Parkinson’s Disease

Management, Levels of Support, Quality of Life, and Social Inclusion in Parkinson’s Disease: Interventions, Innovation, and Practice Development


Publishing date
01 Mar 2020
Status
Published
Submission deadline
08 Nov 2019

1University of Southampton, Southampton, UK

2VIA University College, Aarhus, Denmark

3University of Navarre, Pamplona, Spain


Management, Levels of Support, Quality of Life, and Social Inclusion in Parkinson’s Disease: Interventions, Innovation, and Practice Development

Description

The experience of living with Parkinson’s Disease (PD) is unique and complex for each person. Previous life experiences, personality types, values and beliefs, and coping skills are factors that influence PD management. A focus on everyday life and living with PD that goes beyond the biomedical management is essential to integrate the psychosocial and individual illness experience. To achieve a tangible impact on people with PD and increase family’s autonomy and quality of life, it is important that health promotion strategies ensure equity, continuity, and transparency in policy and practice.

Implementation plans for innovation, technology, and care pathways for PD require a complex system of support, which starts from involving the patient and their family by establishing dialogues between several sectors, agents, disciplines, and levels of care. Sustainable and integrated health-supporting environments are essential for people living with PD to ensure patients and families social inclusion and access to care.

In this context, this special issue will aim to cover topics related to PD management and innovation from a health and social care perspective. We welcome the submission of theoretical, methodological, empirical, and review papers unfolding emergent health and social care concepts and innovation in relation to PD management and interventions and with clear implications for policy and practice development. Studies showing connections between PD and other long-term or neurodegenerative conditions (e.g., dementia, Alzheimer, and multiple sclerosis) are also welcome.

We are particularly interested in research using mixed methods, evaluating complex interventions, and presenting qualitative research with important conceptual leaps.

Potential topics include but are not limited to the following:

  • Living with PD from the patient’s, patient’s children, and/or spouses/carers’ perspective
  • Impact of medical and surgical treatment of PD on psychosocial adjustment of patients
  • Macro-, meso-, and microlevels of support, infrastructures, and interprofessional perspectives on living with and managing everyday life with PD
  • Coping with PD and coping profiles of people living with PD
  • Comparison of psychosocial adjustment to PD with other chronic movement disorders to identify disease specific versus other factors influencing adjustment
  • Health promotion strategies to reduce impact of PD for patients, family, and carers
  • Identifying person-centred and professional management strategies for fostering psychosocial adjustment to PD

Articles

  • Special Issue
  • - Volume 2021
  • - Article ID 4681251
  • - Editorial

Management, Levels of Support, Quality of Life, and Social Inclusion in Parkinson’s Disease: Interventions, Innovation, and Practice Development

Mari Carmen Portillo | Anita Haahr | M. Victoria Navarta-Sánchez
  • Special Issue
  • - Volume 2020
  • - Article ID 8692509
  • - Research Article

Analysis of Motor Complication and Relative Factors in a Cohort of Chinese Patients with Parkinson’s Disease

Baihua Sun | Tao Wang | ... | Jin Qiao
  • Special Issue
  • - Volume 2020
  • - Article ID 2497386
  • - Research Article

Saturdays-in-Motion: Education and Empowerment through an Interdisciplinary Team Approach for Parkinson’s Disease in Cali-Colombia

Beatriz E. Muñoz | Valentina Quintana-Peña | ... | Jorge L. Orozco
  • Special Issue
  • - Volume 2020
  • - Article ID 2086834
  • - Research Article

Psychosocial Adjustment of In-Home Caregivers of Family Members with Dementia and Parkinson’s Disease: A Comparative Study

María Cristina Lopes Dos Santos | María Victoria Navarta-Sánchez | ... | Mari Carmen Portillo
  • Special Issue
  • - Volume 2020
  • - Article ID 7953032
  • - Research Article

Nonmotor-Related Quality of Life in Parkinson’s Patients with Subjective Memory Complaints: Comparison with PDQ-39

Alexis Lionel Jenny | Antonia Meyer | ... | Ute Gschwandtner
  • Special Issue
  • - Volume 2020
  • - Article ID 7370810
  • - Research Article

Taking Time: A Mixed Methods Study of Parkinson’s Disease Caregiver Participation in Activities in Relation to Their Wellbeing

Lia Prado | Rebecca Hadley | Dawn Rose
  • Special Issue
  • - Volume 2020
  • - Article ID 2189084
  • - Research Article

Combining a Cognitive Concurrent Task with a Motor or Motor-Cognitive Task: Which Is Better to Differentiate Levels of Affectation in Parkinson’s Disease?

Arturo X. Pereiro | Bea Resúa | ... | José María Cancela-Carral
  • Special Issue
  • - Volume 2020
  • - Article ID 2679501
  • - Research Article

Patients’ Perspective of Comprehensive Parkinson Care in Rural Victoria

Robert Iansek | Mary Danoudis
  • Special Issue
  • - Volume 2020
  • - Article ID 8673087
  • - Research Article

Proactive and Integrated Management and Empowerment in Parkinson’s Disease: Designing a New Model of Care

Emma Tenison | Agnes Smink | ... | Emily Henderson
  • Special Issue
  • - Volume 2020
  • - Article ID 5184084
  • - Research Article

Association of Motor and Cognitive Symptoms with Health-Related Quality of Life and Caregiver Burden in a German Cohort of Advanced Parkinson’s Disease Patients

M. Klietz | T. Schnur | ... | F. Wegner
Parkinson’s Disease
 Journal metrics
Acceptance rate51%
Submission to final decision75 days
Acceptance to publication35 days
CiteScore3.600
Impact Factor1.758
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