|
Study
(author, year) | Purpose | Population/
sample | Research
design | Analysis
method | Comparison | Rigor | Themes |
|
| Hounsgaard et al. (2011) [18] | Women’s experiences of care decision and self-management in Parkinson’s | 10 Parkinson’s
caregivers | Phenomenological
hermeneutic approach | Ricoeur’s
framework | None | Participant check-back | Learning to live as a partner; contact with health service;
between power and powerlessness; change in self-management |
|
| McCabe et al. (2008) [20] | Change in work and recreational changes among people with neurological illness and their caregivers | 31 Parkinson’s
caregivers | Interviews
specific design is not mentioned | Content analysis | 28 multiple sclerosis,
27 motor neuron disease, 24 Huntington’s | Audit trail maintained | Changes in patient and carer work situation; feelings about changes in patient and carer work situation; impact of work changes on patients and carer social life |
|
| McLaughlin et al. (2011) [21] | Caregiver’s perception of living and coping with Parkinson’s | 26 Parkinson’s
caregivers | Exploratory approach: audiotaped interviews | Miles and Huberman framework | None | Not provided | Diagnosis, information needed, coordinated and continued medical care, meaning and timing of palliative care, burdens related to caregiving, and economic implication of caring |
|
| Tan et al. (2012) [22] | Understand perceptions of Singaporean caregivers in caring for Parkinson’s patients | 17 Parkinson’s
caregivers | Part of a large mixed method sequential explanatory design | Ritchie and Spencer’s framework | None | Not provided | Four themes of coping and adaptation, challenges of caregiving, effects of caregiving on the caregivers, and need for better caregiver support are reported |
|
