face interviews and content analysis approach | To explore the primary concerns and perceptions of daily PD patients’ lives |
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