Rehabilitation Research and Practice / 2014 / Article / Tab 2

Review Article

Understanding the Burden on Caregivers of People with Parkinson’s: A Scoping Review of the Literature

Table 2

Qualitative studies.

Study
(author, year)
Purpose Population/
sample
Research
design
Analysis
method
Comparison Rigor Themes

Hounsgaard et al. (2011) [18]Women’s experiences of care decision and self-management in Parkinson’s 10 Parkinson’s
caregivers
Phenomenological
hermeneutic approach
Ricoeur’s
framework
None Participant check-back Learning to live as a partner; contact with health service;
between power and powerlessness; change in self-management

McCabe et al. (2008) [20]Change in work and recreational changes among people with neurological illness and their caregivers 31 Parkinson’s
caregivers
Interviews
specific design is not mentioned
Content analysis 28 multiple sclerosis,
27 motor neuron disease, 24 Huntington’s
Audit trail maintained Changes in patient and carer work situation; feelings about changes in patient and carer work situation; impact of work changes on patients and carer social life

McLaughlin et al. (2011) [21]Caregiver’s perception of living and coping with Parkinson’s 26 Parkinson’s
caregivers
Exploratory approach: audiotaped interviews Miles and Huberman framework None Not provided Diagnosis, information needed, coordinated and continued medical care, meaning and timing of palliative care, burdens related to caregiving, and economic implication of caring

Tan et al. (2012) [22]Understand perceptions of Singaporean caregivers in caring for Parkinson’s patients17 Parkinson’s
caregivers
Part of a large mixed method sequential explanatory designRitchie and Spencer’s frameworkNoneNot providedFour themes of coping and adaptation, challenges of caregiving, effects of caregiving on the caregivers, and need for better caregiver support are reported

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